Chemo sucks

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  • abrub
    abrub Member Posts: 2,174 Member
    #22
    Kazenmax said:

    So your doctor also

    So your doctor also recommended 12 treatments? It just seems like so much. Especially since there was no other cancer any Place else. I finally came to terms with the fact that I have to do chemo and I was ready to do 12 for a cute. And now my body betrayed me and I can't. There anxiety in stopping chemo as well. Just a rough situation.

    Good luck to you

    K

    I was scheduled for 12

    I quit after 7.  However, in my case, they weren't sure of the value of the chemo, so it wasn't worth pushing through for me, and I was in agony.  I developed an anal fissure that was blindingly painful; every trip to the bathroom (even just to pee) left me in tears. And I had two babies with no meds.   (Very slow growing appendix cancer; chemo is the same as for colon cancer.)

    Alice

  • Godismystrength
    Godismystrength Member Posts: 4
    edited September 2018 #23
    Neulasta

    I am on a two week regime for breast cancer.  I already had 4 treatments of A&C and two of Taxol.  I received Neulasta the 1st, 3rd and 5th treatment.  My WBC's were high before the even numbered treatments (14 to 27?) and low before the 3rd and 5th treatments (around 1).  If you go to the Neulasta site, it says you can give the Neulasta 24 hours after the chemo and again after 14 days.  Show that to your doctor.

    i have had some pretty severe reactions to Neulasta, at least I think it's the Neulasta.  I had my second Taxol yesterday without the Neulasta, so we shall see what my symptoms are in the next few days.  I had the worst reactions two weeks ago.  They included severe deep bone pain all over my body, especially my knees and wrists, severe headaches, like someone was shoving an ice pick in my head above my left ear, my scalp felt inflamed to the pain wearing my glasses was uncomfortable, inner ear pain, extreme fatigue and weakness, loss of appetite, mostly due to sores on my tongue, depression, and severe pelvic pain, and my fever reached 101, but apparently not from an infection.  I was a mess.  I could barely walk because my knees felt like they were going to give out.  I had to call the on-call Doctor on a Saturday night of Labor Day weekend due to the fever.

    I take Claritin now a day before and will continue for several days, even though I got to skip the Neulasta this time, since that seems to help other people.  Not sure it helped last time, but I didn't find out about it until I was already well into the pain.

    I am hoping and praying that my WBC's will remain in the normal range for my next two treatments, if I find that the Neulasta is the culprit.  I am concerned about having a stroke or ending up with bladder problems.  i have asked about receiving half a dose, since my WBC's fluctuate so much on it.  O said no, but NP was more sympathetic.  I'm going to call the Neulasta help line to find out more info.

    Has anyone else had problems with Neulasta?

     

  • mountainhiker
    mountainhiker Member Posts: 54
    #24
    Godismystrength said:

    Neulasta

    I am on a two week regime for breast cancer.  I already had 4 treatments of A&C and two of Taxol.  I received Neulasta the 1st, 3rd and 5th treatment.  My WBC's were high before the even numbered treatments (14 to 27?) and low before the 3rd and 5th treatments (around 1).  If you go to the Neulasta site, it says you can give the Neulasta 24 hours after the chemo and again after 14 days.  Show that to your doctor.

    i have had some pretty severe reactions to Neulasta, at least I think it's the Neulasta.  I had my second Taxol yesterday without the Neulasta, so we shall see what my symptoms are in the next few days.  I had the worst reactions two weeks ago.  They included severe deep bone pain all over my body, especially my knees and wrists, severe headaches, like someone was shoving an ice pick in my head above my left ear, my scalp felt inflamed to the pain wearing my glasses was uncomfortable, inner ear pain, extreme fatigue and weakness, loss of appetite, mostly due to sores on my tongue, depression, and severe pelvic pain, and my fever reached 101, but apparently not from an infection.  I was a mess.  I could barely walk because my knees felt like they were going to give out.  I had to call the on-call Doctor on a Saturday night of Labor Day weekend due to the fever.

    I take Claritin now a day before and will continue for several days, even though I got to skip the Neulasta this time, since that seems to help other people.  Not sure it helped last time, but I didn't find out about it until I was already well into the pain.

