How do i cope?

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Comments

  • Gail E
    Gail E Member Posts: 19
    edited May 2020 #22
    117 said:

    You mentioned at 77 I had colon cancer.  I  was NED(no evedence of Disease)

    What treatments did you do to become NED or they just removed your tumor and you had no treatments done at all?

    I"m tyring to find others with my similar diagnosis and decide what to do. 

    I went to 1stER  3/26/20 double over, ct scan showed mass as colon/liver,they sent me home with 14 day antibotic to treat an infection and told me to call a GI.So called 6 none taking new patients or closed to to COVID.3/18/20 double over again and throw up my museli from the morning, so went to 2nd ER where my nurse friend works and she called her GI doctors.3/31/20 I woke from endoscopy/colonoscopy and was told have 5.5cm tumor and looks like it metastasized,so went back under immediately and they cut out 12" of ascending colon, tumor, part of liver it touched,appendix, gallbladder,27 lymph nodes,16 with cancer in pathology report.5/12/20 will be 6 weeks since surgery.Oncologist and surgeon both wanted me to start FOLFOX chemo 5/12/20 for 6 months every 2 weeks.I put off the port to 5/19/20 and chemo to start 2-3 days after while I try to locate anyone with my same diagnosis to ask what treatments they did successfully and are living past 7 years.Stats I was given is if I do not do chemo 2 years dead.With chemo 70% make it to 5 years and 30% make it beyond 5 years and they are hoping im the 30% but they said I can not put off the chemo as the cells since they were in lymph nodes already travelled in blood stream and microscopic cancer cells can be any where.5/8/20 a ct pet scan was performed,I'm hoping the only area that lights up is the still healing surgical area and no cancer other places light up.I was told about Ty and Charlene Bollinger and watch many youtube videos then saw Dr Daryll wolfe about different options of treatment.

    Now I'm all confused

    Thank you!

    Same

    My diagnosin 2014 was similar to yours. Read about me for details. I'm not NED, but I was for a while. The fight is worth it! Ask me anything.

  • Gail E
    Gail E Member Posts: 19
    edited May 2020 #23
    Good outcome

    In my experience, good outcome usually means that you would respond well to treatment.

  • Cindit
    Cindit Member Posts: 7
    117 said:

    Name of CD for chemo please...

    Hi Tru

    Do you have the exact name for this CD please. Thank you, I'm scheduled to start chemo May 21 still looking at holistic ways if its possible with stage 4 colon/liver/lymph nodes.

    I'd like to use it :-)

    117

     

    advice to get through chemo

    hi! 

    I see you're into holistic....me too. During treatment i did the following: used ginger aromatherapy inhaler before and during for nausea. If i got nausea at any other time between treatments, i used inhaler and at times put peppermint essential oil on my stomach.  I sucked on ice during the 2 hour infusion to help with the taste after effects, metal or lack of taste, used ice packs on hands and feet for neuropathy and cold sensitivity. All of these worked wonders. I also started zinc supplements for the taste side effects. Many, in fact most of the nurses, who provided the treatment never knew of any of this. They know about cold caps for the hair (i didn't use and my hair has thinned but not enough to need a wig) but they had not heard of the sucking on ice or zinc. Some knew of the other ice therapy. I initially researched the ice therapy because i thought if it worked on the head for hair loss and nerve endings, it should be useful on other parts of the body and it was. Good luck to you! 

  • Capox Dude
    Capox Dude Member Posts: 127 Member
    raybees

    I very early on decided that stats do not apply to me.  I mean, they APPLY, but not in the sense that it determines my fate.    Whatever percentages they put out, there are always folks on the good side of the percentage.  And that will be me.   And if I'm wrong, I'll be arguing with Gabriel to send me back because they got it wrong.   Oncology nurses always say the patients with the greater chance of living are the ones with good attitudes and a will to live.   So - pick a side.  Like the line in Cast Away  "I know what I have to do now, I’ve got to keep breathing because tomorrow the sun will rise. Who knows what the tide could bring?"     So keep on with life, because you never know when some great drug or immunotherpay - or cure - will suddenly appear.  I think of my life with cancer as a can I am kicking down the road, with good things awaiting with the passage of time.   Welcome.  The smart, wonderful regulars here gave me great advice and inspiration when I got diagnosed.      Share your thoughts with them and these amazing people will help your thorugh this.