VB501 said:

Malt Lymphoma of the Conjunctiva

I went to Eye Institute this week and the doctor is pretty certain that I have Malt Lymphoma of the eye.  Did anyone else here have any problems getting diagnosed?  Just how rare is this condition?  I am upset that my ophthalmologist of 6 years did not notice the lesions in my eye although I have seen her 4 times this year! My dry eye condition and ocular rosacea were increasingly bad this year.  In mid March I had a large floater and flashes of light.  She dilated my eyes twice- in March and in May- I had meant to ask her about the tissue growth at the base of my right eyeball, but forgot.  I assumed that if it was something abnormal that she would say something.  Then in June, AFTER my exam was over, I asked her to take a look at it.  She became very concerned and flustered.  I asked her if it was normal and she said "no".  I asked her if she had ever seen this before - she is in her 60's and she said that she hadn't & that I would probably need a biopsy.  She gave me Lotemax and said that when she came back from a trip in 3 weeks she would send me to someone else for a biopsy.  I decided to seek a 2nd opinion and scheduled an appt. in the Eye Institute at our local teaching hospital--but I had to wait until Sept. 26---so I saw a friend's ophthalmologist who said she didn't think it was lymphoma.  I had also noticed a pink spot under my upper eyelid- in the fornix that looked like pictures I saw on the internet so I asked her to check it out.  She said she didn't see anything but lots of ocular rosacea inflammation.  I had my visit at the Eye Institute this week and the doctor immediately said that I needed a biopsy.  He DID SEE the pink spot under my upper eyelid and said it was working itself around my eye.  I have had lots of discomfort in both eyes this summer and lots of anxiety.  My blood pressure was sky high and my primary doc doubled my medication and added a beta blocker.  I will have a biopsy sometime in Oct.--so much WAITING, but the new doctor is pretty certain it is Malt.  He said that it is exquisitely sensitive to radiotherapy and an injectible chemotherapy and he felt confident that it could be zapped away.  He did not see it in my left eye, but it will be biopsied also.  Just wondering if others here had problems getting a correct diagnosis.

They have seen it all. They did wonders for my son for a different issue when he was just an infant. It would be a good place to start for all things relating to the eye. They are not a cancer hospital but could help you get appropriate care - in a hurry. https://www.willseye.org/