TNBC past 2

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  • Apaugh
    Apaugh Member Posts: 850 Member
    #22
    Update??

    So hey gals, many of you posted here what you were doing with either reaccurance or new diagnosis's, so can you give some updates on how your doing?

    Hugs and Prayers,

    Annie

  • SLS100
    SLS100 Member Posts: 37
    #23

    I had posted awhile ago.  The xeolda I tried did not work. My tnbc was  just too aggressive and they felt chemo just would not kick it.  So I have moved to UCSF nd am on immunetherapy. My tumor is down from 11.2 to 2.7 cm.  Am having neuropothy in fingers and toes.  They went down on my med from 2.5 to 2.0 and skipped a week. But neorapothy continues.  Was hoping redu ed dosage would get it. So am waiting another 2 weeks ti see if we can reduce dose again, I am  a clinical trial that allows them to reduce the dosage twice.  Will see what happens.  They can do mastectomy but it is in my chest wall also not ust my breast.  Hoping for the best. 

  • marycurbelo1204
    marycurbelo1204 Member Posts: 73
    #24
    TNBC past 2

    Thank you all for your concern.  Well, I was on Chemo but Onco discontinued due to swelling of my left arm.  I was hospitalized (very low blood count) for 6 days.  Upon results of an arm ultrasound, they found blood clots on my jugular.  They immediately removed the port, gave me 3 blood transfusions. Chemo was discontinued.  Now I am on 33 rounds of rads.  Recently, I've noticed that my fingernails have fallen and my nails are black and blue.  Anyone ever had this?

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