Post Thyroid Removal Problems
Hello:. My name is Julie. After spending the whole of 2017 fighting a soft tissue Sarcoma in my right ankle. (9 surguries in 12 months), I had a pet scan in November that showed Thyroid cancer. It was papillary. In February, I had the whole Thyroid removed. I have felt like utter crap ever since. I am taking Synthroid. They did not get a clear margin so I start my two shots today in prep for RAI on Wednesday. I know some folks have been kinda of happy over the isolation. I spent all of 2017 bedridden and I am not looking forward to it at all. I am also without an Endocrinologist yet. There are very few in South Georgia. The first two my surgeon sent me to, won't take me because I have Medicare even though I also have private insurance. I am hoping someone here can help me with a few symptoms.
1. My legs are swelling up like balloons. They are swelling so badly that my feet are black and blue with bruising. I was having some swelling in my right foot/ankle from the trauma of the Sarcoma and the external fixator I had to wear for 3 months but this is both legs going up past my knees. It has only occurred since the thyroid surgery. It is really bad
2. I am having bouts of terrible headaches. (I woke up crying in the recovery room with a migraine. The night nurse called me a baby and just left me like that all night. I pretty much sobbed in agony all night When the day nurse came on, she finally took pity as ND got me a shot of something that calmed it down. They popped me out of the hospital as soon as the headache was better. It came back with a vengence on the hour long trip home. I had another horrible night of agony before I could get to my regular doctor. She gave me another shot and some migraine meds. The headaches have settled down but are still with me.
3. At 6 weeks, my voice is OK at low/normal volume. I cannot speak louder than that. My voice won't work and it is painful. I know this is common. I am just wondering if it will ever be better than this.
4. swallowing is hard. Even a full of water is hard to swallow. Anything dry or solid like a bite of meat is really hard to get down. I know that is a usual symptom but is it normal at 6 weeks.
5. I am not sleeping at all well. Even taking a sleeping bill does not help. I lay awake all night. Very unusual for me. I feel very tired. I am horribly irriatible. I gained 12 lbs in exactly 8 days while I was eating NOTHING because my throat was so sore.
6. I have had several bad bouts of heart palpitations. I seem to be swinging wildly from hypo to hyper thyroidism.... I just don't get what is happening to me.
.I'd sure like to know if anybody had these type reactions. I am anxious. It has been a long 15 months of endless surguries that have left me mentally reeling. Somehow I have to stop this swelling at least. It is agonizingly painful especially on my right ankle and foot due to the Sarcoma
Any help is appreciated. I am lost
.Julie
Comments
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Julibarnes, let me assure you
Julibarnes, let me assure you it does get better. I was diagnosed with same in 1963 at age 6. Three surgeries in one year, RAI and hormone replacement, currently levothyroxine (generic Synthroid). I had great doctors and encrinologistss who didn’t treat me as a research project. My dosage has been stable for years with only a few tweaks along the way. I know after 55 years when something is off and needs adjustment. I get T4 and TSH tested every 6 months. Had an ultrasound 5 years ago for a new endo and all is clear. I avoid foods that interfere with levothyroxine uptake and take my levothyroxine 1 hour before breakfast for best uptake.
it will get better and a long life is possible! I’m living proof!
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