Kidney Cancer - possible nodules in lungs.

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  • annie4145
    annie4145 Member Posts: 218 Member
    #22
    Dinaken said:

    Prognosis

    Met the oncologist today, and was asked for PET scan, and one of the oncologist said prognosis will be less than year. We are completely devastated hearing this, main Dean doctor said don't lose hope, drug could work differently for everyone. As if now he had only lung nodules, I don't understand why he gave such prognosis. 

    Please don't lose hope or

    Please don't lose hope or accept a comment that was totally inappropriate and shouldn't have been made.  I will tell you a story.  It is not a cancer story, but it shows how wrong doctors can sometimes be. 

    My child was extremely delayed in speaking when he was young.  He was eventually diagnosed with apraxia at 3-1/2.   At age 2, he was tested by a pediatric neurologist at Lucile Packard Children's Hospital (stanford) who performed an MRI.  We were told that there might be an issue with his myelin in his brain and that he probably would never speak normally.  ("He won't be doing a job that requires speaking for a living."   Well fast forward 11 years, we have a normal speaking teenager who wants to be a lawyer.   The doctor made a pronouncement that left us devestated at the time and turned out to be totally wrong.  Good luck proving your doctor wrong!! 

  • annie4145
    annie4145 Member Posts: 218 Member
    #23
    Dinaken said:

    Shifting to another medical institute

    Thanks for the reply. The hospital we are seeing is a medium multi-speciality hospital. Only few oncologist are there and not anyone specialized in RCC related. We have made the decision to switch to a bigger medical institute which is 5 hours drive, from our place. I somehow convinced my father to go there and start the initial treatment. We are waiting for the appointment, hopefully we will get soon. Yes, regrading the prognosis, I have seen lot of stage 4 survivors on smartpatients.com and Facebook group, which is really a positive one and gives hopes for us. Somehow my father figured out something has to be done quickly, he is not aware of the stage 4 and prognosis yet. My biggest challenge is embracing all of these, and moving forward. Praying and keeping hope with the upcoming treatment. 

    If you need any help,

    If you need any help, American Cancer Society can sometimes help arrange reduced cost hotel stays, or perhaps there is some residences associated with the hospital.  (USCF has a hotel for patients from out of town.). 

  • lobbyist0724
    lobbyist0724 Member Posts: 515 Member
    #24
    Hi Dinaken, don't lose hope

    Hi Dinaken, don't lose hope at all. Prognosis given is just statistics based on a large population, but to a single patient, it is simple a yes or no. Take a look at the study below, where albation and systematic treatment being used together and the 5 yrs Overall survival is over 60%!! 

    Also, there are numerous cases in this forum who beat the prognosis given, a well k own legend here is Fox, whow were given similar prognosis as your dad but lived over 7 years! Best wishes!

    https://www.urotoday.com/recent-abstracts/urologic-oncology/renal-cancer/117840-renal-cell-carcinoma-lung-metastases-treated-by-radiofrequency-ablation-integrated-with-systemic-treatments-over-10-years-of-experience.html

  • Dinaken
    Dinaken Member Posts: 10
    #25
    annie4145 said:

    Please don't lose hope or

    Please don't lose hope or accept a comment that was totally inappropriate and shouldn't have been made.  I will tell you a story.  It is not a cancer story, but it shows how wrong doctors can sometimes be. 

    My child was extremely delayed in speaking when he was young.  He was eventually diagnosed with apraxia at 3-1/2.   At age 2, he was tested by a pediatric neurologist at Lucile Packard Children's Hospital (stanford) who performed an MRI.  We were told that there might be an issue with his myelin in his brain and that he probably would never speak normally.  ("He won't be doing a job that requires speaking for a living."   Well fast forward 11 years, we have a normal speaking teenager who wants to be a lawyer.   The doctor made a pronouncement that left us devestated at the time and turned out to be totally wrong.  Good luck proving your doctor wrong!! 

    Thank you for the kind words

    Hello Annie,

    Thanks a lot for the positive words and giving lot of hope. I'm still in the process of embracing it and moving further. Our family is working on it. Im coming across wonderful persons like you from this forum, which really making a difference to me personally and I'm grateful for that. Between it's really inspiring and glad to hear about your son doing well, despite the doctors words. I wish you and your family a happy Christmas and happy new year.

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