What Other 'Complications' Can One Expect After Treatment Ends???

Ottawamarc1234
Ottawamarc1234 Member Posts: 148 Member
in Anal Cancer #1

Very Frustrated!!! Thanks Any Input or experiences would be appreciated!! Thoughts??

Comments

  • mp327
    mp327 Member Posts: 4,440 Member
    edited August 2018 #2
    Ottawamarc1234

    You seem to have had more than your share of issues post-treatment, which is quite unfortunate.  I do hope things improve for you soon.

  • liberty67
    liberty67 Member Posts: 19
    edited August 2018 #3
    Hi, I was told that after

    Hi, I was told that after treatment, the radiation effects might get a little worse before getting better. Everyone reacts differently though! For me, a week after finishing radiation I landed in the ER because the exit site of the radiation beam was so painful I couldn't go at all so I stopped eating to avoid going to the bathroom. They gave me morphine, and I took it for a few weeks before tapering it off. I am only 6 months post treatment, but I'm doing very well considering. Some hip pain, some itching, little nerve pains in different places. GI issues, especially gas. Others here have said that things can change even years after treatment, so it's one day at a time.

  • Ouch_Ouch_Ouch
    Ouch_Ouch_Ouch Member Posts: 508 Member
    #4
    liberty67 said:

    Hi, I was told that after

    Hi, I was told that after treatment, the radiation effects might get a little worse before getting better. Everyone reacts differently though! For me, a week after finishing radiation I landed in the ER because the exit site of the radiation beam was so painful I couldn't go at all so I stopped eating to avoid going to the bathroom. They gave me morphine, and I took it for a few weeks before tapering it off. I am only 6 months post treatment, but I'm doing very well considering. Some hip pain, some itching, little nerve pains in different places. GI issues, especially gas. Others here have said that things can change even years after treatment, so it's one day at a time.

    Morphine, too.

    I briefly took morphine for the radiation pain so that I wouldn't scream when I was in the hospital and people flooded in to see what was wrong.

  • Ottawamarc1234
    Ottawamarc1234 Member Posts: 148 Member
    #5
    Ouch_Ouch_Ouch said:

    Morphine, too.

    I briefly took morphine for the radiation pain so that I wouldn't scream when I was in the hospital and people flooded in to see what was wrong.

    Some Strange Pains When Swallowing...Psychosocial Appointment...

    ....saw my Shrink today at Cancer Centre. She says I need more time for healing 62 days post is still not a long time and strange complications can still occur for the post 6 months. Not unheard of.

  • Ottawamarc1234
    Ottawamarc1234 Member Posts: 148 Member
    #6
    Back Using Adult Diapers Post 63 Days...

    Farts are always wet and stain my shorts bad...poo continues to be soft stools...not taking any stool softners? Changing adult diapers 3 or 4 times each day and expensive!! and bathing afterwards each time. Cant use my regular underwear anymore...too many accidents...Must be from the previous Radiation Treatments...bowels not in order...Nuts!! Only positive...crazy Itch from Hell is finally gone....

  • Ouch_Ouch_Ouch
    Ouch_Ouch_Ouch Member Posts: 508 Member
    #7
    Ottawamarc1234 said:

    Some Strange Pains When Swallowing...Psychosocial Appointment...

    ....saw my Shrink today at Cancer Centre. She says I need more time for healing 62 days post is still not a long time and strange complications can still occur for the post 6 months. Not unheard of.

    I agree.

    It took at least a year+ before I started to feel more normal, strength-wise. I lost more weight after treatment stopped than during it. Once I was strong enough to drive again, I had to carry Boost with me at all times for quite a while because my blood sugar would suddenly plummet too fast to even order fast food. 

    I have some complications that I'm afraid aren't going away ever, though, like urinary incontinence (seeing a MSKCC Urological Oncologist next week to see if there's anything I can do at all) and poop-alary incontinence when it gets softer (I can control formed). I also have lymph edema in my left leg. I'm going to the MSKCC Lymph Edema Clinic tomorrow. For some reason, it's worse in the heat and now the docs are killing another lymph node on top of previously dead ones.

  • Ouch_Ouch_Ouch
    Ouch_Ouch_Ouch Member Posts: 508 Member
    #8
    Ottawamarc1234 said:

    Back Using Adult Diapers Post 63 Days...

    Farts are always wet and stain my shorts bad...poo continues to be soft stools...not taking any stool softners? Changing adult diapers 3 or 4 times each day and expensive!! and bathing afterwards each time. Cant use my regular underwear anymore...too many accidents...Must be from the previous Radiation Treatments...bowels not in order...Nuts!! Only positive...crazy Itch from Hell is finally gone....

