Undiff pleomorphic sarcoma (armpit)

nichegner
nichegner Member Posts: 1
in Sarcoma #1

My husband is 37 and was diagnosed with a high grade undifferentiated pleomorphic sarcoma last month. They say stage 3. He had surgery to remove it and it was 6cm. Docs say we can do chemo but there is no data to support if it works or not. But radiation for sure. We are trying to go for a second opinion to MD Anderson. There is not a lot of info out there and we are struggling to make treatment decisions. We also just bought a house, own our own business, I am a stay at home mom for an 18 month old and there is not a lot of info on survival. Any info would be appreciated!

Comments

  • Mpirt90
    Mpirt90 Member Posts: 4
    #2
    my wife had high grade stage

    my wife had high grade stage 3 UPS on her thigh. She did 25 radiation treatments before they removed an 11cm mass on her thigh. we met with the medical oncologist after her surgery and she said that she has a 30-40% chance that it will recur and that chemo will only lower that percentage by 10%. the chemo would cause too Many side effects (hair loss, possible infertility, and possibly get leukemia later in life) so she decided not to take it. 10% isn’t much but being as the armpit is close to the lungs then I would seriously consider it. The doctors at Vanderbilt said that it was common for UPS to recur in the lungs. 

     

    A little back story. We got engaged in May of 2017 and had the wedding date set for April 7th. In late September she was diagnosed with sarcoma so we bumped the wedding up to October 22nd During her 2nd week of radiation. December 11th, 2017 they removed the mass and X-rays say she’s been clear since! My wife just turned 25 years old. She goes back for MRI in May to start her sarcoma protocol. 

     

    I’ll be keeping yall in my thoughts and prayers. 

    Michael

  • Mpirt90
    Mpirt90 Member Posts: 4
    #3
    Mpirt90 said:

    my wife had high grade stage

    my wife had high grade stage 3 UPS on her thigh. She did 25 radiation treatments before they removed an 11cm mass on her thigh. we met with the medical oncologist after her surgery and she said that she has a 30-40% chance that it will recur and that chemo will only lower that percentage by 10%. the chemo would cause too Many side effects (hair loss, possible infertility, and possibly get leukemia later in life) so she decided not to take it. 10% isn’t much but being as the armpit is close to the lungs then I would seriously consider it. The doctors at Vanderbilt said that it was common for UPS to recur in the lungs. 

     

    A little back story. We got engaged in May of 2017 and had the wedding date set for April 7th. In late September she was diagnosed with sarcoma so we bumped the wedding up to October 22nd During her 2nd week of radiation. December 11th, 2017 they removed the mass and X-rays say she’s been clear since! My wife just turned 25 years old. She goes back for MRI in May to start her sarcoma protocol. 

     

    I’ll be keeping yall in my thoughts and prayers. 

    Michael

    Never mind. It came back

    Never mind. It came back

  • bjfdubin
    bjfdubin Member Posts: 2
    edited August 2018 #4
    Mpirt90 said:

    Never mind. It came back

    Never mind. It came back

    UPS

    How is your wife doing? My husband was recently diagnosed with UPS in his shoulder. We are just in the beginning stages of grappling with this.  Started round two of  A.I.M chemo.  So far  no mets, just a huge f'in mass 10 cm.

  • Prg
    Prg Member Posts: 2
    #5
    bjfdubin said:

    UPS

    How is your wife doing? My husband was recently diagnosed with UPS in his shoulder. We are just in the beginning stages of grappling with this.  Started round two of  A.I.M chemo.  So far  no mets, just a huge f'in mass 10 cm.

    Undifferentiated pleomorphic sarcoma

    wishing you all the best and will pray for a successful outcome.

  • Mpirt90
    Mpirt90 Member Posts: 4
    edited August 2019 #6
    bjfdubin said:

    UPS

    How is your wife doing? My husband was recently diagnosed with UPS in his shoulder. We are just in the beginning stages of grappling with this.  Started round two of  A.I.M chemo.  So far  no mets, just a huge f'in mass 10 cm.

    well it came back in her leg

    well it came back in her leg again in March of 2018. She did chemo and then they removed it. She was cancer free for almost a year. last week they found 2 spots on her lung, one is already 65 mm (2.5 inches) the other 22mm. we go for a biopsy tomorrow. 

  • Mpirt90
    Mpirt90 Member Posts: 4
    #7
    Mpirt90 said:

    well it came back in her leg

    well it came back in her leg again in March of 2018. She did chemo and then they removed it. She was cancer free for almost a year. last week they found 2 spots on her lung, one is already 65 mm (2.5 inches) the other 22mm. we go for a biopsy tomorrow. 

    My brother was also diagnosed

    My brother was also diagnosed with sarcoma. He has Ewing’s. seem like my wife and brother having sarcoma would be extremely rare

  • Drindra
    Drindra Member Posts: 3
    #8
    Mpirt90 said:

    My brother was also diagnosed

    My brother was also diagnosed with sarcoma. He has Ewing’s. seem like my wife and brother having sarcoma would be extremely rare

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