My father was diagnosed with Lymphoma

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  • Evarista
    Evarista Member Posts: 336 Member
    #22
    yesyes2 said:

    POT or not to pot?

    Okay i'm from California and have no interest in smoking weed, havn't since the 70's.  However I do think it has it's place in treating nausea and in increasing appetites of both AIDS and chemo patients.  There are other ways of using pot, MaryJane tea, brownies, cookies, etc. so it can be used with out smoking it.  I know very few people who use medical marijuana and are stoned.  Most in my opinion don't take it so they can be high but they do get benefit from it.  It also is used in treatment of Glaucoma, I think it reduces inflamation but not sure.

    Just felt like adding my 2 cents. 

     

    No smoking!

    In our conversations on this with my clinical team, we were strongly admonished to NEVER use an oral inhalation route, should we opt to try it. Didn’t need it, so cannot comment on utility.

  • armymikaelson
    armymikaelson Member Posts: 5
    edited July 2018 #23
    yesyes2 said:

    Difficult situation for you.

    Vitamines and peach pits and green tea etc. do not cure cancer.  If the current chemos are not working perhaps he should look into a clinical trial.  Are they having difficulty getting him into a remission so they can attempt a bone marrow transplant?  The doctors are usually successful in doing various combinations of chemo drugs to get people to a BMT, using either his own cells or a donors.  With most lymphomas stage isn't that important.  However there is a big difference between T-cell and B-cell lymphomas.  If it were me I would look at clinical trials and a BMT.  

    t@yesyes2

    what is a clinical trial? how can i find out about clinical trial in maryland ?can you explain what you mean by remission? i will contact his oncologist to see the options available for BMT.

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #24
    Evarista said:

    No smoking!

    In our conversations on this with my clinical team, we were strongly admonished to NEVER use an oral inhalation route, should we opt to try it. Didn’t need it, so cannot comment on utility.

    Yes

    Ev,

    It makes sense that not smoking would be healthier, via a pill or brownie or whatever, certainly for the lungs. I have heard that before myself.

    It remains undetermined whether the THC and other elements per se may be cancerous regardless of delivery though (I do not have an opinion on this one way or the other).

    As stated above, I never had the slightest need for what pot reportedly does, and have no personal experience myself either.

    max

  • yesyes2
    yesyes2 Member Posts: 591
    #25
    armymikaelson said:

    t@yesyes2

    what is a clinical trial? how can i find out about clinical trial in maryland ?can you explain what you mean by remission? i will contact his oncologist to see the options available for BMT.

    Armymikaelson

    When you speak with your father's oncologist you might want to ask him/her about clinical trials in your area.  Before any drug goes to market it goes through years of clinical trials (tests).  When current chemo drug are no longer helping a patient many people will turn to a clinical trial.  You might receive a brand new chemo, not currently approved by the FDA or you might be given known chemo drugs but in different combinations or dosages.  The Universities doing the trials closely follow the patients and there are strick rules on compliance.  These trials sometimes are also offered to newly diagnosed patients.  Best to speak to your oncologist.  Or go to either Chemocare or LLS sites on more info.

    Remission is when you have finished treatment and there isn't any evidence of disease, also known as (ned).  It's a great place to be.  These terms are used more often now days than saying someone is cured of their diisease, but we all want to be cured.  

    Hope this helps.

  • armymikaelson
    armymikaelson Member Posts: 5
    #26
    yesyes2 said:

    Armymikaelson

    When you speak with your father's oncologist you might want to ask him/her about clinical trials in your area.  Before any drug goes to market it goes through years of clinical trials (tests).  When current chemo drug are no longer helping a patient many people will turn to a clinical trial.  You might receive a brand new chemo, not currently approved by the FDA or you might be given known chemo drugs but in different combinations or dosages.  The Universities doing the trials closely follow the patients and there are strick rules on compliance.  These trials sometimes are also offered to newly diagnosed patients.  Best to speak to your oncologist.  Or go to either Chemocare or LLS sites on more info.

    Remission is when you have finished treatment and there isn't any evidence of disease, also known as (ned).  It's a great place to be.  These terms are used more often now days than saying someone is cured of their diisease, but we all want to be cured.  

    Hope this helps.

    @yesyes2

    thanks for the explanations

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