Newly diagnosed stage 4 uterine serous upsc

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  • Acookie
    Acookie Member Posts: 11
    edited August 2018 #22
    Frankensence

    Just another question, we have doterra frankensence oil at home. I have heard it may be beneficial for cancer. How is it used besides a diffuser? Is it safe to injest a drop mixed with water while on chemo? Thanks

  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    edited August 2018 #23
    Not to push surgery or chemo

    Not to push surgery or chemo but I would go with a second opinion.  They cannot tell you the grade or the spread of the cancer without having it removed from the body and send everything to a pathologist and let them slice, dice and test the tumor and nodes removed.  I had grade 3 stage 3 MMMT 7 years ago.  I had the total abdominal hysterectomy TAB and then 6 rounds of chemo and no radiation.  I had carbo/taxol.  Yes I lost my hair too as some of the other ladies stated.  Get to a surgeon and get there opinion of chemo first and wait to see if that works or would he prefer to do the surgery then chemo after the pathology report.  I do not know if they do it in Australia but there is testing on the tumor to find the best chemo to kill the cancer.  I did not have that done so cannot talk to it but a lot of the ladies on this site talk about it.  Good Luck with you Mom. And new Baby.  trish

  • LadyMox
    LadyMox Member Posts: 56 Member
    edited September 2018 #24
    I have been deemed the the

    I have been deemed the the chemo, surgery, chemo route. So far I'm past the first chemo with taxol/carbo. What they say I have so far is Endometrial  cancer stage IVB, Metastatic adenocarcinoma, but of course they haven't gutted me yet except for a biopsy.  

  • LadyMox
    LadyMox Member Posts: 56 Member
    #25
    I had ascities also, so far

    I had ascities also, so far it hasn't come back in force but it's only been a month. While it didn't hurt it was very uncomfortable. It felt much better when I got 3.2 liters drained, which they did before the chemo.

  • Acookie
    Acookie Member Posts: 11
    edited October 2018 #26
    LadyMox said:

    I have been deemed the the

    I have been deemed the the chemo, surgery, chemo route. So far I'm past the first chemo with taxol/carbo. What they say I have so far is Endometrial  cancer stage IVB, Metastatic adenocarcinoma, but of course they haven't gutted me yet except for a biopsy.  

    Thanks for your response

    Thanks for your response ladymox, how is your treatment going? Hope it is going well and not too many side effects. 

  • LadyMox
    LadyMox Member Posts: 56 Member
    #27
    Acookie said:

    Thanks for your response

    Thanks for your response ladymox, how is your treatment going? Hope it is going well and not too many side effects. 

    My treatment is going well. I

    My treatment is going well. I haven't got the fluid in the belly back and I am on the second taxol/carbo chemo. Between my first and second chemo my CA125 went from 120.9 to 36 so that is probably postive and the doctor thinks the tumor on my ovary is likley shrinking. The side effects are worst from day 3 to 6 but otherwise it is not so bad and I am still working part time when it's not the week of chemo.  I am hoping after the 3rd chemo they will give me another CTscan or even better a PET scan so I can see what going on inside me and schedule surgery.

  • LadyMox
    LadyMox Member Posts: 56 Member
    #28
    Acookie said:

    Thanks for your response

    Thanks for your response ladymox, how is your treatment going? Hope it is going well and not too many side effects. 

    While I was initially nervous

    While I was initially nervous about the chemo/surgery/chemo route; I have come to like the idea. They can visually see if my tumor is shrinking, they can also beat back to cancer some so while I am recovering from surgery that it hopefully won't go wild while I wait to be better enough for more chemo. I am at Roswell Park in Buffalo, NY which is supposed to be in the top 3% of cancer treatment centers so I have to hope they know what they are doing, Yes this has the side effect that some of my questions can't be answered till after surgery, so that is a drawback.

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