What do bone mets feel like?

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Comments

  • twinthings
    twinthings Member Posts: 409
    #22
    NanoSecond said:

    Try this

    Consider a breakfast of eggs and (nitrate-free) bacon.  Seriously.  No bread though.  It's the grains and cereals that put on the pounds.

    Oh good grief!

    You mean, after I finally learn to like whole wheat whole grain bread vs the enriched white bread I've so dearly loved all my life, now you say no bread...period.  Seems harsh, Neil Yell

    Here I thought I was doing so good!  How's a person to eat a sandwich without bread?  I've been on a tuna-salad or egg-salad sandwich kick, for a while now.  aye aye aye!!

    Just this week, I switched to 2% milk.  Neil, I've never been a milk drinker...EVER.  Since giving up sweets, I'm craving milk.  It's the damndest thing.  I'm drinking it at least twice a day, for the past month now.  Whole milk!  After weighing at Dr office and seeing that I've gained 12 lbs, I immediately stopped at Braum's and bought 2%.  I can't tell one bit of difference.  Wish I'd started with it a month ago.  Hubby is a milk lover and couldn't tell difference either.

    I am beginning to think I am one odd duck!

     

  • twinthings
    twinthings Member Posts: 409
    #23
    Karen0074 said:

    It could be a vitamin D

    It could be a vitamin D deficiency, this is what sent me to my dr with left rib pain. A simple blood test could diagnose this or try taking vitamin d3 daily to see if it improves. As Fox and others have said bone mets are vv painful so if it's a bearable pain it can be fixed. I have googled vitamin D deficiency and it does seem to have a link to rcc.

     

    Karen x

     

    Karen, not long before my RCC

    Karen, not long before my RCC diagnosis,  lab work indicated I have a B-12 deficiency, so much so that Dr wanted me to give myself injections once a week for 2 months, then bi-weekly for 2 months.  After doing so, my numbers looked better on paper but it didn't make me feel any better, so I stopped.  I am also anemic, but not too bad, she recommended an iron vitamin.  I don't do that either.  Same with calcium.  I don't remember about vit D, so, it must not have been an issue.  Good to know tho!

    I'm not too hip on taking anything, more so now that I only have one kidney.  If it's a medicine I need, I will take it but, not so much with vitamins.

  • twinthings
    twinthings Member Posts: 409
    #24
    soul-mate said:

    Mets Pain

    Annie, I posted to say pain was not an issue till the break but the palliative care that she has now controls pain and chemo is to slow the cancer from progressing. The hydromorphone contin slow release twice a day and 1 or 2 2mg hydromorphone breakthrough makes her day painless and does not impair her thinking or limited mobility . Quality of life is the most important thing to make it through this journey and we enjoy one day at a time. Mets can be lytic or blastic and everyone is different. I wish everyone the best on their journey.

    SOUL-mate

    soul-mate, thanks so much for

    soul-mate, thanks so much for the good info! 

    Sounds like your wife has had a pretty rough road.  I'm glad to hear her pain is well managed, thankfully.  I don't know how you caretakers do it, honestly.  I pray I never find out.  Other than feeling like a huge financial burden, racking up all the medical bills, I would rather be where I am than where you are.  Watching someone you love, suffer has to be the hardest thing a person can go thru. 

    I have never heard either of those words, lytic or blastic, but will google them and see what I learn.  And, I will mention the rib pain to my doc, if only for peace of mind...Thank you!

    I wish you and your wife the best!

  • a_oaklee
    a_oaklee Member Posts: 566 Member
    #25
    soul-mate said:

    Mets Pain

    Annie, I posted to say pain was not an issue till the break but the palliative care that she has now controls pain and chemo is to slow the cancer from progressing. The hydromorphone contin slow release twice a day and 1 or 2 2mg hydromorphone breakthrough makes her day painless and does not impair her thinking or limited mobility . Quality of life is the most important thing to make it through this journey and we enjoy one day at a time. Mets can be lytic or blastic and everyone is different. I wish everyone the best on their journey.

