Ostomy Bag and Gas

Oh, you guys gave me my first good laugh of the day! Our gasiest dog would work as a noise suppression service dog as he lets loose the longest, squeekiest noises of the three. The littlest one, a cocker spaniel, is the best behaved publicly but he never has gas.

Well, maybe this will go away without explanation like some of the other things I have does. The terrible and constant nausea I had for months is gone and they don't know why I had it. The incontinance I've been dealing with for a couple of months seems to be improving and they don't know why I have that, either. Hopefully this will go away as well. It's sometimes shockingly loud. And, of course, I don't know when it will happen, it's a surprise every time.

Jan

Trubrit said:

Shout out!

So, you're in public, and you have the noisiest bag burp ever. Shout Out 'Don't worry folks, it's just my Colostomy Bag' while laughing, and pointing at your tummy.  - I know you have an ileostomy, but people don't know about that one too much, whereas they probaby have heard of a colostomy-    Just a thought 

I try to handle everything with humour.    This ones for you   Jan Jan beating off Cancer

Tru

Thanks Tru! I do have a sense of humour about my cancer so that might very well work. I'm planning to come up with a design for a bag cover this week. Then if anyone is curious it won't be so ugly. Generally it's not bad to look at but last week I had to use a clear emergency bag I got at the hospital and it's see through. Very ugly indeed. I have no qualms about letting people know I have a bag. It is what it is. I hope that if I talk about it in a normal way then other people who have one won't be seen as different from anyone else by the people I've told about mine. It needs to be something that's just a non issue. 

I want to normalize the whole cancer thing for people. The side effects, the fact of it, all of that. Half of us will get it. People need to not see it as the boogie man any more.

Jan

I'm going to start a company that provides service dogs for people with this issue, what do you guys think? Ha ha! I guess I need to start with bulldogs?

Honestly, I'm turning into my mom and doing all the things I used to laugh at her for. Tripping on nothing, forgetting things, passing wind and making a noise with it. It was funny then but not so funny now that it's me. My poor mom one time was at a mall waiting in a long line to use a debit machine in a bank. It was finally her turn and she started towards the machine and then dropped something halfway there. When she bent over to pick it up she noisily let one go. She was horrified and very embarassed. But when she told me I laughed my butt off. Immature, I know, but still funny.

Jan

Nazareth said:

I just tell folks it's my jet

I just tell folks it's my jet propulsion system- Jan, are you sure you're not eating somethign different? I try to eat pretty bland, (Caveman diet- mostly meat- a few veggies once in awhile, potatoes- and really that's about it) but when i deviate from what i normally eat- it wreaks havok- The magnesium could be causign it- can you try not taking it for a few days? If gas subsides, You'll know that's what's causing it- but i never had trouble with gas with mag oral- Try eating real bland for a few days- easy to digest foods- chicken, eggs maybe, toast- rice- see if that makes a difference (Tip- I drink a little peptol immediately after eatign smell producing foods like eggs- and put several drops of 'Stop Odor' in pouch- helps to cut down on odor in pouch- it binds with sulfer-like stuff that causes the smell and deoderizes it) Yuo could try taking Simethicone- supposed to break up gas bubbles- sposed to help- never did much for me-

Could be just an upset stomach- which will pass- but coudl be your system suddenly not handling somethign you've always tolerated well too- which is why a bland diet for a few days might help discover if that is what it is- Having ostomy is a life long learnign experience by trial and error- ugggh-

Thank you for your reply! I'm thinking it is the magnesium. It hasn't happened for two days now and I haven't had a magnesium IV since Friday. I hope it's gone, the volume was shocking. 

That's hilarious about the jet propulsion! My horse will often very loudly pass wind when first being ridden if he takes off fast. We call it his jet propulsion, ha ha!

Thanks!

Jan

Nazareth said:

Good- soundsl ike maybe it

Good- soundsl ike maybe it wwas the mag then- hopefully that's sorted out- talk to the doc about the issues when on the mag- maybe they can adjust dosage to help with it if you need the mag IV-

Oddly, nobody has called me about going back on it. Neither my family doctor or the onc. I'm good with that, I'm sick to death if IVs. I'm such a hard start and I hate getting poked over and over. It hurts, it's not a 'little pinch' like they say. I feel fine and my side effects from chemo are almost totally gone. The horrible, itchy dry skin, the rash, the infections on my fingers, the lower magnesium, all that crap. I'm getting stronger and stronger every day, too. I'm going to pretend to be cancer free for a few months until I have to go back on the maintenance chemo. Just live my life and hopefully have a good summer. I've been hoping for that for a few years now but things have gone south every year.

Jan

It sure makes little things matter more, doesn't it Nazareth. A good day is worth so much more now because you never know when it will end. I enjoy life so much more now. Every night when I say my prayers the first thing I say is 'thank you for today'. 

My veins have always been small and they roll and are weak and have lots of valves. Lots of times they think they have it in but there's an issue. They never use a trainee for me, it's always someone that knows what they're doing but they still often have to have someone else try it. I'm a hard start but I say I'm a terrible start. They use hot towels, I hang my arm down, they slap the skin, all kinds of tricks. And I have trouble with dehydration so that makes if even more fun.

Anyway, thanks for your replies!

Jan