T Cell- what to expect

Leafypaint
Leafypaint Member Posts: 1
in Lymphoma (Hodgkin and Non-Hodgkin) #1

This is my first post- hi everyone. My mother was diagnosed with lymphoma over a year ago. She went through 6 rounds of chemo, a month of radiation and a surgery to remove the tumors under her arm. Unfortunately, the cancer survived.

    Her wound is still healing, but the doctors at U Penn and MD Anderson (they are working in tandem) have ordered two new concoctions of chemo and then a third/t cell operation.

They told us that she will likely need to stay in the hospital for 5 days after the first treatment and up to 6 weeks after the T cell operation.

 

Can anyone give me a heads up on what to expect during this time? I know everyone reacts differently...but I am hoping to find support from people who have experienced this procedure first or second hand.

 

Thank you so much for your time

Comments

  • PBL
    PBL Member Posts: 366 Member
    #2
    A little more detail?

    Hi,

    Sorry you find yourself posting here.

    If I read you correctly, your mother is going to get Car-T Cell treatment for her relapsed/refractory lymphoma. This is quite new, but you will find some patients who can give you first-hand info.

    It might also be helpful if you could indicate what type of lymphoma she was diagnosed with, as there are many different varieties with very different behaviors and treatment strategies, and other patients with the same "brand" could offer useful information.

    Best of luck to your mother and yourself.

    PBL

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,817 Member
    #3
    PBL said:

    A little more detail?

    Hi,

    Sorry you find yourself posting here.

    If I read you correctly, your mother is going to get Car-T Cell treatment for her relapsed/refractory lymphoma. This is quite new, but you will find some patients who can give you first-hand info.

    It might also be helpful if you could indicate what type of lymphoma she was diagnosed with, as there are many different varieties with very different behaviors and treatment strategies, and other patients with the same "brand" could offer useful information.

    Best of luck to your mother and yourself.

    PBL

    Exactly

    As PBL noted, CAR-T is relatively new, particularly in treating lymphoma.  It is not a mainstream response in US oncology for blood cancers, even following relapse. But there have been a few writers here in the last year who either had it or were researching it, and I hope they respond to you soon.

     

    .

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