    SOUL-mate

    thankyou

    Soul-mate:  Thanks for the explanation.  My husband takes the same drugs that your wife is on.  He currently doesn't need the break-through one, because the time-release ones work really well.  Almost all of his pain is in his back where he had a vertebrae completely removed and 9 vertebrae had plates and screws put in.  That surgery was 2 years ago.  I truly hope that your wife continues to do well. 

    Have you encountered some pharmacy staff acting very strange and making inappropriate comments when you buy those drugs?  We have repeatedly.  It makes me annoyed.  My husband is obviously ill, and we certainly don't look like drug dealers. 

  • NanoSecond
    NanoSecond Member Posts: 653
    #26
    twinthings said:

    Oh good grief!

    You mean, after I finally learn to like whole wheat whole grain bread vs the enriched white bread I've so dearly loved all my life, now you say no bread...period.  Seems harsh, Neil Yell

    Here I thought I was doing so good!  How's a person to eat a sandwich without bread?  I've been on a tuna-salad or egg-salad sandwich kick, for a while now.  aye aye aye!!

    Just this week, I switched to 2% milk.  Neil, I've never been a milk drinker...EVER.  Since giving up sweets, I'm craving milk.  It's the damndest thing.  I'm drinking it at least twice a day, for the past month now.  Whole milk!  After weighing at Dr office and seeing that I've gained 12 lbs, I immediately stopped at Braum's and bought 2%.  I can't tell one bit of difference.  Wish I'd started with it a month ago.  Hubby is a milk lover and couldn't tell difference either.

    I am beginning to think I am one odd duck!

     

    Twinthings.  Eating fat does

    Twinthings.  Eating fat does NOT make you fat.  Eating carbohydrates makes you fat.  And eating carbohydrates with fat makes you even fatter.

    I realize it is difficult to give up on habits we all have followed for decades. Regardless, consuming whole grains is a relatively "new" invention in mankind's diet (it is only about 10,000 years old).  As such many of us do not have all of the enzymes necessary to deal with digesting them fully.  For some that can mean Celiac Disease.  For others, a Gluten intolerance.  But for the vast majority - just an overall drag on their systems.

    Initially I found it "challenging" to find substitues for those slices of bread in sandwiches, etc.  But there are some clever alternatives that can allow you to enjoy a sandwich without any wheat products.

    Finally, I didn't make up these "rules".  I only try to explain how and why they might work.  And they do work for thousands and thousands of people.

     

  • soul-mate
    soul-mate Member Posts: 82
    #27
    a_oaklee said:

    thankyou

    Soul-mate:  Thanks for the explanation.  My husband takes the same drugs that your wife is on.  He currently doesn't need the break-through one, because the time-release ones work really well.  Almost all of his pain is in his back where he had a vertebrae completely removed and 9 vertebrae had plates and screws put in.  That surgery was 2 years ago.  I truly hope that your wife continues to do well. 

    Have you encountered some pharmacy staff acting very strange and making inappropriate comments when you buy those drugs?  We have repeatedly.  It makes me annoyed.  My husband is obviously ill, and we certainly don't look like drug dealers. 

    Hydromorh Look?

    Annie, To the look's I can't say they react to the prescription order, but that may be part of proper etiquette. Where we are located all prescriptions are on central database and monitored so abuse is controlled. A written prescription is required for hm. and can't be called ln like other drugs. If you don't fill the prescription within 3 days it has to be prescribed again. This drug is our friend to enjoy life for what our new normal is. Best Wishes to all !!

    SOUL-MATE

  • Faith33
    Faith33 Member Posts: 1
    edited January 2020 #28
    twinthings said:

    Cold turkey, Neil

    Good to know, Neil.  If it's still bugging me in another 6 months or so, I'll mention it to doc. 

    I know I told you before that I've cut back on sugar, but, I don't think I've told you, as of today, I am 25 days clean.  Well, mostly.  I have not had so much as a bite, lick or taste of any kind of dessert, icecream, cookie, cake, brownie...nothing...other than the sugar I get from what's hidden in the food I eat.  I went cold turkey!!  I'm so proud of me!

     

    cold turkey

    I'm impressed, Faith!  I'm 51 and one year post chemo for stage 3 colon cancer, so I feel it's especially important to get away from sugar.  Are you still avoiding it?  I see this post is a few years old. 

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