Advice for a New Caregiver

My mom was admitted into the ER on her birthday for pneumonia. Three ER visits and two lung drainage later, it turns out it wasn't pneumonia. Yes, cancer sucks but living in the unknown was so much worst. She took to treatment well which I am extremely thankful for, the only issue was her stress level. I know finances has been on her mind. We live OK, but we’ve recently bought a home and she thinks we’re in a pickle. I think we can deal with the aftermath later, I would rather lose the house than lose her. If there any grants or financial help/loan I can seek, send the information my way. Any small aid might help ease her mind (and she would probably be soooo mad at me for selling the house). She has probably watched all of what Netflix has to offer and she’s not big on arts & crafts (I suggested painting and she laughed at me). She does enjoy reading but she’s ESL so any book recommendation would be helpful too. She’s been having food aversions so any recipes will be extremely helpful too. Major plus if I can cook it in an InstantPot. 

Comments

  • po18guy
    po18guy Member Posts: 1,505 Member
    A lot on your plate!

    As to finanaces, check with the hospital, the drug manufacturers, municipal/county/state/federal agencies for assistance. She may very well qualify for social security disability - even in the short term. There is also SSI and other resources. Your ear will be tired, but something will come of it. What about insurance? Does she not have any?

    As I see it, far better to lose one's possessions than to lose one's life. Mortgage companies are used tobeing someewjhat flexible under medical emergencies, so give them a call.

    As to recipes, it all depends, not on what she likes, but what now appeals to her and what she can keep down. Big difference. Go to allrecipes.com of recipes.com and browse around a little bit.

    A lot of work for you, but it will pay off.  

  • ShadyGuy
    ShadyGuy Member Posts: 922 Member
    flexibility

    Some mortgage companies may be flexible but be aware that just inquiring about loan relief can lower your credit score. You did not say what kind of cancer your Mom has. It would take several lifetimes doing nothing else to watch all 81,000 offerings on Netflix. Here is hoping recovery will be very fast. Your Mom is very fortunate to have you caring for her.

  • Evarista
    Evarista Member Posts: 336 Member
    A few suggestions

    Nothing to offer on the financial front, sorry.  But for your other questions, a few suggestions:

    1) I, too, found the notion of painting (and coloring books) a bit silly. But then someone brought me some jigsaw puzzles and I found those so much more engaging.  They also had a couple of added benefits: a) physical activity, which is SO important. To work on a puzzle, I had to stand up, sit down, stand up, move around the table, sit down. Repeat.  Got me off the couching and moving.  b) they can serve equally well as a social activity with adults or children.

    2) If she likes to read, your local public library is the first resource to make use of.  Free and may offer books in her first language. If they don't have them, they may be able to bring them in from an external source.  Audio books are another option.  Find free ones at https://librivox.org  I found audio-anything a huge relief as I was often too tired to focus on reading. If finances permit, an Audible.com subscription might be a nice gift, assuming she has a suitable device for using this servce.

    3) Food: you may find that this is a moving target. I lived on Lean Cuisines for many months and ate things that I have never eaten before or since.  My husband would bring home a few at a time and I finally found a couple that were palatable. Not the least expensive food plan, but I was eating so little, these at least let me keep up my protein intake.  Bland was a general theme. Other foods that worked for me: canned peaches (no added sugar) with cottage cheese, cream cheese, mild cheese, avocados, Eggo waffles, ice cream. You may have to adjust depending on other issues that may arise; sore mouth, for example, means avoid salty things.

    Wishing you the easiest possible course going forward.

  • lindary
    lindary Member Posts: 711 Member
    other suggestions

    Food - others I know who had gone through cancer treaatment. Several of them said that if they didn't feel like eating they would have french fries. Didn't work for me. I gagged on french fries and most forms of potatoes. My go to food ended up being mac & cheese. 

    Financial - If your oncologist office has a financial dept check with them if there is any way they can get you a break on the costs. I was getting R-Chop and the group that I was with said there was something like a coupon they filed to get a lower price for the drug. I have a great insurance but hey, if we can save them/us a few bucks why not. If not your oncologist maybe the hospital can help.

  • ShadyGuy
    ShadyGuy Member Posts: 922 Member
    language issues

    Communicating with medical staff can be a serious issue. I have hearing impairment. That plus many of my medical contacts are ESL and very difficult for me to understand. This situation can be very dangerous. Many years ago I was hospitalized briefly in Africa after an accident. No English that I could understand! That experience was very frightening - more so than the actual accident. I was scared. I came out of that hospital with dysentary. For your Mom I would recommend staying with her when any medical decisions are being made. Also there are some really good translation programs for iPhones. My job required me to travel to many different locations so I was sent to an ESL course to learn to communicate effectively with people who are not native English speakers. With fewer than 200 words you can learn to say most anything. I am sure a reverse of that course is available online. Watch over your Mom carefully and don't agree to any procedures you do not fully understand. I am sure she will be fine. Best of luck to you!