Update on my Dad -- this disease is garbage

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Comments

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    So very sorry

    I'm so sorry your father lost his battle with this demon. He'll always be with high in your heart. I hope that when you remember him, you remember good times and the happy moments you shared. May his memory be for a blessing. 

  • paintergrl
    paintergrl Member Posts: 47
    So sorry!

    I'm so sorry for your loss. Prayers for peace for your family.

  • JoeyZ
    JoeyZ Member Posts: 210 Member
    I am also so very sorry to

    I am also so very sorry to hear this news. We could all tell how close you were and how much you loved him. You can forever hold that dear to your heart.

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    So Sorry

    to you and your family

    the pain is unbearable 

    i wiish you strength to get through these days

    Your Daddy is suffering no more

    Rest in Peace

  • Glidergal365
    Glidergal365 Member Posts: 93
    I'm so sorry

    I'm so sorry for your loss :( Sending hugs

  • LMCRJB13
    LMCRJB13 Member Posts: 84
    Sorry

    I too am so very sorry for your loss.  Stay strong - thinking of you and your family.

    Ryan

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    LeeAllen 

    LeeAllen 

    I'm so sorry to hear your news. I hope you are holding up well. I know how devastating loss of a love one can be. Breaks my heart unfortunately we all must travel that path one day. Know that you were such a good guy for your Dad all your love and support. I'm praying for you and your family. Remember the good times laughs and special times you shared they are precious at times like this. 

  • LeeAllen
    LeeAllen Member Posts: 40
    Thanks everybody. I didn't

    Thanks everybody. I didn't mean to ghost out, but I've taken a break from CANCER for just a little while. 

     

    I will be back to offer support to whomever I can, especially those whose stories match closest to my Dad's. 

     

    The Cabo was working really well, Kidney tumor was so small it could barely be seen on scans. His primary tumor was small to begin with, which could have led to a very good treatment outcome had we got him on the Cabo earlier. We wasted a lot of time w the other Oncologst that gave him the unknown primary diagnosis and, of course Dad should have pursued his lack-of-appetite symptom months before he did. 

     

    The cancer in his bones also shrunk remarkably. From a lemon sized tumor in his side/back, to barely there! By the time he died, his cancer was very much under control. 

    It's almost worse knowing how effective the medicine was, and HOW GODDAMNED CLOSE we were to recovery, vs. a siutation of being so overrun with cancer that nothing could be done. At least, with the latter, you can't look back with regret. 

     

    It was the 3-4 major medical issues the cancer had caused that led to his death. His onc called them "non malignant issues". His lung was worse that anyone knew, until we got him in the ER. Turns out he DID have lung mets. The Cabo had just shrunlk them to almost nothing. Those lung mets were biopsied and he finally got his officaly RCC diagnosis 2 days before he died (Prior to that Doc was 90+% sure). 

     

    I should have had him in the ER 3 weeks before I did! 

     

    I should have went to the FIRST Onc appointment with them, and asked the questions I later asked, that eventually led to better treatment. It was precious time wasted. Had he started Cabo in mid April instead of late June, he'd likely be alive and recovering. 

  • JoeyZ
    JoeyZ Member Posts: 210 Member
    You can't second guess

    You can't second guess yourself at this point. It's just torturing yourself. I've been doing that in regards to my Cabo treatment. What if this, what if that....you can go nuts doing that. I'm sorry and I know it's really hard. You ALL did the best you could with what you had to work with at the time. You just cannot ask for more than that. Hope things get easier for you soon, and I don't think anyone expected you to want to hang around here. Bless your heart and I hope you're all doing ok.

  • a_oaklee
    a_oaklee Member Posts: 566 Member
    Thoughts

    I think what you are going through is a normal part of grieving.  I went through the same thing when my mother passed away.  I have finally found some peace of mind.  Every time you start the "should a, could a, would a" regrets, you have to follow up those thoughts with:  I did my very best.  I was there with him.  He knew how much he was loved.  This is the way you move on, being kind to yourself.

    It's absolutely true that you can disappear from this site if it makes you feel better.  Whatever is right for you is what you should do, but you are most welcome here.  Caregivers, loved ones, family, friends are always welcome.  I want you to know that your posts meant alot to me.  Be well.