New diagnosis, lots of questions

Kathy,

I can only address the Kidney part of your story. First you need to see a Urologist who has a specialty in Kidney Cancer for a FIRST real opinion. A nNephrologist is a good consult for Kidney disease issues, but most don't do Kidney Cancer surgery although they do address Kidney function issues mostly after Kidney Cancer surgery.  At 3.4 cm it is normally fully cured with surgery, but with longterm follow up scans.  It is a relatively small tumor, but beyond the point of watch a wait. Bounce all your Kiney Cancer questions off the Urologist. 

If you have acess to a Urologist at a teaching hospital go for it. I understand Hershey (the park near the hospital) is under water this week).

Sending good Karma on this jourrney.

icemantoo

I agree that you should see a urologic onconlogist. Once he or she tells you what kind of surgery you should have, partial or full, open or laproscopic, then I would seek a second opinion to see how to proceed with surgery. Biopsy is not usually done and even if it was benign it should come out at that size. Partial, if possible due to location, is preferable to full as saving as much kidney as possible is always a good idea. Mine was roughly the size of yours and I had an open partial done by a urologic oncologist surgeon. Mine was open surgery but judging by eveyone's report, not much different from laproscopic as my hospital stay and recovery were very comparable. All the best to you!

stub1969 said:

My experience

My nephrologist is the one the found my tumor while running a CT for kidney stones.  After telling me about the mass he told me that he was referring me to a urologist.  I quickly looked for a second opinion at Mayo and was under the care of a urologist.  If my cancer ever does spread then I'd see a urologic oncologist at Mayo.

You've gotten some good advice from our members.  Sounds like you definiately need to search out a university hospital or research institution that does have a department that specializes in RCC.  

Luck is on your side as the size of your tumor is relatively small.  More than likely, you should be finished with this RCC stuff after surgery.

Keep us updated.

Stub

Stub, urologic oncologists are surgeons that treat kidney masses and masses in the urinary tract/reproductive organs. They don't treat metastastic disease nor manage the treatement of metastatic disease. You'd normally see a medical oncologist (an internist) if your cancer spreads. Medical oncologists use drugs to treat metastatic disease and also manage the care of Stage 4 cancer by referring you to surgeons and radiologists as needed to treat/manage tumors. Medical oncologists come from an internal medicine background and often also have specialties in hematology in addition to oncology.

This is one of my pet peeves that the word "oncologist" shows up in the specialty of urologists. I think it's very confusing and deceptive even. They don't treat systemic cancer.

Maybe there are cases where I'm wrong? I'd love to hear about it if I am so I stop spreading incorrect information.

If you have kidney cancer or think you do, I think it's very important to understand the differences between these three specialties: urologist, urologic oncologist, (medical) oncologist.

Best to you,

Todd

What the heck is that above and how do I delete it, lol?

What I wrote was:

Urologic oncologists specialize in the treatment of cancer of the urinary tract, bladder, kidneys, prostate, etc. No, they do not treat metastatic disease or deal with other cancers like medical oncologists do. But they’re still oncologists since they specialized in urinary oncology so IMO it’s not misleading or deceptive to say they’re urologic oncologists. It differentiates them from urologists who don’t necessarily deal with or treat cancer

Glad you found a Dr your comfortable with. That helps a lot. With the information from the scans and tests hopefully you'll have the information to make the decision that's right for you. Sending more positive thoughts your way.