Screw radiation

You are having a hard time because you choose to do so

Steve1961 said:

Just a sad sack right now

i am still upset with myself for making this poor decision .i have a neurological disorder as well which has left me with severe muscle atrophy in my calves ..I also seem to have carpal tunnel in my left hand severe now . I have urinary issues bowel issues ...it stinks ..I have a physically demanding job and it’s getting to me bad ...I also Am depressed and have anxiety over all this ..I just know if I would have done surgery everything would have been better ..I feel like a coward ..hopefully the good Lord will help me find peace of mind .i said how I feel about radiation now ..I am going to try hard to not post anymore..I just hope that all the members that are giving advice to newbies that they will never tell them to consider radiation as a first treatment ..personally as wonderful as all of you are ..I wish I never joined this forum ...just listened to the first radiologist I saw and the first surgeon I saw. They both recommended surgery ..I should hsve just verified their reasons why on the internet .i would have seen they were being truthful ...I would have been much better off ..sometimes knowing too much isn’t good ..I also learned not to tell a lot of people they all have their opinions a lot of them not do good ....thanks for the support I’m just whining now t so I am out 

Steve,

I am not trying to get against you and your disappointment related to your treatment choice. 

I had RP and now, new problem was discovered a week ago when I had my 2nd colonoscopy in les then 3 years After RP.

it was discovreed devascularized area ( area with very minimal blood flow) in my ascending colon at the same hight where one of the robotic ports was during RP  with heavy scaring and adhesions in that place on my right side Which is trying to choke my ascending colon. GI doc took samples and sent to pathology. He thinks I will need surgical intervention to correct this issue, possibly soon.

As you can see; you got rotten apple with radiation and I got mine with RP.

Bad things are bad things with no mater how you landed on them.

MK

I'm new to the boards and am glad you are sharing your experience.  Cancer sucks and treatment does too. I still have time (before my surgery) to do nothing but wait and watch. I could even just let it run its course and if it gets me in 15 years or longer so be it. I could say, yep, had a good 15 years living normal (minus the worrying) with cancer but at 65 or 70 bam die from metastitic disease.  Everything is a risk and a choice and no matter the choice, it changes our lives and our families lives. From your posts, your convinced radiation wrecked your life. It certainly changed it and I would be angry, sad, frustrated, and regretful as well. Vent as much as you need on here, we will listen and hopefully offer some support. Maybe map out a plan on paper with milestones you can meet towards what you would consider an acceptable life with the ailments you are experiencing. We all suffer and respond differently but YOU can take control of your spiritual and mental health which will affect your physical health.  The cancer and radiation may have negatively affected your physical health but you can recover to some point only you find acceptable. Wishin you the best man.  Sorry for your struggles and grateful for you sharing your experience.

Steve1961 said:

Totally disagree

 You guys are wrong. There is 180,000 men a year diagnosed with prostrate cancer 130,000 of tham  70% Will have surgery. I seriously doubt they all have bad experiences. It seems like only the people on this form of bad experiences. There should be a separate room for venting bad scenarios  everyone  should be positive.... people do not need to hear about terrible gas pains and accidental bowel cuts and penis bleeding and Urgnkidfing me  saying that I could die on the operating table   And this and that and this and that and this and that.that happened from surgery ..... i I have met quite a few  men that have had absolutely no problems After surgery and they remain cancer free for many years 10 1215 years and they all had surgery surgery is the way to go and what usually happens is some minor gas pains hospital overnight catheter for a week maybe some leaking ED  most of the time you are cancer free after five weeks and they go on to remain cancer free that is the NORM .. there’s nothing anyone can say doctors screwed me in this forum didn’t help me much I wish to God I stayed off of it. Radiation as primary treatment can screw you up permanently Waymore than surgery my God I wish I would’ve bled out penis head for a couple days I wish I would’ve just had painful  gas for a little while that all went away the things that I have wrong with me never will go away ...it’s criminal ...GEORGE YOU NEED TO STOP With all your horror stories ..not  everyone has terrible gas pains that everyone bLeeds at their penis not everyone lleaks terribly you need to tell New people THE NORM PERIOD ..LIKE lighter wood ...he thinks he is lucky .yes you are but only because he compares himself to this forum ..lighterwood is whatUSUALLY HAPPENS TO MEN  THAT HAVE  SURGERY AND CAUGHT IT EARLY ... I met a guy after two weeks on this form same ages as me same diagnosis as me everything same family wife you name it he did the surgery and breeze through it no side effects at all and he still cancer free I wish I would’ve just talk to him only stayed away from this forum  like he has done but I didnot it I’m gonna try hard to stay away .. what other cancer is there that you can actually leave in your body and be cured what the hell breast cancer is in an Organ  your breast why can’t they just do radiation for that and breakytherapy  for that instead of cutting it out but they always cut it out of thebladder and kidneys but no prostrate cancer you have options and all the options are freaking bad options only time you should have options if you’re over 70 and you’re in poor health otherwise no options take it out period .........

