Afraid to hope

One consideration in addition to CheeseQueen’s comment....It may help to go into the appointment knowing that your treatment choices will more likely than not include some combination of surgery, chemo and radiation. Then if it is something less than that you won’t be disappointed. Hope for the best but plan for any combination of treatment.

Please remember you will get through this uncertainty one day at a time just as the other “sisters” on this forum have. We understand the importance of hope but also know the reality of not knowing exactly what interventions/ treatments one will have based on the post surgical pathological report.

Also as you proceed with treatment there may be unique circumstances each of our bodies decides to throw into the mix which then can change the treatment protocol and timing. 

Try to be resilient in terms of telling yourself you will get through the best case scenario or the worst case scenario. 

Monday can’t come soon enough I imagine....  ((Hug))

Lori

I sort of had the opposite happen.  I had the biopsy done and was told that it was a 95% chance of not being cancer.  I was surprised when they called two days later and said it was, but not too worried because they said it was the garden variety endometrioid endometrial kind and I had a 95% chance that just the hysterectomy would take care of it.  Surgery was a breeze, then a week later I read my patient portal and the results were up telling me that it was actually stage IIIA.  I called the doctor's office right away and they said, "Oh don't worry - just come for your 3 week checkup as scheduled."  It was an agonizing 11 more days and then they told me what I had read - I had spent those days frantically googling and worked myself into a frenzy.  Got a second opinion on the pathology and they upstaged and upgraded to stage IVB, Grade 2.  Treatment was the same - chemo.  I decided to reserve radiation for recurrence based on the fact that I couldn't find any studies that said it prolongs survival. Here I am, a year after finishing chemo, and I'm still me.  You're still going to be you, too.  Conserve that energy.  Surgery will happen.  You'll move forward from there.  All of us here have done it, and you can too.  Worry won't change one thing, but having strength will.  Ask for some meds to help you take the edge off, or for  good sleep.  No shame in having a little help - my word, if not now, when would be a good time to?  Hang in there.  We are with you.

Hopkins is a top cancer center, it is where I was treated. I am glad you are getting that second opinion. Good luck for your appointment, and know we are all supporting you. It helped me tr mndously to know this community was thinking of me. Hugs to you.

I am not sure how to post messages on this board.  I am new today.   I have had

uterine cancer since  March of this year.   I had surgery.  I am stage 4.  i have

had radiation and chemo.  They found a spot that they couldn't operate on

behind my vaginal wall.   I have to have more chemos.  The spot is partially neucrotic

which means it is partially dead.   i thought that was good news.  They said i had a good

cat scan,  but that i will be on chemo from now on.  I never knew people just stayed on chemo from now on.   I am so upset.  Could anybody help me?

Tanya, I am glad you figured out how to post on this forum discussion board. 

I am not sure what chemo you need to be on from now on. I had chemo called a “sandwich “ protocol because radiation was scheduled or done between the 6 cycles of carboplatin and Taxol. 

It does seem like there are some types of cancer whereby a person is treated with chemo as a maintenance type therapy rather than a “cure “. You know most of us never have been told that we are “cured”. We are told there is “ no evidence of disease”. 

Sometimes depending on the type of cancer (for example) brain cancer there can be necrotic (dead) tissue seen on a scan but the doctors aren’t 100% confident if it is scar tissue or cancer so they either do watchful waiting or treat with more chemo. Also some breast cancer survivors take Tamoxifin (orally/by mouth) for many years. 

Sorry I am not much help with your specific situation. A good thing is that there actually is a chemo drug you can take as maintenance therapy. 

Lori