Triple Negative Breast Cancer

I just wanted to say my sister is at 17 year survivor of Triple Negative BC.  She underwent chemo lumpectomody (she didn't want to lose a breast so she opted for this instead) then more chemo and radiation and she was on a chemo pill for years.  I don't know if she is still on one or not.   No one else in our family on both sides ever had breast cancer before.

Now I know of two sisters 28 and 31 who were just diagnosed with Triple Double BC and are undergoing 6 months of chemo then surgery then more chemo and radiation and then they will have their ovaries removed.

Wishing you peace and comfort.  

I too am in the process of fighting TNBC.  I was diagonosed in March and have completed my first regimen of chemo which was AC.  I will start my weekly regimen of Taxol next week and I am scared for the next phase. I have done very well so far and they say the Taxol is not as harsh but for whatever reason I am feeling very freightened.  I think it may be the fear of balancing a full time job and weekly treatments with very little recovery time. Looking for advice from anyone who has been treated with Taxol.

meadowglade said:

Taxol

I did well on the A/C as well. I also did well with taxol. I suggest that you use Sally Hansen's hard as nail, it will help with the effect that taxol can have on them. How many treatments of a/c did you have and how many of taxol? 

4 doses of AC every other week and 12 doses of Taxol weekly

I was diagnosed Jan 29, 2019 TNBC STAGE 2A 1.4 CM TUMOR 1 LYMPH INVLOVED.  I am from NJ and went to Sloan, Summit Meidcial Group who is affiliated with MD Anderson , I had my breast surgery from one Dr then went for three opinions of different oncologists. I happend to luck out and find a Dr who is triple board certified, attended MD Anderson as a student ( only 15-20 students a year get accepted and he practiced for them too. He moved back to Jersey and stands alone . He can work for any of these big cancer clinics but chooses for many reasons to practice alone as an oncologist who treats all cancers. He has 5 star ratings and steps out of the box. He is up on the latest research and is brilliant. I was told by many people that a lot of people are alive because of him Anyway my point being if you do your research on TNBC you will see that most are highly aggressive splitting at a hight rate a and are considered basal like, 

The other oncologists automatically wanted me to take ACT said " thats the protocol" so I listened and I went for another opionon " thats the protocol" I went to my Dr and he actually said well yes today that is what most big cancer instututes are doing they are givin a  new third generation drug however the 1st generation drug CMF has been studied and has an alkaline agent in it that shows promising effects against TNBC As a matter of fact he said it has the same outcome with less effects on your heart and not as toxic. The head of Sloan is now also saying he thinks this can be a the new protocol and the number one scientist in the country is now recommending cmf for tnbc , MY Dr is young, brilliant and attended and practiced for MD Anderson where people travel aLL over the world to go. I trus him and I have two more infusions left. he also made a good point  why bring out the big guns now? No purpose once you use ACT you can never ever use it again, so in his experience he has seen better results with TNBC less reoccurance and its better tolerated. Remember too its the new hot thing ACT Big PHarm like promomoting new expensive things. Not saying it works but if there is somehting else out there that has been used since the 70s and studies show its just as good as ACT for TNBC possobly better why not go for it. What was disturbing to me I called my original oncologist and said I want cmf    she said oh no we only use ACT I said it is my body, she said that is our protocol I said listen I researched CMF and it is just as effective if not even more, she didn't know what to say to me. I said listen Im not dumb your company is in bed with the pharm company and you cant give me what I want. She daid noone will give you CMF I said really research Sloan the head of Oncology see his opinion , and the head scientist in the country and MD Anderson. I said bye bye. So I trust my Dr all he said was true I researched all he told me, and I am doing it. I had one hospital stay I went neutropenic  I got pnemonia , other than that it wasnt pleasent but he said ACT will destroy me.  So I pray every day I read the bible on my knees I have 3 kids and I am 49. I will not live in fear, I will not die from this. I made up my mind I decide how I die. I slso went to several nutritionists, I now bought a water distiller the one you actually distill water it is on amazon it isnt a filter or jug you pour it into a distiller that uses osmosis to distill water. you will see plastic and soot at the bottom of it after you use it. I drink a gallon to two gallons of water a day. I am trying to stay away from bread. I don'nt have much of an appetite and I lost 18 pounds since April. I also get weekly massages, and I researched these natural herbs that have been researched and have had great results on all diseseas especially cancer. I just orderd them and reserched them read testimony and watched videos from the news about this and it cant hurt it is calledNrf1 and Nrf2   Life vatage Vitality Stack. I hope I helped someone.  All I do is research and ask my Oncologist every question every time I see him. God Bless us all and may this disease never rise upon us a 2nd time, and for those of you who it did may you be healed in Jesus's name.  Be strong and dont fall to this. Remember you decide.