Four year post

PipLily said:

Congratulations!

My husband is just 2 1/2 months post treatment.....I read your post to him as an encouragement to CONTINUE with his exercises! He wants to get lazy with them because he feels so great!!!

Congratulations to you, and continued blessings and best wishes!

I would repeat what Nancy said - The lotion is surprisingly important, and that doesn't end.  I use CeraVe, and I know when I've forgotten.  Mine is loose enough that I can get by most days even if I ignore it, which leads to bad habbits and eventually painful reminders.  That's followed by a period earning redemption, followed by an inevitable return to sloth. 

Dry mouth is the same thing.  I use a lot of Xylimelts, but I can get busy on a project and forget to sip or stick one on.  Done that routine for up to eight hours.  It takes a while to recover after to realize you've done that.

Drivingdaisy said:

Donfoo

I so wish I could.  I'm 4 yrs but so messed from being overdosed.  Most of My Drs have said problems due to treatments and now can't change...  gets to the point don't want to get up in Morning & repeat another day.  I too do Arnica Gel 2x daily & message in really good.  Actually cured My turkey neck better than taping.  But thyroid such a mess they can't get it regulated 3 Drs in 4 yrs.  finally one looking outside the box.  I'm Hypothyroid but not only cold intolerant but also heat intolerant.  Fl has had a major heat problem 80 at 4 am.  Usually around 105-110 daily with humid& heat index .  Our deck is covered with 4 fans still feels like steam room.  I than retain any heat if I sit outside to talk to kids and takes most of night to get out.  Don't sweat, don't cry, no moisture in mouth or nose.  My Rad Dr did a number on Me.  Took everything out with 70 Gys down to collar bone just about 3rd degree burns.  Needed feeding tube could not even drink water or talk.  For a small piece of skin on where left tonsil use to be.  Chemo Dr 2 horrible drugs for 7 weeks, mouth full of sores being burned over & over, messed my insides good.   I have No quality of life.  Just Chemo Saliva.  Disgusting.  Don't eat much all tastes to strong or yucky so back down to 103 lbs.  can't sleep due to out of wack Cortisol so high all night & early morning so No sleep recently for a month.  I'm a bedvalid.  So exhausted constantly.  Can't eat much basically survive on Plant based protein shakes & a few fruits.  Might as well stilled on feeding tube what's the difference.  So many on here doing so well & thrilled for them don't want anyone to end up like Me.   How long for you now NED?   Stay well, healthy, & safe.  Crazy world out there.   Lisa (Daisy)

A remote diagnosis by a non-professional, keep that in mind: 

My wife has a Thyroid problem (nominally Hyper, but turns out not exclusively) and it took a good while to get a handle on.  It sounds like you might have both a T3 and T4 problem.  They usually test for T3, ignore T4, and many simply blow it off with just TSH.  Also, there are deeply known problems with both Synthroid and Levothyroxin.  My wife was on Synth, a doc switched her to Levo, she got progressively much worse, and I finally stepped in, forced a change of doctors (it helped that kid[1] specializes in civil litigation, tho she has also litigated everything since she was 3), forced a full battery of Tn and TSH tests, and lo there it was.  She is back on Synth, dosage is monitored closely, much improved.  This cycle took years, and I only discovered it thru a friend who had gone through the same thing.   Synth and Levo are NOT equivalent, dosage matters hugely.  Buying thru Costco the extra price of Synth came down to about a dollar per day.  Docs, especially in HMOs (we're in Kaiser) have received regular sermons on the lack of difference not justifying the extra cost of Synth.  It makes a lot of people miserable and sick.