First day of chemo

Good Luck!

 I got some headphones and listened to music.

wifetojeff69 said:

He took his laptop but I

He took his laptop but I think it was just really hard to concentrate on anything with all of the unknown for the chemo and for future stuff. He is really scared that he will go through all of this to only get it again or it go some where else.

You know what, that is a valid fear. I had a recurrence and I had it start to grow in another organ. But you hope it doesn't, and know that if it does, you keep up the fight. I have found in my short time with this disease that definitely fear of the unknown is the worst. He has to try to remember that he can keep fighting if his fears happen.

I took the Xanax prescribed and nodded off, I'd bring the laptop but would tire of it fairly quickly. I hope they are addressing his anxiety, and giving him something to help cope. I accepted that I needed help with worry, early on, then later read on and practiced techniques like staying-in-the-moment, mindfulness, and stoicism. Dealing with all that fear at the start of things is as important as anything else. Let him know that it's reasonable to be scared, but not useful, and working to cope with those thoughts and feelings, is really the biggest battle cancer brings. The one upside, if any, to this sh*t, is learning to face the worst, in a way normal folk don't, and finding a way to deal with that mind killer, fear. Hope to you both..................................................Dave

It sounds normal, but be sure to keep him well-fed with whatever food he can tolerate.  It is easy to cut back on eating when you are nauseous.  Also, remember hydration.  Electrolyte drinks or gatorade might help as well.  Of course, any time you get concerned, call the doctor.

wifetojeff69 said:

He had the pump removed

He had the pump removed yesterday and he felt pretty good until late afternoon, he started to feel a little nauseated but it was off and on nothing too bad. Today he feels worse, more nausea and he feels really tired and fatigued but he said he feels weak also, is that a side effect as well or does that fall under fatigue? Hopefully tomorrow he will feel a little better.

A post dissconnect "crash" is pretty normal for me.  Varies a bit on when it happens, but they add steroids and other premeds whihc eventually wear off (including anti nausea meds).  I have quick actioning (sublingual) Zofran for nausea.  Most of the time on the post disconnect nausea, when it happens, I can get by without any meds or just some ginger snaps, tea etc.  Weak/fatigue is also part of this. Starts coming back.  It can build up, depending on the person, so some things may last longer - namely weak/tired.  I have finished 31 rounds as of last week.  Takes me a bit more to bounce back.  And I am I bit more tired.  On the other hand, I am able to do a lot of things on my good days.  And my "bad" days are napping and binging TV.