Life after Thyroidectomy

sonicsuzie said:

Well said....................

Jilly..................I loved what you had to say.  I am new here also.  I had surgery on 12/30/2014 by a surgeon whom it was obvious he was ready to go.  It was 5pm on the night before New Year's Eve.  LOL The good news is he is the head of the head and neck cancer dept of UNC.  I had a hemi, they only removed my left side which has led me to a road that is long and winding and not going to stop winding anytime soon.  It had "clean margins".  Four months later and I still feel the same or worse than I did before surgery.

Long story short I am being evaluated again by another university.  There was a lot of mix ups.....mistakes ....bumps in the road!  At this point I have had another ultrasound and been having a lot of bloodwork and change in synthroid dosage.  I live in Myrtle Beach, SC and MUSC is in Charleston.  From what I have seen so far they are worth the trip.

She said with my first meeting with her that we are probably going to have to go in and remove the other half.  She is concerned because I have also had cervical spine fusion years ago and the scar is in the same place. When the surgeon at UNC Chapel Hill did the first thyroid surgery he went in by cutting right into the old scar trying to avoid making a new scar.  She said good idea then, bad now because of the scar tissue now.

My next appointment is on April 25th and she will have all of my old cat scans, mri's etc.  I have severe pain between the last cervical spine and the top of the thoracic spine.  Hurts like he** when I press on it or just sometimes out of the blue I get stabbing pains, mri was read as negative.  She wanted to see if and pay attention for bone metastasis.  Unfortunately my symptoms are consistant with bone mets. When it hurts nothing takes away the pain.

 

In the meantime life goes on, my grand daughter is on her first camping trip with her grandpa this weekemd and I keep getting funny texts from them.  She brought a girlfriend with her.................smart move on his part!  I am moving since I lost my job in with my son who's fiance is pregnant, nothing like new baby smell to cheer you up.  It will be nice to be around family.

 

Take Care

Cathy aka sonicsuzie

I am 55 and have been through a lot in my life.  You have a great attitude...........................hang on to it and live each day to the fullest!

Cathy aka sonicsuzie

Could you tell me which doctor you saw at MUSC?  I am also from Myrtle Beach and havne't found an endo yet.  Just had surgery three weeks ago and will have to have radiation.