    I am hoping and praying that my WBC's will remain in the normal range for my next two treatments, if I find that the Neulasta is the culprit.  I am concerned about having a stroke or ending up with bladder problems.  i have asked about receiving half a dose, since my WBC's fluctuate so much on it.  O said no, but NP was more sympathetic.  I'm going to call the Neulasta help line to find out more info.

    Has anyone else had problems with Neulasta?

     

    Aches and pains

    I'm on Neulasta now because of the massive amounts of antibiotics I'm taking for a bacterial infection.  My side effects last for 2 - 3 days after I inject myself.  For 2 nights I can't sleep the pain in my back and thighs is so bad.  I don't remember it being as bad when I was on the chemo, but I honestly believe it's because I felt so terrible from the chemo it couldn't get any worse.

    mountainhiker

  • abrub
    abrub Member Posts: 2,174 Member
    #25
    Godismystrength said:

    Neulasta

    I am on a two week regime for breast cancer.  I already had 4 treatments of A&C and two of Taxol.  I received Neulasta the 1st, 3rd and 5th treatment.  My WBC's were high before the even numbered treatments (14 to 27?) and low before the 3rd and 5th treatments (around 1).  If you go to the Neulasta site, it says you can give the Neulasta 24 hours after the chemo and again after 14 days.  Show that to your doctor.

    i have had some pretty severe reactions to Neulasta, at least I think it's the Neulasta.  I had my second Taxol yesterday without the Neulasta, so we shall see what my symptoms are in the next few days.  I had the worst reactions two weeks ago.  They included severe deep bone pain all over my body, especially my knees and wrists, severe headaches, like someone was shoving an ice pick in my head above my left ear, my scalp felt inflamed to the pain wearing my glasses was uncomfortable, inner ear pain, extreme fatigue and weakness, loss of appetite, mostly due to sores on my tongue, depression, and severe pelvic pain, and my fever reached 101, but apparently not from an infection.  I was a mess.  I could barely walk because my knees felt like they were going to give out.  I had to call the on-call Doctor on a Saturday night of Labor Day weekend due to the fever.

    I take Claritin now a day before and will continue for several days, even though I got to skip the Neulasta this time, since that seems to help other people.  Not sure it helped last time, but I didn't find out about it until I was already well into the pain.

    I am hoping and praying that my WBC's will remain in the normal range for my next two treatments, if I find that the Neulasta is the culprit.  I am concerned about having a stroke or ending up with bladder problems.  i have asked about receiving half a dose, since my WBC's fluctuate so much on it.  O said no, but NP was more sympathetic.  I'm going to call the Neulasta help line to find out more info.

    Has anyone else had problems with Neulasta?

     

    Bone pain is common with Neulasta

    Your bone marrow is being over-stimulated to produce red blood cells, and it causes pain.  I've heard very good things about Claritin (Loratidine) starting at least day of Neulasta, and for several days thereafter.

  • LSU2001
    LSU2001 Member Posts: 32 Member
    edited September 2018 #26
    What about Grannix shots

    I had my first 12 treatments with Folfox and Avastin and after each pump removal day I had a neulasta shot.  I never had any issues whatsoever from the Neulasta but I recently change oncologists and he switched me to Grannix after a long pause without Neulasta.  When I asked why he told me that the Neulasta should really be given on a 17 day rotation not 14 day so that if administered properly, it would mess up my chemo schedule.  Now I will have Folfiri with avastin on Wed. get the 5FU pump off on Friday and then go in for a 2 minute shot Monday, tuesday, and wed. of my off week.  So far no issues except having to get the shot three days in a row.

    TIm 

  • Unknown
    Unknown
    edited September 2018 #27
    Claritin (Loratidine) Works Wonders

    My husband starts claritin sometimes a generic as long as it contains Loratidine the day before the neulasta shot and continues for the next five days.  It does wonders!!  His doctor and nurses highly recommended it.  He failed to take it during one round and he was miserable so we know it works.

  • johanfou
    johanfou Member Posts: 1
    #28
    CLL and Neupogen

    I have started chemo for CLL in December 2018. Part of the treatment includes 4 shots of Neupogen 30 MU. Basically no side effects, apart from some back pain, but the I have had back pain before I started with chemo.

     

    My best wishes to all "C" sufferes!!!Smile

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