Big Talk On New Years Day Coming

I truly hope when the end comes for me that I am able to remain in my own home with hospice.

Don't hope, believe.  There is absolutley nothing wrong with believing, even if there is a chance of it not happening. Don't even use the word hope again. 'I will - I am going to - My belief is -'   Find something that works for you, and use it. 

It is the same with your trip to Ireland. No ifs ands and buts, but 'when, and I  am'. 

Plan something on New Years Day. Something beofre your appointment if possible, or after if not.   Maybe not food after. I remember too easily being told the Cancer had spread to my liver. We went out to eat afterwards - becasue we live three hours away from home and Icouldn't just go home -  I literally chocked on the first bite of food, and the waiter rushed over.   Anyway, don't let your New Years Day be dominated by 'the talk'. 

And finally - OK, you know there is never a finally with me.Yak, yak, yak and all that - You have done allot of studying, I won't say too much, but allot. I would suggest no more. You've got the stats, the stories, the information, now just walk away from the computer and live your life, be-it two weeks two years, twenty two years. You can read yourself silly, and still not get anywhere. 

Phew! I'm done. Take it or leave it. I don't need to tell you that we all deal with this differently. 

I will also be hiking this morning. Look, here is a beautiful picture I took up my canyon. There is beauty all around, today and everyday is the time to observe, and let the cards fall as they may - with some help. 

Happy hiking. 

i have been thinking about you a lot Ms Mojogirl. Have you thought about having some counselling? You must have so much stuff going round and round in your head so it might be helpful to talk to a professional because the last thing you need at the moment is to make a wrong decision. Good luck for new years day & take care of yourself. 

It is another one who does surgeries fir what you have and Russia has some sort if HIPEC for lungs. They also will need a CT scan. Are you willing to travel to either Germany or Russia for a surgery? Is your US insurance domestic or worldwide? Are you comfirtable beino there fir a few weeks? 

mojogirl67 said:

Thanks Butt

I have seven nodules..one is 22mm and one is encapsulated with the rest being scattered thru both lungs. No biopsies, no more PET scans, no more chemo, and no more surgeries. The risk of sugery is great on its own but to travel abroad  is a whole other ballgame. I have truly made peace with what is and will come to be. I intend to enjoy the days I have living my life until I no longer can. I respect what anyone chooses to do to fight this disease and try to survive it. It is an individual decision and not an easy one to have to make. I know you have fought hard and searched for answers and treatment. I wish you peace and hope you find some open doors for your own treament....hugs, M

What does it mean that a tumor is encapsulated?

I'm confident you still have many good years ahead. I've always known that I have the same number of lesions/nodules since I was diagnosed in 2015. But I only recently learned how many there are. I have 23 in my right lung, and 14 in my left. In my August scan, the largest one was 30mm or 3cm. That sounds huge, but <<knock on wood>> I'm still not having symptoms. Yes, I have been on intermittent chemo all along, but I was totally off chemo for 2 full years from 2016-2018 with no new lesions. I know everyone is different, and every incidence of cancer is different. And maybe I've just been blessed. The doctors always said that my age and not having any other health conditions are very important factors. But I believe you will be every bit as fortunate as I have been. 

Bellesouth said:

You've got this, Mojogirl!

I'm confident you still have many good years ahead. I've always known that I have the same number of lesions/nodules since I was diagnosed in 2015. But I only recently learned how many there are. I have 23 in my right lung, and 14 in my left. In my August scan, the largest one was 30mm or 3cm. That sounds huge, but <<knock on wood>> I'm still not having symptoms. Yes, I have been on intermittent chemo all along, but I was totally off chemo for 2 full years from 2016-2018 with no new lesions. I know everyone is different, and every incidence of cancer is different. And maybe I've just been blessed. The doctors always said that my age and not having any other health conditions are very important factors. But I believe you will be every bit as fortunate as I have been. 

I am so happy you posted this, Bellesouth.  What a motivation for all to see how well you are doing. 

