side effects

and start them before you get sick.  Just take them on schedule for a few days.  That should help a lot.  Fatigue is part of the process. Tell your dr and chemo nurses about all side effects.  They'll advise you on how to mitigate them.

Alice

abita said:

The two days after the

The two days after the disconnect from take home chemo were the worst for me. My doctor warned me, so I think same for most. I do get indigestion even though I am very hungry. When this happens, I eat a little bit, and give it time to move to my stomach, then eat more. I also chew very thoroughly. For me, the fatigue gets better each day after the 2 days. I don't sleep much on the pump, so not sure if that adds to it. I have even fallen asleep waiting for the nurse to disconnect me I get so tired. The 13th and 14th day of round, I have the energy to do errands, although, I need a nap when I get home. So, take hope in that as the 14 days progress, it gets a little better each day, then starts over with next infusion. I plan what I need to do on day 13 and 14 to carry me through that first week of extreme fatigue. 

and speak to your oncologist about better nausea medicine. I have not needed mine, but mine gave me two different ones in case one didn't work, so I think that if the one you have doesn't work, they can find one that does. And they did tell me not to be a hero. 

During infusion I'd be awake but disconnect was total crash for me.  It took me days after to feel a little normal and felt fine until the next infusion.  You will notice that this "feel good" stretch will lessen as you get more infusions.  There are some people that can work all the way through treatments and others that don't tolerate it as well.  Use your meds for sickness and if they don't work ask for something different.  Hope you can get to feel better before next infusion.

Kim

Kazenmax I empathise greatly with you--the chemo is hitting me hard too.  I am actually skipping a cycle (have completd 3 of Folfox/Avastin) primarily because my port got infected and had to be removed a few days ago. I got to skip this weeks infusion , my doc is out of town next week so I will get next cycle on the 11th. And I am rejoicing! Besides extreme fatigue I have had neverending mouthsores and lip sores, Hypertension, neuropathy, my skin is all blistered up from the 5FU--skin peel from the inside out, And usuall only have one or two good days before hit again . I think they should build in a break --I am so happy to think my sores might actually heal up before round 4!! 

My husband had been receiving Folfox from Sept to April then switched to Folfuri.  In the beginning he would be okay during the 46hr infusion but exhausted and flu-like for three days.  The first couple of treatments were the worst and then got better.  He actually had a treatment or two that weren't really bad. In April and May he had a chemoembolization done to his liver and that was tough, very fatigued, a lot of pain. He will continue with the Folfuri tomorrow (had skipped a treatment due to fatigue). He is stage iv with liver/lung mets.  His CEA originally was 1550 now 113.

My body hit hard about the 4th cycle.  It is like the chemo builds up in your body.  Hang in there! After your first cycle, you will know what to expect.  I realized then I needed help with anxiety. I had no vomiting but I was on one hell of a cocktail. I had two anti-nausea pills just for home and they worked. I had extreme fatigue on my 3-6 day, my disconnect day was the start of it.   Couldn't wait for them to pull it out of my port. Just felt blahhh and had normal side-effects to deal with. I too was at home with chemo for 48 hours after my first day of Oxaliplatin. They say that the 46-48 hour long infusion helps minimize the side-effects. I truly am thankful for new research - can't imagine what it is like 10 - 20 years ago. Everyones body is different. Sleep when your body is tired. I realized looking ahead at the visits got me sick to my stomach. Just take one day at a time.