So... I checked my portal...

Oh Fluff, so sorry to see this! While I have no answers to your questions,  wanted to send you support and cyber hugs. 

When will you see your oncologist? I hope it is very soon so that you can get answers and a plan of attack. I'm hopeful you will feel better with a plan.

Please come back and let us know what is next. We will be here for you every step of the way.

Love and Hugs,

Cindi

NOt what we wanted to hear.  We are all pulling for you.  I can't give you advice because every case is different.  I hope. you have a good realtionship with your doctors.  You seem to still feel pretty good.  Is your CA 125 reliable?  I have a hard time trusitng them.  And I hope they have other suggestions for you since you are otherwise healthy.   Love and hugs to you.

i Keep typing and erasing stuff.  They better have a good plan when you go in tomorrow.  i will come with you in spirit. 

I know you're upset. Two weeks ago I discovered my cancer had reoccurred. I too have UPSC. Mine was stage 3c. I finished chemo 6 years ago in September and had been NED since then. I was extremely lucky and pretty shell shocked because I had finally quit thinking about cancer. I had chemo today. But first I spoke with my oncologist. He told me all the things they do and that people do recover from reoccurrences. And they're learning new ways to treat these frequent reoccurrences that give patients more time between treatments. I used to read these boards six years ago and always checked back in occasionally to see how people were doing. There were and are women who survived reoccurrences and did well. They just don't check in often because at some point you have to mentally move away from cancer. But they are out there. So, there is hope. I was actually surprised at all the things my oncologist and his team were doing on my behalf as soon as they got the news my cancer was back. Since chemo worked so well for me last time he's hoping it will again and give me a good about of time again. But he said it most likely will reoccur again. And he's already working on how to treat that step. We have a chronic disease that will need treatment on and off like many other chronic diseases. Sending you a virtual giant hug filled with only positive thoughts! 

I am thinking about you  and what your doctor said.  I am hoping he had some options for you.

Did they do genetic testing and suggest any immunotherapy?  I understand your mentally sucks feelings.  It is a big part of this disease.  But you are still here and we are all grateful for that.  I looked up topotecan.  It is a general chemo.  The immunotherapy targets your mutations specifically as you know.  I just cant see that you have taken any.  

Flufff said:

Weekly Topotecan or taxol

That is my options right now. So I decided to go for the topotecan first, as loosing my hair all over again, isn't so appealing;)

Mentally? Well. It sucks a bit to be honest. Recurrence after just 4 months. I've been having some

thoughts that I'm not gonna make it. I'm begining to think like, if I live long enough for Christmas. Will I live to see my 50th birthday in may next year. Im beginning to doubt that I can beat this beast called USPC.  

Ive done my first chemo. It was okay. Was a bit tired, that's all. 

Have any of you any experience with weekly topotecan?

You have a 100% success rate so far at surviving each day.  Best of wishes to you as you go through this next treatment.  And hair is a very small price to pay if you need to do the taxol.  Hair grows back!  Hugs.

Stacey,

I've been thinking about you recently and wondering how you were doing, so I'm glad you checked back in and let us know that things are going well for you. I always love to see your beautiful profile pic!

Fluff so sorry to hear about your recurrance. I'm interested in hear about your treatment. I too was dx with carcinomatosis of the peritoneal cavity & cancer in soft surroundin tissue July 9. I had tumors discovered while having sigmoidectomy which resulted in a dreaded colostomy. I've been put on arimidex because my only tumor marker is a CA125 Which went from 72 to 89 in a month. This Saturday I will have another blood draw to check my CA125 and my creatinine. My right kidney has failed & there is some worry about my left Kidney so no chemo is recommended.  Much like you I've been told this kind of cancer is a short term death sentence. You have been through so much and fought so hard you are an inspiration. Please keep fighting and more importangly please try to enjoy your life. Hugs, best wishes and many prayers coming your way.