Neuropathy issues

because right at this moment, I have an itch on one of my toes. Becasue I have neuropathy, I cannot for the life of me scratch the right part, and its driving me crazy. 

Neuropathy is weird.  I have it in my fingers, and from my knees down to my tippy toes. I am six year out of treatment, and it is not going away. 

As for tips, the only thing I can suggest is to keep a food journal, and see if your symptoms are exacerbated by certain foods.  Mine definitely gets worse when my sugar intake goes up. Also Salt and acetic acid.

I think that, for most people, it does go away or at least get allot better, as time passes. Hopefully you are one of the lucky ones. 

Tru

Kazenmax said:

I’ve had neuropathy since my

I’ve had neuropathy since my first round of xeloda. Numbness in the set and hands. Im 6 months out and I started having those shooting pains through my heels. Nothing relieves it, but eventually it will stop. I had no idea that certain foods could make it worse. I will have to track it. You learn something new everyday!

thanks

k

Kaz, I was talking to a Doctor friend about my neuropathy being worse after the intake of sugar, and he said that the sugars attach themselve to the nerve endings, which is either the cause of, or one of the causes of neuropathy; so it kind of makes sense that the symptoms would be exacerbated by sugars. 

Tru

I don't know if mine is worse later in the day, or if I am just more aware of it when I am tired.

My neuropathy wasn't better a year after I finished my FOLFOX and my Onc told me that it probably wouldn't get better if that was the case. I found some research that says that lion's mane mushrooms promoted nerve growth so I gave that a try. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5987239/ If you want to give it a read.

I used both that and the B100 complex. My neuropathy is now pretty much completely gone.

ThomasH said:

What worked for me

My neuropathy wasn't better a year after I finished my FOLFOX and my Onc told me that it probably wouldn't get better if that was the case. I found some research that says that lion's mane mushrooms promoted nerve growth so I gave that a try. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5987239/ If you want to give it a read.

I used both that and the B100 complex. My neuropathy is now pretty much completely gone.

how long did you have to take them and what quantity?

Phil64 said:

treatment

Thomas, Thanks for sharing this. I too have permanent neuropathy, similar to what Kim describes, mostly it is just numness or tingling, but sometimes it is painful and interrupts my sleep. I found that a couple extra-strength tylonol helps to curb the issue and allows me to fall back to sleep.  However, I've been curious if there is a cure. I've heard that accupunture has been known to help? I was thinking about trying that. Now I'm curious about trying lion's mane mushrooms and B100. 

I have also noticed that my neuopathy is aggrevated by eating badly (sugar), cold, and exercise. 

yeah my oncologist suggested accupuncture too- but i decided agaisnt it- suppsoedly alpha lipoic acid helps too- along with B-12 which is suppsoed to 'rebuild nerves' but I tried them for months and didn't seem to help much- will probably try the B-12 and lion's mane now- see what happens- I don't know if damaged nerves can be repaired though- soem sites say no- others say yes

Nazareth said:

yeah my oncologist suggested

yeah my oncologist suggested accupuncture too- but i decided agaisnt it- suppsoedly alpha lipoic acid helps too- along with B-12 which is suppsoed to 'rebuild nerves' but I tried them for months and didn't seem to help much- will probably try the B-12 and lion's mane now- see what happens- I don't know if damaged nerves can be repaired though- soem sites say no- others say yes

Just read a post on an Intermittent Fasting blog about someone who’s neuropathy went away when they reduced their blood sugar levels. And they had lost 50lbs. I’m down 30lbs but still have the neuropath. I do feel remarkably better though. Maybe when I hit 50 lb list mark I will report no more neuropathy too. :-)

abita said:

Did you gain weight on chemo?

Did you gain weight on chemo? I gained 50 pounds. Trying to work on that.

Lost 16 pounds and now can't eat until late afternoon because of bowel issues and still have neuropathy before eating so for me it was definitely due to the Oxy not sugar or anything else.  My one doctor told me gaining weight usually is caused to stress because of going through treatment however can be caused by treatment alone as everyone is different.

and neuropathy is still persistent.   Some days, when it involves pain I am thankful for the days when I can't feel fingers or toes.  I have yet to find anything that made a bit of difference.  Even when I was on fentanyl, if something triggered a pain episode (usually cold), I still felt the weird pain in my feet.  Today I jammed a thumbnail and boy did it hurt.  Funny that I find myself thankful that I can still feel the more severe real pains.  I guess, I just deal now, and don't intend to try something else unless something sure-fire comes along.  I am used to looking at what I am doing with my hands all the time since most of the time I just can't feel my fingers.  I guess I just got used to it...

Here is to hoping you don't have to just get used to it...

Best wishes,

Rick