Mop-Up Chemo Started

mojogirl67
mojogirl67 Member Posts: 306 Member
in Colorectal Cancer #1

Happy Tuesday everybody! I am sitting in the chair, hooked up and listening to the IV pump do its' thing. I hate this beyond any words I have to describe but I am going to give this all I've got. I drove in from the mountains yesterday to my daughter's and got settled in. My four rambunctious grandsons kept me occupied until I went to bed so I didn't have much time to dwell on things. Needless to say, I didn't sleep well last night thinking about starting the chemo again. It's funny how much fear we instill in our own beings only to realize it's not as bad as we thought. So many random thoughts ran thru my mind...will I get sick this time?..will my hair thin more or come out?...will I do all this and still have a recurrence? I let the thoughts come and then I let them go because I know what will be, will be. I'm not sure how all of this will play out but I am in the ring, gloves on and ready to put the first round behind me. If you have some good energy to spare, send it my way today..lol...Hugs, M

Comments

  • NewHere
    NewHere Member Posts: 1,429 Member
    #2
    Many Hugs MojoGirl

    Just reading your post brings me back to my last hook-up of Friday.  I hate it also.  But then had a few pretty okay days with ny niece and nehphews (even though not at 100%) and coming out of the chemo haze more today.  Hang in there.

     

    Higs and enrrgy to you Mojo...

  • SandiaBuddy
    SandiaBuddy Member Posts: 1,381 Member
    #3
    Best of luck

    Best of luck to you in this new chapter.  That's a great photo of you with the grandkids. I am sure they will lend you energy to keep you going.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #4
    Thoughts and Worries

    It's very common for all your thoughts and worries.  Hope that you feel ok and glad you are settled in at your daughters.  Wishing you the best going forward with your treatments.

    Hugs!  Kim

  • mojogirl67
    mojogirl67 Member Posts: 306 Member
    #5
    NewHere said:

    Many Hugs MojoGirl

    Just reading your post brings me back to my last hook-up of Friday.  I hate it also.  But then had a few pretty okay days with ny niece and nehphews (even though not at 100%) and coming out of the chemo haze more today.  Hang in there.

     

    Higs and enrrgy to you Mojo...

    I Feel You My Friend

    We do what we have to do, right? I am carrying my little bag with the pump now. I used to try to cover up my port but I don't care anymore. I made the mistake of taking two steroid pills this morning instead of one so I will probably be the energizer bunny all day and crash tonight, lol. I will be disconnecting tomorrow and I hope feeling well enough to drive back to the mountains. I then have to turn around on Tuesday and come back for bloodwork and a doc visit. I am praying the worst days will have passed over the weekend. I am sending that good energy and hugs right back. Let's recycle it and keep it going to get thru!! Wishing YOU good things for your day!! Hugs, M

  • mojogirl67
    mojogirl67 Member Posts: 306 Member
    #6
    SandiaBuddy said:

    Best of luck

    Best of luck to you in this new chapter.  That's a great photo of you with the grandkids. I am sure they will lend you energy to keep you going.

    Love Your Canyon Pics

    I am so happy you are doing well and doing what you love. You never fail to encourage and offer support. Thank you so much! Maybe one of these days I will get to see the Canyon. For now, my NC mountains will tide me over. Hugs, M

  • mojogirl67
    mojogirl67 Member Posts: 306 Member
    #7
    Annabelle41415 said:

    Thoughts and Worries

    It's very common for all your thoughts and worries.  Hope that you feel ok and glad you are settled in at your daughters.  Wishing you the best going forward with your treatments.

    Hugs!  Kim

    Monkey Mind

    I usually do well with keeping my "Monkey Mind" at bay but sometimes it gets the better of me. Infusion day went well and I am attached to my take home pump. When I left the center yesterday, I came to my daughter's house and watched my boys play outside and we put stuff on the grill. I crashed and slept hard last night. I did make the mistake of taking two steroid pills this morning instead of one so I will probably be the energizer bunny for a few hours, lol. I hope to head back to my mountains tomorrow after they disconnect me and hopefully settle in for my few rough days until they pass. I have to turn right back around and come back on Tuesday for a doc visit and bloodwork. Those few days in my own space especially when not feeling so well are worth the two hour drive for me. Thank you for always encouraging and supporting. Hugs your way!..M

  • SandiaBuddy
    SandiaBuddy Member Posts: 1,381 Member
    edited April 2019 #8
    mojogirl67 said:

    Love Your Canyon Pics

    I am so happy you are doing well and doing what you love. You never fail to encourage and offer support. Thank you so much! Maybe one of these days I will get to see the Canyon. For now, my NC mountains will tide me over. Hugs, M

    Hiking

    I try to update the profile photo with each successive hike.  I was taking prednisone for a pinched nerve on the hike last weekend, and I knocked 45 minutes off the prior time for the same distance.  You can say I was pleased.  My heart bleeds for you being back on chemo, but hopefully the long-term results will be worth it.  I hope you are back in the mountains soon.  To be honest, if I survive, I will attribute a large part of it to the long hikes at the Grand Canyon.  We all need a special place.

  • Butt
    Butt Member Posts: 352 Member
    #9

    If you can get to the mountains right after disconnect it is great! I am usually occupied with side effects. 

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited April 2019 #10
    Fear

    Fear of the unknown is always scary.  Once you have this you will know a little more what to expect next time.  If you don't feel good make sure you let your doctor know.  I'm sure you can handle this as you have handled so much already.  The first day of my chemo, we met our son for dinner that night, pump and all.  Pretty proud of myself, but just a little tired.  You go girl - you can do this.

    Kim

  • mojogirl67
    mojogirl67 Member Posts: 306 Member
    #11
    Butt said:

    If you can get to the mountains right after disconnect it is great! I am usually occupied with side effects. 

    Mountain Bound Today

    I hope I make it there today Butt without too much trouble. I woke up this morning feeling noticeably tired for the first time. I've taken my steroid and I am scheduled to get the pump off at 12 today. As soon as I'm done, I am going to make the two hour drive. I think I will be fine. I woke up feeling a little queasy this morning but I've settled down..I HATE this pump and will be so happy just to have it off. I am praying the side effects don't worsen since I've had the surgery. I guess it will be a wait and see game. Hope you are having some good days thru all of your treatment. Fight hard Butt...I know you will...Hugs, M

  • mojogirl67
    mojogirl67 Member Posts: 306 Member
    #12
    Annabelle41415 said:

    Fear

    Fear of the unknown is always scary.  Once you have this you will know a little more what to expect next time.  If you don't feel good make sure you let your doctor know.  I'm sure you can handle this as you have handled so much already.  The first day of my chemo, we met our son for dinner that night, pump and all.  Pretty proud of myself, but just a little tired.  You go girl - you can do this.

    Kim

    The Unknown..

    How right you are...I am praying the side effects aren't any worse after surgery. I will get disconnected today at 12 and head to the hills. I am hoping by the time I have to come back on Tuesday that most of the "yuck" has passed. I woke up noticeably tired feeling this morning. I popped the prescribed steroid so I guess that should give me a little boost for my drive back. The break of being off chemo is like night and day with this nasty stuff. I keep telling myself I only have a few treatments to get thru and I can put it behind me. I'm praying and fighting hard to get this in my rear-view mirror. Thank you for the boost...I sure needed it. Hugs!..M

  • mojogirl67
    mojogirl67 Member Posts: 306 Member
    #13
    SandiaBuddy said:

    Hiking

    I try to update the profile photo with each successive hike.  I was taking prednisone for a pinched nerve on the hike last weekend, and I knocked 45 minutes off the prior time for the same distance.  You can say I was pleased.  My heart bleeds for you being back on chemo, but hopefully the long-term results will be worth it.  I hope you are back in the mountains soon.  To be honest, if I survive, I will attribute a large part of it to the long hikes at the Grand Canyon.  We all need a special place.

    Mountain Bound Today

    Once the pump comes off at 12, I am making my two hour drive back to the mountains today. Just seeing them come into view soothes my soul in a way nothing can. The effects of the chemo were definitely felt this morning when I woke up. I had a little queasiness and was noticeably more tired but I took the prescribed steroid and I hope that will be the boost to get me home. Hopefully the "yuck" part won't last long and will be over before I have to come back on Tuesday for doc visit and bloodwork. Once I see just how bad this round of chemo will be after having surgery and get a grip on it, I hope to maybe get in some small hikes at least. Thank you for the support..much appreciated. I'm envious of those hikes, lol, but happy you are in a good place and able to get out there! Hugs, M

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #14
    You totally have this!

    you are one of the most positive people I have ever seen go through this. I have no doubt you are going to sail through to cancer free! Enjoy the mountains!

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