Besides doing chemo and/or radiation...

for all the feedback to all. 

Ive been taking a lot of these supplements during this first recurrence, but had to back a bit away as my belly though, OH MY GOD WHAT ARE YOU DOING TO ME I threw up. I guess I took too much So now I’m introducing a few more every week.

I still have 2 more chemos to do (doxil and carboplatin) and my CA125 is now 35, coming down from 180. I’m thinking. What I do is working (right now anyways) We need to celebrate every big and small victory

Tamlen said:

Don't take curcumin during chemo without onc's approval

Flufff, are you taking curcumin during chemo? If so, please stop unless it's been approved by your oncologist. Curcumin is known to counteract some of chemo's desired effects. The pharmacist at my major cancer center flagged that for me when I stared there and told me not to take it during chemo under any circumstances. Sloan Kettering in NY also recommends against taking it during chemo, and has info about why (read the section "Do Not Take If") on their well-respected supplement site. The chemo I had, taxol and carboplatin was metabolized by one of the listed enzymes. 

https://www.mskcc.org/cancer-care/integrative-medicine/herbs/turmeric

Does that also include the real deal? I juice and I use fresh curcumin it it as well?

thanks for the heads up  

once you are done with chemo, then what?

I’ve read a lot online. Currently I’m trying to block cancer pathways. But once hopefully the cancer is gone, what should our strategy be then?

I’m on my first recurrence and I would loooove for it to be the last!!! ;-)

MAbound said:

What's next?

First of all...try to do something that makes you feel good each day. Enjoying what you have fought so hard for is the most important!

Second, it will be very hard, but try to forget about recurrence to whatever extent you can until you absolutely have to think about it next, like when a test or check-up looms large. It's always going to be an ever present cloud in you sunny day, but don't let the beast steal anymore of your time than it already has if you can. Not easy, I know, but you are entitled to just live your life between those check-ups. 

Third, keep up the good habits and practices you already have like continuing to drink a lot of water and getting excericise to maintain or regain any stamina that you've lost. I know you won't have any trouble with that because you enjoy it. Those supplements you needed to avoid during treatment, like antioxidants and anticancer supplements, are ok now.

Good luck learning to live your new normal. It can feel a bit like being cast adrift for awhile, but keep telling yourself that you've earned some time to feel normal again. Long may you dance with NED!

 

 

Thank you

I know that it will be difficult. Having had a reccurance already. But I will surely try. First though, I have to hear the word, NED.. Still have one chemo left....

cancer really sucks!!