Introductions are in order...

AnneO1965 said:

That's a big NOPE

Thanks everyone!

 

Suzy, in regards to your question, I would have said NO.  Chemo really wasn't too bad for me, but I don't want to do it again. Hopefully I will stay cancer free and not have to.

 

Finally got the staples out of my bottom yesterday. Ahhhhh  what bliss....

 

Hope everyone has a fantastic day!

I'm late to the thread, but welcome to this place, I 'm glad you're NED after all that stuff. It's nice that your surgeon feels certain about things, mine never offered such positivity. We've gone through some similar experiences, though I avoided the bag, and had two recurrences that required liver resections. I hope it's all good news from here on out on your health, and you can make something good out of the place where fate/life has left you, counting time the way many of us do while trying to have a meaningful existence. Stay strong..........................Dave

and know that you are healing.  

Twice I had a wound that would not heal, and thus, feel your pain. 

Lots of healthy food and water. Exercise - walking is the best, post surgery - post anything. And your every present good attitude. It all helps. 

Best wishes. 

Tru

AnneO1965 said:

Here we go....

Well, my first MRI post surgery has been scheduled... It will be on Oct. 25... Then I see the oncologist on Nov. 1...  I'm nervous, scared and resigned... The what if's are driving me crazy. 

On a side note, did anyone have a whole lot of back pain caused by their cancer? My back is killing me, and I can't figure out why. I'm going to talk to the doc about it when I go, but I'm not sure if it's cancer related.

Yes, back and joint pain a-plenty, which I attribute to the chemo.  It is a known side effect of capecitabine, although the doctors claim to have never heard of it.  There are several old threads on this subject.

Trubrit said:

Every little and big pain is .....

Cancer.  Well, thats what your head will tell you. 

I remember once, my big toe hurt like crazy and for no good reason. I was sure I had cancer in my toe. I know, it sounds silly, but when you have Cancer, then everything you feel is scary. 

Right now I am in the middle of a huge vertigo episdoe - 23 days.  I was doing well in my head, knowing it was vertigo, but as the days pass, I keep getting this niggling thought 'what if its Cacner this time?'  I don't think there is a way to ever get past that fear. 

Saying that, you are right to be concerned.  Definitely tell you Oncologist. He may just still wait to see what your MRI shows. We will pray that it is just 'old age' or chemo related. 

You are on my calendar, and I wish you all the best. 

Tru

I have that, and have had vertigo up to 4 weeks.  It's signs include unilateral (usually) hearing loss (usually of low frequencies), feeling of fullness in the ears, tinnitus, random vertigo.  Signs need not occur concurrently.

There is also an Epley maneuver that can sometimes stop vertigo if it is benign positional vertigo.  If you haven't seen a dr, please do so.  It also could be an acoustic neuroma (benign) but they'd have to scan for that.  My dr did.  I'm currently on high dose prednisone for a meniere's related issue (sudden severe hearing loss in one ear.)

PM me if you'd like.

Alice

AnneO1965 said:

This just in....

Just got home from seeing the oncologist for my scan results...  I am officially in remission!!! Bloodwork came back great, and my scans came back NED!!!!  I'm doing a happy dance. I'm going to wear that survivor label with pride now, I feel I've earned it.

so happy for you!

Good Luck-May you be NED forevermore!!!

I think this deserves our little Happy Dancing Man.

May NED be your constant companion. 

Tru

Thats terrific! Now enjoy the rest of your life! May you be NED forever!

k

That is awesome news on both accounts, NED and the port removal.  Enjoy that news and you go do that happy dance - you deserve it.

Kim