Initial OC Diagnosis

Hi Amandasstory, I am so sorry you are going through this. I am much older than you, but had most of the same symptoms. My symptoms were abodminal pain (nothing sharp, but more like an aching or really bad cramps) early satiety (feeling full after eating just a few bites) nausea with a small amount of vomiting, and abdominal distention with pressure - it felt like I was carrying a bowling ball in my stomach. My CA125 was over 1100.I initially went to the ER for abdominal pain. I was diagnosed with diverticulosis and a UTI. I also had ascites (free fluid in the abdomen). I followed up with my primary care doctor who immediately had me get an ultrasound which revealed a mass and ascites. She referred me to a Gynecological Oncologist. She reviewed my records and advised me based on my test results she suspected I had ovarian cancer but she could not give me a definitive diagnosis until she did a biopsy. She scheduled me for a laparoscopy and advised me she would do a biopsy then and might even proceed with a total hysterectomy and oopherectomy and any other organs that were involved. The laparascopy revealed that I had numerous small tumors (my doctor said it looked someone had thrown a cup of rice in my abdomen - there were so many small tumors) she did a biopsy which came back malignant. My diagnosis was Stage IIIC Ovarian Cancer which means the cancer had already spread beyond the ovaries. Since there were so many tumors, I had to have chemo before they could perform the debulking surgery. I had my de-bulking surgery in November 2018 followed by one additional round (3 treatments) of chemo. I had a CT scan after my treatment was completed and was given the all clear. However, now six months later my CA125 is elevated again and I just had a CT scan which revealed a very small nodule on my diaphraghm just under my left lung. I am going to have to have at least 2 more rounds of chemo (6 treatments). My doctor feels this will be curative.

This is just my opinion (and everybody has one) but I would definitely get a second opinion immediately. Consult with a Gynecological Oncologist. They are your best bet if it is cancer. They have the most experience and are better equipped to do this specific kind of surgery/diagnosis. Don't stop seeking answers until you feel confident about what you have been told. 

I hope this is not cancer, but I would not wait to find out. You have to be your own advocate - don't be afraid to ask questions. Praying for a good result for you.

txlady1987 said:

Hi Amandasstory, I am so

Hi Amandasstory, I am so sorry you are going through this. I am much older than you, but had most of the same symptoms. My symptoms were abodminal pain (nothing sharp, but more like an aching or really bad cramps) early satiety (feeling full after eating just a few bites) nausea with a small amount of vomiting, and abdominal distention with pressure - it felt like I was carrying a bowling ball in my stomach. My CA125 was over 1100.I initially went to the ER for abdominal pain. I was diagnosed with diverticulosis and a UTI. I also had ascites (free fluid in the abdomen). I followed up with my primary care doctor who immediately had me get an ultrasound which revealed a mass and ascites. She referred me to a Gynecological Oncologist. She reviewed my records and advised me based on my test results she suspected I had ovarian cancer but she could not give me a definitive diagnosis until she did a biopsy. She scheduled me for a laparoscopy and advised me she would do a biopsy then and might even proceed with a total hysterectomy and oopherectomy and any other organs that were involved. The laparascopy revealed that I had numerous small tumors (my doctor said it looked someone had thrown a cup of rice in my abdomen - there were so many small tumors) she did a biopsy which came back malignant. My diagnosis was Stage IIIC Ovarian Cancer which means the cancer had already spread beyond the ovaries. Since there were so many tumors, I had to have chemo before they could perform the debulking surgery. I had my de-bulking surgery in November 2018 followed by one additional round (3 treatments) of chemo. I had a CT scan after my treatment was completed and was given the all clear. However, now six months later my CA125 is elevated again and I just had a CT scan which revealed a very small nodule on my diaphraghm just under my left lung. I am going to have to have at least 2 more rounds of chemo (6 treatments). My doctor feels this will be curative.

This is just my opinion (and everybody has one) but I would definitely get a second opinion immediately. Consult with a Gynecological Oncologist. They are your best bet if it is cancer. They have the most experience and are better equipped to do this specific kind of surgery/diagnosis. Don't stop seeking answers until you feel confident about what you have been told. 

I hope this is not cancer, but I would not wait to find out. You have to be your own advocate - don't be afraid to ask questions. Praying for a good result for you.

 

I agree with the other ladies, the Gynecological Oncologist can look at everything & help you decide what to do, and there isn't any test that can tell them with certainty without surgery.  Everyone I've talked to about Ovarian Cancer has said that it best for you to have surgery (even if only exploratory) done by a Gynecological Oncologist in the case that it does turn out to be cancerous.   Best wishes and hopefully you can get it sorted out, I can't imagine waiting and trying to figure it out on my own.  

Sorry you are going through all of this. I agree with the recommendations made here to seek a consult with an oncology surgeon. The sooner you can get into a specialist and get the tumor removed and a diagnosis the better. Wishing you the best of luck.