this may sound selfish Can a moderator please block me posting I need to get on with my life and right now I am stuck and this forum is not helping me at all sorry but thanks      Also I will be honest I private message almost every newcomer and I warned them about this form and some of the people on here and I always advise them to do the surgery and to stay away from this form hopefully this will get me blocked 

Steve, 

You insulted every single RP surgery patient with your post, especially guys with some problems that are clearly secondary to prostate removal via RP. How can you talk about gas pains when you did not experience it? ThAt is senseless from someone who doesn’t know what pain feels like after you stabbed to your abdomen 6 times from cuts from 3/4 of an inch to 2.5 inches in lenght. Your abdomen was pressurized to 25 PSI and some surgery patients later on develop hernias because of weekend muscles secondary to that 25PSI inflation and micro muscle tears will sooner or later give up. 

You for sure don’t know how does it feel to be on the operating table for 5-6 hours with your body tilted head down 45 degrees. 

You don’t know how much heart and lungs are suffering for the surgery timewith all abdominal content pressingon on them plus abdominal Inflation with all pressure on diaphragm.

For sure, you did not experience anything similar in your treatment.

MK

Hi,

Got to agree with eonore, I think you would benefit from some mental counseling to help you sort out you feelings.  Hope you can have a better outlook on life in the future.

Dave 3+4

Hi Steve,

This is pretty much the drill; strap you to the table, knock you out, hang you head down at 45 degrees so all your guts flop down and press on your diaphragm then pump you up so the surgeon has plenty of space to work, then poke a few holes for the camera and instruments, put the catheter up your penis, slice out the prostate and any other bits, stitch the urethra back onto the neck of the bladder, cut a big hole so they can get the bits out and then finally pull everything out and stitch you up before getting you back horizontal again and then onto a trolley for recovery.
You wake up with quite a headache and an incredibly inflated abdomen, you spend the next few days farting and burping the gas out.

Best wishes,

Georges

I digitally signed my informed consent for my upcoming 4-hour prostatectomy procedure and was not offered a printed copy. So I asked (and recommend everyone ask) for a printed copy and was told not to be too alarmed by all the risks of the procedure. In the two pages of risks, it included gas being trapped in tissues dangerously affecting blood flow and heart function, stricture, nerve damage, intestine damage, loss of this loss of that, and ends with the last risk being death. I did a lot of research and also found there had been a law suit at my treatment facility for a person who had a prostatectomy who experienced permanent blindness apparently due to a very long surgery (I assume complications and cranial pressure from the head-down tilt for so long).  I asked my surgeon about that case and of course I wasn't told many details but knew it had been years before and with a different surgical team.  Adverse events or side effects can happen with any of the treatment options so I'm not sure it's worth assuming had you chosen a differnt treatment you would have had a better outcome. There are not guarantees so we all have to make an individual decision and manage through any negative side effects or outcomes as best as possible.

Steve1961 said:

Not insulting

dont know about all that  sorry I guess we both had rough experiences ..I was told surgery would roughly be 2 hours give or take ..I read everywhere it’s between 2-3 hours depending on the size of person and prostate  . Filing one up with gas  and hernias and weak muscles from it and all that  never heard that  ..Like a Grinder said if you have bowel problems that’s on your surgeon its rare that that happens ..I have talked tp quite a few men personally  and on here as well  no Problems at all ..lighterwoodseems tobe doingjust great ..some  ED that’s it ..all I’m saying that most men don’t really have any problems after surgery unless there is complicstions which unfortunately you seem to have had ..I’m done with this for good ...I didn’t have a bad experience I was lied to about the side effects ..all the side effects I got were outlined  but the damn radiologist didn’t give me the brochure before hand if he did I would have saw all the side effects of radiation and I never would have done it ..don’t forget the guys here that  did radition don’t have a prostate there ..

For your information, I posted this before.  I have developed a left inguinal hernia.  This may very well be a result of the RARP or may not be.  Sometimes folks that have RARP do develop herinas usually around the 1 1/2 year to 2 year point.  At this point the hernia is not impacting me.  I do go for a second opinion this month.