AML with FLT3 marker

I am 47 and was diagnosed with AML FLT3 August 6th of 2012. Had my BMT December 5th 2012. I have done remarkably well also. Fatigue tends to be an issue. I have done a lot of research on FLT3 patients and it is frustrating, there is so little information on anyone surviving outside of 5 years. Multiple relapses seem to be quite the norm for them to even live that long. So I am enjoying life as much as I can while I feel some what normal. I know each time someone relapses the body gets weaker from having to do chemo again, some go threw another SCT or BMT, in time it just too hard on the body. I just hope I am a freak of nature and that crap never come back . I live life and plan life as if I am going to live to be 100. But like any cancer it taunts us at time because of statistics.

louzac said:

Still OK

Thanks for the reply, I didn't think I would get any.  We have remarkably close cases.  Now at over 9 months I still don't exactly feel secure but have come across some more encouraging data.  I'm still not buying green bananas but I do have some hope.  Fingers crossed for both of us. Good luck.

I am having some side effects of a sorts. They are doing a MRI on my brain and possibly a spinal tap. But I am chugging along. I DJ and have continued to do so throughout my recovery after my 100 day mark. It really helps me feel normal, though it does ware me down really bad for several days after each event. Great to hear things are going well. Here is my Facebook page if you are on Facebook. As much FB can be irritating it really helped me get through the really tough time in the hospital and early days of recovery. I have met some great people who have been where we are now. https://www.facebook.com/dhilbun66