Sunrise19 update

Realize that I have taken way too long for an update, but seems things go up, down, sideways  and always appts down the road. And that's the way this is gonna be. Then I read all the recent updates and questions and realize that there are so many more complicated issues ... and this will hopefully be simple.

Dear Bluebird1 and All Great Ladies: After not being able to complete the advised 6 carbo/taxol, the Treatment Team stopped me at 4. Yes, they had given Neulesta but counts did rise enough to continue, also had tinnitutus, some hearing loss and some neuropathy. They had also given me a delay several weeks but no improvement. Then, after another month, a tiny but important improvement that showed that my bone marrow would start improving. 

Got my after treatment check up late June. CT Scan clear except for nodules on thyroid, which could be checked later in the summer. I was high with relief but my adult son encouraged me to have the thyroid ultrasound before heading back 8 ish hours away. I got that appointment and was then advised a couple of nodules "highly suspicious". Well, my Treatment doctor said it would be rare that this is the same histology and you have a referral to Endocrinology. So, in July I went in for a simple fine needle aspiration biopsy. Well, 12 fine needles later(ouch, but doable) I had to wait for the results. Yes, 70% chance of papillary thyroid C and other nodules probably benign. Partial removal of thyroid recommended and full if needed during surgery. They will also check for the rare chance that this is somehow related to the Uterine Serous G3 diagnosis (there are lymph glands and cells behind the thyroid area).  I could wait a month, and decided to wait and have requested a second opinion to see if I could do wait and watch. Doubt I'll get that.

My feelings went from high to low over the next hours and days. So, I did tell both departments having NED for 24 hours and then this diagnosis made it worse. Why not send me for the ultasound, and biopsy right after the CT Scan results? Then give me the whole picture. The answer was somewhat blurred ...two different depts, probably not the same cancer and we understand why you feel disappointed. Well, the reality, as you gals know is that you go in for checkups hoping for the best but knowing that anything is possible. 

So, after a few days, I thought, "lucky they found this" and I'm lucky that the neuropathy subsided and my energy returned and I do feel good. Next will be 2nd opinion and probably schedule surgery, then have next Uterine checkup in October. 

Thankful for this Forum!