Newbe

Kimkraft
Kimkraft Member Posts: 6

i had a colonoscopy June 4th and they informed me  I have cancer. I just had a ct scan and now they are sending me for a MRI. Is that normal?  It was a flat polyp so they could only remove part of it. Seems to be taking forever to get any answers. 

Comments

  • Mikenh
    Mikenh Member Posts: 777 Member
    I originally had a ct scan

    I originally had a ct scan where they determined that there was a mass, and then a cat scan to rule out cancer in the torso (mainly lungs and liver). The MRI also provides the higher level of detail. So I think that an MRI would be appropriate to rule out cancer in other common parts of the body and to get more detail on your cancerous area. The MRI provides far more detail. I think that the cat scan does as well.

    I also had an MRI requested by the surgeon for planning the surgery but it also ruled out spread.

    They may set you up with one or more of the following specialists: oncologist, radiation oncologist, surgeon. The oncologist handles chemo, the radiation oncologist handles radiation and the surgeon handles surgery. One or more therapies may be involved depending on the details of your cancer and the MRI should provide more details for staging. Treatment is usually driven by staging. I know that it's awful waiting for answers but the results drive the treatment.

  • Worriedchild
    Worriedchild Member Posts: 56
    Mikenh said:

    I originally had a ct scan

    I originally had a ct scan where they determined that there was a mass, and then a cat scan to rule out cancer in the torso (mainly lungs and liver). The MRI also provides the higher level of detail. So I think that an MRI would be appropriate to rule out cancer in other common parts of the body and to get more detail on your cancerous area. The MRI provides far more detail. I think that the cat scan does as well.

    I also had an MRI requested by the surgeon for planning the surgery but it also ruled out spread.

    They may set you up with one or more of the following specialists: oncologist, radiation oncologist, surgeon. The oncologist handles chemo, the radiation oncologist handles radiation and the surgeon handles surgery. One or more therapies may be involved depending on the details of your cancer and the MRI should provide more details for staging. Treatment is usually driven by staging. I know that it's awful waiting for answers but the results drive the treatment.

    Isnt PET availabe?

    in our region PET-CT is advised to check the spread

     

  • Kimkraft
    Kimkraft Member Posts: 6
    edited July 2018 #4
    Thanks so much for the info

    Thanks so much for the info Mike. The  wait seems forever to get any type of answer. Just found out they have booked me with a surgeon for July 18th. Hopefully will have had the mri before then and he can provide some answers. 

    Worriedchild They haven’t offered me that type of test but I am in Canada so I don’t know if they have them here. 

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    MRI

    MRI is more detailed if doctor's want more indept information.  CT scans show a lot and can usually pickup most spreads.  Being a flat polyp they can probably see the area more clearly.  Did they give you any indication about the original CT scan and why they want to do an MRI?  It's sometimes very difficult to get an insurance company to pay for MRI as it is very expensive vs a CT.  I'd ask the doctor what the results were from the previous scan.  I'm sorry that you are here.  This is a terrible place to be in the stage of your diagnosis - especially the knowing you have cancer, but not knowing what you have to face.  Make sure that you have someone go with you to all appointments so you have another set of ears.  We are a great group and can help you get through all of this.  Let us know what else you find out.

    Kim

  • Kimkraft
    Kimkraft Member Posts: 6
    edited July 2018 #6
    Thanks for your kind comments

    Thanks for your kind comments Kim. Yes my husband will be going with me. 

  • danker
    danker Member Posts: 1,276 Member
    age

    You don't tell how old you are!  I"m sure you are much younger than me.  And I have apparently beat it.  Was 77 when cancer discovered. Currently 86 and cancer free NED for last 8 years.  If i could beat it,so can you.  It may be a bumpy ride,but it is doable.  Good Luck!!

  • Mikenh
    Mikenh Member Posts: 777 Member
    One thing of note is that the

    One thing of note is that the MRI is more challenging than the CT scan - I found it longer and there were a lot of intervals where I had to hold my breath for some time. The tunnel is also smaller.

  • Cindy225
    Cindy225 Member Posts: 172 Member
    edited July 2018 #9
    MRI

    So sorry you are going through this diagnosis and surgery next steps. I also had a flat sessile polyp removed during a routine colonoscopy that was found to be cancerous which required surgery and follow up chemo. It is all very distressing.  As others have said the MRI is key for the surgeon to determine the approach to the surgery.  The MRI will provide detailed information and imaging about the tumor that you and your surgeon will discuss.  Keep in mind, that there could be different surgery approaches and follow-ups based on the polyp pathology, CT scan, MRI and potential surgery outcomes. I found it so helpful to have a prepared list of questions and my husband with me so we both heard the same thing and could ask follow up questions. 

    Cindy

  • Kimkraft
    Kimkraft Member Posts: 6
    edited July 2018 #10
    Thanks for all your input

    Thanks for all your input everyone. I think I am handling it then it hits me like a wave .By the way I am 61 in relatively good health. Will keep you updated as I get new info. Still feels like it is happening to someone else. 

  • Kimkraft
    Kimkraft Member Posts: 6
    edited August 2018 #11
    Finally some info.

    Finally got some answers. Removing half my colon  70cm plus on August 21St. Not sure why they have to remove so much. When the surgeon did the his own colonoscopy he said found a couple more polyps. Removed them but didn’t send them for biopsy because he is cutting out that section. All seems kind of vague to me. Din’t Think they would remove so much for basically one flat polyp. 

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    Kimkraft said:

    Finally some info.

    Finally got some answers. Removing half my colon  70cm plus on August 21St. Not sure why they have to remove so much. When the surgeon did the his own colonoscopy he said found a couple more polyps. Removed them but didn’t send them for biopsy because he is cutting out that section. All seems kind of vague to me. Din’t Think they would remove so much for basically one flat polyp. 

    Roll on August 21st...

    but first, be sure and ask the surgeon for the reason so much resection.  It is your body, you need to know why so much is being removed. Don't be happy until he has answered your question to your satisfaction. 

    Wishing you the best. We'll be waiting here for you to return. 

    Tru

  • Kimkraft
    Kimkraft Member Posts: 6
    edited August 2018 #13
    Thanks Tru. Will phone the

    Thanks Tru. Will phone the surgeon’s office this morning. Have a great day.