Anonymous user (unverified)

Seems strange that she would want to leave as we were all nice and answering the posts as we would any one who had questions.  I wonder if the posts were being done by a troll to the site.  Most people when they want to leave just stop posting or answering.  Odd to me.  But I think i've spent enough of my time tring to figure this one out.  

Thanks Shady for the answer.  

Difficult to tell for sure, as so many different threads were started, but I believe one particular conversation topic may have been expurgated, and this may have led to either some form of "suspension", or maybe voluntary withdrawal... This visible state of "limbo", as Max said, makes it all the more mysterious.

I do not recall any conversation that might have caused direct offense, but maybe the moderators were concerned about parts the "alternative medicine" one?  Also, is it possible that something happened over on the Chatroom side that got reported?   Wishing her the best of luck getting through, though.

Always good to read your news.

I imagine it is quite possible that Rituxan is the cause of your current issues. I did tell my hematologist several times about experiencing repeated skin problems that seemed to follow a pattern with each Ritux; that was always met with apparent indifference, so that I gave up mentioning it altogether.

Then, as I reached my last maintenance Ritux, out of the blue he asked me whether I had any skin issues. I was stunned, so just replied that I had already told him about that. I assume they probably regard it as too insignificant for them to spend any time on that kind of side effect - either that, or they have too little information about it to establish a definite causal link between the Ritux and the skin problems. Whatever the case, they choose not to be bothered.

All I can say is that although most of the extreme dryness has resolved now that I am through maintenance (since April 20), I am still having annoying little sores that take forever to heal.

Hang in there until you find a good dermatologist... or until you're done with maintenance!

In the meantime, have a happy birthday and a lovely holiday.

PBL

Max Former Hodgkins Stage 3 said:

Improbable

Ev,

The Prostate Board is full of "alternative therapies" discussions all the time. Reefer, miracle diets, holistic imaging. None of it has been suppressed there.

Roc described some of the people who were kicked off in the past.  One, who became "Anonomous" for a period, was an MD in private practice (not an oncologist), although he did not identify as such on the Board (he wrote to me a lot via e-mail).  I have also known an actual urologist at Prostate (also not public). 

The whole 'Anonomous' thing reminds me of a common practice in the Soviet Union during Stalin's time.  Political enemies were routinely murdered after vanishing without a trace (Alexandar Solzhinitsyn documents in his masterpiece The Gulag that Stalin killed many millions oof civilians, largely due to starvation, during the farmer purges. These were not wartime occurances).

Political murder was dubbed 'achieving non-personhood' (usually a .22 round in the base of the skull).  Such individuals could never be asked about or discussed, ever.  Eveyone knew to pretend that they had never heard of them, and did so. They did not wish to become non-persons themselves.  This is shown in some detail in the old Robert Duvall movie Stalin also (1992).   There is a scene in that movie in which political hacks are applauding Stalin at a banquet.  But they realized in the course of clapping that they could not be the first to stop clapping, since that would indicate a lack of love for Uncle Joe. This could render them an "enemy of the state," and cause their own death.

Move along folks....nothing to see here !  We never had a member named 'anonomous,' since anonomous is not a given name. Obviously, therefore, there never was this 'anonomous' whom you alledge....

 

.

 

I do not understand your post.  The first part, where you doubted discussion of alternative treatments of cancer, being a cause for Dawn's disappearance,  I agree with.

Next, you say that I described "some of the people" who were "kicked off" in the past. I mentioned ONE (1), the only one I know of.

I really got confused when you started talking about Soviet political enemies, Stalin, Gulag, political murder, "achieving non-personhood" (in bold). Are you threatening us for asking about Dawn? 

At the end, you tell us to "move along folks. . .nothing to see here". It is obvious by the responses Dawn has received to her posts that we care about her. And we wonder what happened?

By the way, technically speaking, we are all anonymous here.

Rocquie

Rocquie said:

Max

I do not understand your post.  The first part, where you doubted discussion of alternative treatments of cancer, being a cause for Dawn's disappearance,  I agree with.

Next, you say that I described "some of the people" who were "kicked off" in the past. I mentioned ONE (1), the only one I know of.

I really got confused when you started talking about Soviet political enemies, Stalin, Gulag, political murder, "achieving non-personhood" (in bold). Are you threatening us for asking about Dawn? 

At the end, you tell us to "move along folks. . .nothing to see here". It is obvious by the responses Dawn has received to her posts that we care about her. And we wonder what happened?

By the way, technically speaking, we are all anonymous here.

Rocquie

 

R,

The term Move along folks, nothing to see here is a popular one in the news media and in political commentary. This is true for at least the last few decades. It is a caricature of government statements, which commonly suggest that there is no meaning to the disappearance of anyone, or to tragic occurences.  For instance, since 9/11 at least, a jetliner can fall out of the sky, and before rescuers are at the scene, officials are already releasing to the press statements that "There is no suspicion of wrongdoing in this crash." 

Paraphrased, This was nothing folks; no cause for alarm.  A truck can drive down two blocks of sidewalk somewhere, and before the driver is identified, the same thing:  We have no evidence of wrongdoing...possibly a medical event. Simplified even further, what the governement is really saying to John Q. Public is we have not the remotest idea what transpired. But since we know how easily panicked people are, yet also how dumb, we are issuing our ludicrous pre-canned presser. 

Your bizarre wonderment if I am "threatening" someone defies any intelligent understanding.  And who constitutes 'us?'  I was furthering the discussion around Dawn, not styming it.  Everyone pitches their posts here in the hope that the average level of reader understanding is accommodated.

Since CNS made a rare statement of explanation, my hope is that this whole thread is now going dormant. Or, we can call it Anonomous, or whatever,

An anonomous voice from the ether,