    For American vets....

    I don't know how Canadians deal with their veterans' healthcare, if they have an equivalent of the Veterans Administration or not, but in the USA, the VA will provide incontinence products, without a co-pay, for vets that are obliged to use them. The selection isn't great and they sometimes switch products mid-stream (I just noticed the pun), depending on their manufacturer deals, but they ship right to your home. (I'm not a vet, but The Uncle is.)

  • Ottawamarc1234
    Ottawamarc1234 Member Posts: 148 Member
    #9
    Ouch_Ouch_Ouch said:

    For American vets....

    I don't know how Canadians deal with their veterans' healthcare, if they have an equivalent of the Veterans Administration or not, but in the USA, the VA will provide incontinence products, without a co-pay, for vets that are obliged to use them. The selection isn't great and they sometimes switch products mid-stream (I just noticed the pun), depending on their manufacturer deals, but they ship right to your home. (I'm not a vet, but The Uncle is.)

    I am no Vet.

    ....waiting to see Hemo Doctor...waiting and waiting in room...and waiting....and waiting 1 hr passed appointment time.. Nuts. Canada's Great Free Healthcare System....and waiting....

  • Ouch_Ouch_Ouch
    Ouch_Ouch_Ouch Member Posts: 508 Member
    #10
    Ottawamarc1234 said:

    I am no Vet.

    ....waiting to see Hemo Doctor...waiting and waiting in room...and waiting....and waiting 1 hr passed appointment time.. Nuts. Canada's Great Free Healthcare System....and waiting....

    An hour?

    You waited an hour for your appointment? That's practically de riguer in the USA. Yesterday, several radiation machines weren't working at MSKCC, so I had to wait 3+ hours to be zapped. It was a marathon of waiting!

  • tanda
    tanda Member Posts: 174 Member
    #11
    Ottawamarc1234 said:

    I am no Vet.

    ....waiting to see Hemo Doctor...waiting and waiting in room...and waiting....and waiting 1 hr passed appointment time.. Nuts. Canada's Great Free Healthcare System....and waiting....

    Ottawamarc1234

    I give oncologists and some other docs a pass about wait time.  For the most part, I don't think they are deliberately double booking : often it is necessary to fit someone in who is having a problem.

      Also, I am guilt of having abused h physician time by asking lots of questions and wanting lengthy explanations.  I assume some docs have

    patients like me and give them the time that they need, often for psychological reasons!

  • Ottawamarc1234
    Ottawamarc1234 Member Posts: 148 Member
    #12
    tanda said:

    Ottawamarc1234

    I give oncologists and some other docs a pass about wait time.  For the most part, I don't think they are deliberately double booking : often it is necessary to fit someone in who is having a problem.

      Also, I am guilt of having abused h physician time by asking lots of questions and wanting lengthy explanations.  I assume some docs have

    patients like me and give them the time that they need, often for psychological reasons!

    Post 66 Days Pains Have Returned..CT Oct 2...

    Followup CT Oct 2. Cant sleep cause of bum pain 66 days post...ridiculous...must be something not right down there...cant sleep at 5:30 am. Still on blood thinners twice a day for 'new blood clot right leg'.anal fissure just NOT healing despite methods to try and heal it...this is what the pain am experiencing now is probally the cause..terrible chest cold over a week now...hacking away!!. Need to quit smoking...troublesome habit since Age 13. 57 now still puffin away. Bad!

  • feckcancer
    feckcancer Member Posts: 189 Member
    #13
    you are not healing because

    you are not healing because you are still smoking. you should stop. a curable cancer has visited your body and been treated so why are you inviting cancer back into your body via smoking?  if anal cancer comes back it goes to your liver & lungs next. i can not believe you invite it to your lungs. so disrespectful to the doctors that are dedicated to curing your cancer that you continue to smoke. from someone that smoked 1=2 packets a day for 35 years. gave up got cancer am healing. would never smoke again.

  • Ottawamarc1234
    Ottawamarc1234 Member Posts: 148 Member
    edited September 2018 #14
    feckcancer said:

    you are not healing because

    you are not healing because you are still smoking. you should stop. a curable cancer has visited your body and been treated so why are you inviting cancer back into your body via smoking?  if anal cancer comes back it goes to your liver & lungs next. i can not believe you invite it to your lungs. so disrespectful to the doctors that are dedicated to curing your cancer that you continue to smoke. from someone that smoked 1=2 packets a day for 35 years. gave up got cancer am healing. would never smoke again.

    Starting A Smokers Sensation Program Soon...

    Through Cancer Centre.

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