Treatments done but . . .

Getting a cancer diagnosis is like getting struck by lightning. You'll never feel as invulnerable as you did before. How could you?  What you are struggling with now mentally is going to teach you to make the most of each moment because of that threatening cloud following you around. Live your life, enjoy that reprieve, and as time passes trust that it won't occupy as much of your thoughts as it does now. It's going to take time NED to trust that you've dodged the bullet, but in the meantime it wouldd be a shame to give cancer any more of the time that it has already taken from you.

My suggestion would be to remind yourself that you just finished chemo a very short while ago, and it's very natural to still be scared of dying and shocked that this happened to you. Since you did carbo/taxol, you likely lost your hair, and that is a daily reminder of what happened to you. Chemo and radiation can be tough and frightening, yet you made it through, and that is something to be proud of!

I finished chemo in January, after being diagnosed in August with USPC (UPSC?). Althogh I was stage 1, I knew from what my doctor told me at diagnosis that it is an agressive cancer that often recurs and is often fatal, so for the first couple of months all I could think of was dying. Then I went through several months feeling more hopeful, by which I mean that I began to think about my future and make plans again at the same time that I was getting my affairs in order. 

Now, six months after my last chemo, I usually only think about dying when I come to this site. What I have learned here that may help you is that many women with agressive cancers who are stage 3 are still here and doing fine years and years after their treatment is over, while many women who were stage 1 have passed away. Knowing that may help you focus less on the survival pecentages and feel more hopeful.

Once I decided to do the chemo and radiation, all I could think of was making it through and forgetting that this happened to me.  That was naive. I have pretty serious periperhal neuropathy from the chemo, and my hair is growing back very slowly -- less than an inch 6 months post chemo -- so both of those things are daily "reminders," although I wonder if anyone who gets a serious cancer diagnosis and undergoes months of treatment ever really forgets? What I can say from my own experience and from learning from the other women who post here, is that time really does help heal the emotional wounds and cushion the fear. I am much less anxious now, at six months out than I was when I was three months out, as you are now. If you are still feeling a little weak or tired after completing chemo, that may also be affecting your frame of mind.

I hope your plans for a new career help you get through this time, and I hope every day that passes brings you closer to calm and peace of mind.

Maybe this will help? When I was first diagnosed after my hysterectomy I thought I was going to die. I checked the internet for survivor percentages and it didn't look good at all - 70 to 84% of the women with my kind of cancer and stage were dead by five years. So I sat around and waited to die. I didn't buy any new clothes or shoes or much of anything. My surgery was on September 30th, 2015. On February 7th, 2017 I was reading the paper, and there, in the obits, was my oncologist/gynecologist's PA. She was the one who had released me from the hospital after my surgery. We sat together for about two hours waiting for the doctor to come. She told me she was 39 years old, a vegetarian, ran marathons, etc. I had just seen her in December of 2016 and she was fine. She was assisting in surgery in January, was feeling sick, was diagnosed with brain cancer, and died at the beginning of February. 

I bet I read that obit at least five times - I was in shock! Right then and there I decided to LIVE. Not just exist, but really live. 

Everyone dies. To be born is to die. But we have a choice on how we spend that time. We sold our business of 30 years and retired to Florida. I have fun every day. I still think of cancer especially if some new ache or pain shows up but I live my life in honor of all the Marthas that didn't make it - all the ladies on this board who have left. They can't, but I can and I do it for them.

I like the Cheesy Queen's advice too. See a cancer counselor. They're someone safe to talk to and have other coping mechanisms.

Love,

Eldri

Yeo said:

Thank you.  I try to remember

Thank you.  I try to remember that I must always count my blessings.

I agree with you, Yeo, that it is always good to count our blessings. But I think it is also important to allow ourselves to feel our feelings, so to speak, and to own that this stinks (assuming that you feel that cancer sucks : )  ). One of my best friends is a clinical social worker, and she reminds me of that all the time. One of the things that a good therapist can do for you is to help you find the balance that is right for you. Sometimes a friend can do that, too, by being present with you as you talk about your fears and hopes and uncertainties.

For me, this gets easier with the passage of time. I got my first inkling that something was wrong last July; in many ways, it's hard for me to believe it's been a year. (In other ways, it feels like it's been a decade, of course.)

Next month it will be 21 years that I completed treatment for endometrial cancer.  I still remember the time after completing treatment as the worst psychologically.  I felt like I should have been doing something more to prevent recurrence, expecially given that I had a number of poor prognostic factors that substantially raised my risk for recurrence.  And the fact that the surgery threw me into surgical menopause which resulted in severe insomnia just added insult to injury.  With counseling, medication, exercise, support groups, and time, the situation slowly improved.  In addition to the above, my advice would be don't be too hard on yourself.  It will take as long as it takes.  Also, the coronavirus doesn't make things any easier. 

Incidentally, I have a friend who was both hit by lightning when she was a lifeguard in her 20's and received a stage 4 endometrial cancer diagnosis over 3 years ago, so I will have to ask her how she compares the two experiences.

Be well. 

Yeo said:

Hi Forherself, I am doing

Hi Forherself, I am doing better, I seem to do well for a little while, then kind of get a panic attack and have to remind myself that it serves no purpose to give into fear and that I need to just let it pass, so I am trying to accept that with this diagnosis I am going to have moments or days where fear is an issue but I know it will pass, and if it doesn't, I will get help.  Thank you for asking, the responses and suggestions from everyone really helped as I felt very alone with this issue.

I could not sleep in the same place that I recovered from surgery.  I had to move to a different bed.  That is a symptom of post traumatic stress disorder, and it can occur after receiving a life threatening medical diagnosis.  It is one of the hard parts of this diagnosis, the mental anguish.   Sometimes you need more than yourself to get over that.   Could you tell your primary care person you are having a few panic attacks?  There is also help at your American Cancer Society.  Anyway,  I hope you continue to improve your outlook.

MoeKay said:

Difficult time after completing treatment

Next month it will be 21 years that I completed treatment for endometrial cancer.  I still remember the time after completing treatment as the worst psychologically.  I felt like I should have been doing something more to prevent recurrence, expecially given that I had a number of poor prognostic factors that substantially raised my risk for recurrence.  And the fact that the surgery threw me into surgical menopause which resulted in severe insomnia just added insult to injury.  With counseling, medication, exercise, support groups, and time, the situation slowly improved.  In addition to the above, my advice would be don't be too hard on yourself.  It will take as long as it takes.  Also, the coronavirus doesn't make things any easier. 

Incidentally, I have a friend who was both hit by lightning when she was a lifeguard in her 20's and received a stage 4 endometrial cancer diagnosis over 3 years ago, so I will have to ask her how she compares the two experiences.

Be well. 

I can't tell you how amazing it is to read a sentence that includes "21 years since I completed treatment."  You are so good to stay active on this board and encourage all of us that there is such a thing as the long haul! Thank you!