parotid gland cancer

dave123
dave123 Member Posts: 10
edited March 2014 in Head and Neck Cancer #1
I found out in December 09 that I had parotid gland cancer . On Feb 5 th this year I had a operation at John Hopkins hospital for the cancer the operation went well Then on March of this year I had 33 treatments of Radiation to make sure they got all the cancer. It has been almost 8 weeks since my last Radiation treatment and I still have all kind of pain and little blister like sores all through my mouth. I wonder if anyone has had this kind Of radiation treatments and how long before the mouth heals .

Comments

  • micktissue
    micktissue Member Posts: 430
    #2
    mouth sores
    Hi Dave.

    I had scc unknown primary and had 33 rads + 3x cisplatin (chemo).

    The mouth sores have FINALLY (well there's maybe one left) gone away. It has been a battle vs thrush plus blocked salivary ducts plus the effect of the treatment that contributed to the sores. I rinse with salt/baking soda, swish nystatin 3x daily, brush teeth 3x daily, and I keep swallowing. The only thing you can do beyond all that is endure. They do go away.

    My last treatment was April 1 so now I am 8.5 weeks post treatment. Throat still hurts, mucus is nasty ("thick and rubbery" said my ENT today) but in general I am trending positively.

    Best,

    Mick
  • Hondo
    Hondo Member Posts: 6,636 Member
    #3
    Hi Dave

    I am 5 years passed my last treatment and I still have a lot of pain in the neck and head at times. When it gets too bad I just take one Aleve a day and can general make it to the next day. A lot of the times the treatment does damage to the nerves I was told, might be the reason for the pain.

    On the mouth sores Mick has some good advice; I too use the baking soda everyday.

    Take care and welcome to CSN
  • dave123
    dave123 Member Posts: 10
    #4
    Hondo said:

    Hi Dave

    I am 5 years passed my last treatment and I still have a lot of pain in the neck and head at times. When it gets too bad I just take one Aleve a day and can general make it to the next day. A lot of the times the treatment does damage to the nerves I was told, might be the reason for the pain.

    On the mouth sores Mick has some good advice; I too use the baking soda everyday.

    Take care and welcome to CSN

    mouth sores
    Thanks Hondo for the info I have been using Baking Soda & salt mixture several times a day sometimes it helps and sometimes no. Its nice to have some advice from people that has been there
  • dave123
    dave123 Member Posts: 10
    #5
    micktissue said:

    mouth sores
    Hi Dave.

    I had scc unknown primary and had 33 rads + 3x cisplatin (chemo).

    The mouth sores have FINALLY (well there's maybe one left) gone away. It has been a battle vs thrush plus blocked salivary ducts plus the effect of the treatment that contributed to the sores. I rinse with salt/baking soda, swish nystatin 3x daily, brush teeth 3x daily, and I keep swallowing. The only thing you can do beyond all that is endure. They do go away.

    My last treatment was April 1 so now I am 8.5 weeks post treatment. Throat still hurts, mucus is nasty ("thick and rubbery" said my ENT today) but in general I am trending positively.

    Best,

    Mick

    mouth sores
    Hi mick
    thanks for the info
    they took the salivary glands on the left side of my face plus 45 Lymph nodes in my neck
  • rozaroo
    rozaroo Member Posts: 665
    #6
    dave123 said:

    mouth sores
    Thanks Hondo for the info I have been using Baking Soda & salt mixture several times a day sometimes it helps and sometimes no. Its nice to have some advice from people that has been there

    Hi Dave
    I am three month's post treatment for cancer of the left tonsil. I had 38 radiation treatment's + 3 cicplatin chemo. I still have a few sore's on the inside of my left cheek.
    My dentist at the cancer centre chcked them out yesterday & said they were caused by trama from the treatment & take time to disappear. I use the baking soda & salt water rinse but they are still hanging on. She said they take time to disappear.
  • goldenbetty
    goldenbetty Member Posts: 1
    edited August 2020 #7
    Possible Parotid Gland tumor

    I have Bell's Palsy on the right side.  I went today for a consult with a plastic surgeon to lift my lip.  She has give us her opinion, which is a parotid tumor due to my skin cancers on my face, and not Bell's Palsy.  I didn't see that coming.  I also have been suffering with sores in my mouth and throat.  Does this go hand in hand with parotid gland CA?  I am having an MRI this coming week of the parotid gland.  We shall see where that takes me.  Looking forward, what should I expect as the next step, and how fast to expect it?  I also have a very slight bulge where the parotid gland is located.  :(

  • wbcgaruss
    wbcgaruss Member Posts: 2,465 Member
    #8
    goldenbetty said:

    Possible Parotid Gland tumor

    I have Bell's Palsy on the right side.  I went today for a consult with a plastic surgeon to lift my lip.  She has give us her opinion, which is a parotid tumor due to my skin cancers on my face, and not Bell's Palsy.  I didn't see that coming.  I also have been suffering with sores in my mouth and throat.  Does this go hand in hand with parotid gland CA?  I am having an MRI this coming week of the parotid gland.  We shall see where that takes me.  Looking forward, what should I expect as the next step, and how fast to expect it?  I also have a very slight bulge where the parotid gland is located.  :(

    Welcome

    Welcome to the H&N forum, I am sorry you find yourself here.

     

    The thread you have responded to is 10-years old and may not illicit much response.  If you wish to get maximum exposure you should start a new thread.

     

    There are many members eager to provide help, advice, or a listening ear. I had a swelled Parotid gland due to radiation for my other cancer they were treating and it got infected and gave me a high fever and I ended up in the hospital on heavy antibiotics for several days. But I did not have cancer of the Parotid itself. I am sure there are folks with experience to help you on here. I would recommend you start a new post it may help--

    Below are instructions on how to start a new topic taken directly from the help section at the top right of the page CSN Help.

     


     

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    Take Care-God Bless-Russ

     


     


     

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