Some positive news!

ImNotDeadYet
ImNotDeadYet Member Posts: 244
in Kidney Cancer #1

I've been on Votrient since February of this year, and just had my latest scans and follow up with the doc. No new growth or progression! I was more anxious this time around than usual - probably because of the reduced dose I was on for two weeks while on vacation. It felt like a weight lifted off of me today. My "spousal equivalent" is going out of town next week for work. Last time she did that, I needed my cousin  to come out and "babysit" me. This time, in addition to good scans, I'm managing the side effects much better to the point that I'm going to hang solo for a week - just the dogs and me. I'm grateful for this group and for all of you. I've learned so much here and have truly benefited from the support we all give to one and other. And now, I'll celebrate the good news with some of "Colorado's finest!" Be well my friends and let's keep supporting each other!

Gary

Comments

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #2
    Is that weed or beer?

    Gary,

     

    Greeat to hear the progress.

     

     

    icemantoo  a/k/a Garry

  • Retcenturion
    Retcenturion Member Posts: 240 Member
    #3
    Sounds like a plan

    So glad to hear your upbeat news. Like Jerry says " having a high time, living the good life". Enjoy your me time you have earned it.

  • Canadian Sandy
    Canadian Sandy Member Posts: 784 Member
    #4
    Happy for the good news.

    Happy for the good news. Enjoy that Colorado’s finest.

  • Limelife50
    Limelife50 Member Posts: 476
    #5
    Great News

    Party on you deserve it !!!!!

  • daisybud
    daisybud Member Posts: 541 Member
    #6
    Good news!

    Good news!

  • angec
    angec Member Posts: 924 Member
    #7
    Great news!

    That is great, Gary! What dose of Votrient are you on now? My 86 year old mother has been on 200 mgs. since 2012. Was stage4 RRC.  She has been NED with Votrient since 2013 or so. Votrient is a very powerful drug and they usually start out with the highest dose of 800. But that does is not always needed and since the side affects can be strong it was a good idea to go lower. So, if it gets to the point you can't tolerate the side affects, don't go off the drug. Just keep going to the lowest point where you still get results!  All the best!

  • JerzyGrrl
    JerzyGrrl Member Posts: 760 Member
    #8
    icemantoo said:

    Is that weed or beer?

    Gary,

     

    Greeat to hear the progress.

     

     

    icemantoo  a/k/a Garry

    Here I was thinking...

    ...It was a steak.Wink

    Congrats!

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #9
    angec said:

    Great news!

    That is great, Gary! What dose of Votrient are you on now? My 86 year old mother has been on 200 mgs. since 2012. Was stage4 RRC.  She has been NED with Votrient since 2013 or so. Votrient is a very powerful drug and they usually start out with the highest dose of 800. But that does is not always needed and since the side affects can be strong it was a good idea to go lower. So, if it gets to the point you can't tolerate the side affects, don't go off the drug. Just keep going to the lowest point where you still get results!  All the best!

    I'm on 600 now

    We started at 800, but I couldn't tolerate the side effects. Still was having it bad until they added pantoprazole, which has helped the GI SEs signicantly. Glad your mom is doing so well! Definitely encouraging to read that. 

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    #10
    Great News Gary

    we have all been so worried about you

    but glad to hear the plan is working 

    i know you have had major life shifts but great to hear the news is going all your ways

    peace and love

    Annie

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #11
    icemantoo said:

    Is that weed or beer?

    Gary,

     

    Greeat to hear the progress.

     

     

    icemantoo  a/k/a Garry

    Well...

    I don't drink anymore. It doesn't play well with Votrient, so... 

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #12
    Retcenturion said:

    Sounds like a plan

    So glad to hear your upbeat news. Like Jerry says " having a high time, living the good life". Enjoy your me time you have earned it.

    Well...

    ... I know... 

  • foroughsh
    foroughsh Member Posts: 779 Member
    edited October 2018 #13
    Great news

    Great news

    I'm very happy for you

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