Diagnosed with B cell non-hodgkins lymphoma
Hi everyone - I am 68 year old male living in Central Texas and this is my first post. I was diagnosed Sept. 21 with NHL. I also was diagnosed with non-muscle invasive bladder cancer about 2 years ago and after a couple of TURBT surgeries have had a total of 18 BCG treatments (Immunotherapy) with no recurrence so far.
Around March of this year I felt an unusual pressure behind my right eye. I went to my Ophthalmologist and she check my IOP and optic nerve and everything seemed OK. The pressure didn't go away. In July my right nostril became congested. I used Afrin and it seemed to clear things up so I used for a couple of days and then switched to a nasal steroid with pretty good results. A few days later nostril completely stopped up. I lost my sense of smell and taste (taste came back a little a couple of days later - no smell).
In the meantime as part of my 3 month visit to Urologist I had a PSA that came back 5.09 which was almost double from previous one. So he put me on 30 days of Bactrim to see if it cleared up (probably from either the frequent catheter insertion or BCG treatments) so I figured I would wait until finishing that to pursue the sinus issue. The PSA went down but didn't help sinus blockage.
I went to ENT Doc, he did a examination and said it looked like I had a large polyp that was blocking my nostril The CT showed I had a tumor in right maxillary sinus and even the sinus above my eye and it was pushing on the muscle below my right eye (all of this only on the right side). My eye was tearing a lot and looked like it was bulging a bit. The ENT did a biopsy and path came back - lymphoma and was referred to a Oncologist.
Had various tests - Another CT, MRI, PET scan, Bone Marrow Biopsy, ECG, and PORT installed. PET shows no other node involvement. I had my first R-CHOP treatment Oct. 23. Scheduled to have 6 cycles 3 weeks apart.
After this the Oncologist is recommending a lumbar puncture to test spinal fluid and Methotrexate for 4 cycles. He says this is a precaution to make sure none is in my CNS. Is this something that any of you have experienced? I feel like maybe just a standard protocol thing?
I haven't heard anything about radiation.....yet?
The good news is that just the next day after my first RCHOP infusion the pressure and bulging is gone, my right nostril is open, and I can smell Simply amazing!
No side effects yet, haven't lost my hair yet. I am encouraged by the quick reaction to my first Chemo treatment.
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