Tru

Trubrit said:

Wonderful!

I am so happy you posted this, Bellesouth.  What a motivation for all to see how well you are doing. 

Tru

Thank you, Tru. I'm just trying to be supportive and encouraging to Mojogirl. Well, to everyone of course but in response to Mojogirl's OP

feckcancer said:

when you have cancer the new

when you have cancer the new rules are there are no rules. you can do whatever you want & feck anyone that tells you different. restoftheworld rules don't count anymore.

try adding Tumeric (500-1000 milligrams a day) , fishoil , vit B supplements, maca & medical mj, hemp seed oil,limited or no red meat , pineapple, kombucha,  probiotics, massages,  counselling to the acupunture & chinese herbs & exercise (check all with your doctor first). all are either 'anti cancer', anti inflammatory (very important with cancer) and contribute to good gut health plus 90% of your happy hormone are made in your gut not your brain so they will help with mental health .

i am sure there are more things that should be added to that list and i hope others will contribute to it 

massage helps?

mojogirl67 said:

You Are An Inspiration

I am a Southern girl myself and you make me proud to be so. I intend to live and enjoy everything that calls my name (within reason, lol). I have just made a decision not to do the chemo. I have always liked the healthy stuff anyway. My kids say I have always liked rabbit food and "weird" stuff, lol. I just finished the thickest ooiest gooiest grilled cheese ever and my secret to the crisp and the taste was good ole' Dukes mayonaise. I went by a new bakery in town today and had two of their specialty cookies as well. Earlier today I did juice which was something I did before I found out I had the cancer. I have always been a believer in the natural supplements and still do those as well as some acupuncture and Chinese herbs. So, I am finding MY balance in all of it. For me to put a port back in my chest and do chemo again would kill the spirit in me. While it MIGHT nock down the lung nodules, it would without a doubt crush my spirit and soul. It soooo much goes against the grain of what I believe in. I have respect for each of you here and what you have to do to "live" your life. This just happens to be the way I have to live mine that will give me the peace I need of mind, spirit and body. I can't begin to express how grateful I am for all of the encouragement and suggestions coming my way. You guys on this board ROCK!! I haven't "given up". I am just choosing to fight this on my own terms which I know is not the accepted "norm" for most. I continue to live a blessed and beautiful life every day I take a breath even with these damn nodules in my lungs..lol  It was beautiful in my neck of the woods today and I actually got to take a walk in them today. Truly hoping each of you found something beautiful in your own neck of the woods....Huge hug to all of you rock stars!!

when you have cancer the new rules are there are no rules. you can do whatever you want & feck anyone that tells you different. restoftheworld rules don't count anymore.

try adding Tumeric (500-1000 milligrams a day) , fishoil , vit B supplements, maca & medical mj, hemp seed oil,limited or no red meat , pineapple, kombucha,  probiotics, massages,  counselling to the acupunture & chinese herbs & exercise (check all with your doctor first). all are either 'anti cancer', anti inflammatory (very important with cancer) and contribute to good gut health plus 90% of your happy hormone are made in your gut not your brain so they will help with mental health .

i am sure there are more things that should be added to that list and i hope others will contribute to it 

zx10guy said:

It's been shown in general

It's been shown in general stress is not good for overall/general health.  I've seen some studies where high levels of stress has had an adverse affect on one's immune system.  And it's a known where one's immune system is key in keeping cancer/cell mutations in check.  Hence all the effort/research in immunotherapy.

oh that makes sense especially when it comes to cancers that can be caused by the HPV virus. it seems like a lot of people with gut type cancers have also had/have a history of depression/mental health issues and or high levels of stress and i always thought there was a link but didn't know if the mental health issues caused the cancer or did the cancer caused the mental health issues then went to a maca & medical mj seminar a few months ago and learnt about the 90% of happy hormones being made in your gut so if this is correct if you have depression it could be caused by bad gut health which left untreated could then go to cancer maybe??? ~ learning all the time. Thank you for your post