Dealing with stage 4b Serous Uterine Cancer

unknown said:

Don't be afraid of a clinical trial

My son was diagnosed with non hodgkins lymphoma when he was 15.  He went through surgery to remove a mass above his eye, then radiation on the spot.  In about a year, he was again diagnosed with recurrent cancer, this time in his leg.  That's when his wonderful young doctor said we're going clinical trial, with a concoction of chem drugs that he thought would benefit.  AND IT DID!  I was scared for Jeff, but he didn't want to pass up any opportunity to be cancer free.  AND HE IS!  He is now 48 years old and has not had any recurrance or new cancers.  I know clinical trials sound like something that people can try if they don't respond to traditional therapy, but if my UPSC returns, I will never hesitate to seek a clinical trial.  Hopeing you respond to your current therapy, and hoping you gain strenght.  Hugs Nancy

Nancy,

Thank you for sharing such a wonderful story about your son's successful battle with cancer and the recovery that has lasted into mature adulthood. What a relief and good fortune for him and your entire family.

My mother also struggled with cancer (originally cervical) that spread and required more surgeries and different treatments over 7 years. In 1987, she was given a newly approved chemo drug that proved to be a great success, finally putting her into remission. She died in her mid-70s, several years after this last treatment from some of the side effects from her earlier treatments. But she was still cancer free at the time of her death.

So new drugs or new methods of treatment, either as part of a clinical trial or introduced as new treatment protocols, can have remarkable results.

unknown said:

Don't be afraid of a clinical trial

My son was diagnosed with non hodgkins lymphoma when he was 15.  He went through surgery to remove a mass above his eye, then radiation on the spot.  In about a year, he was again diagnosed with recurrent cancer, this time in his leg.  That's when his wonderful young doctor said we're going clinical trial, with a concoction of chem drugs that he thought would benefit.  AND IT DID!  I was scared for Jeff, but he didn't want to pass up any opportunity to be cancer free.  AND HE IS!  He is now 48 years old and has not had any recurrance or new cancers.  I know clinical trials sound like something that people can try if they don't respond to traditional therapy, but if my UPSC returns, I will never hesitate to seek a clinical trial.  Hopeing you respond to your current therapy, and hoping you gain strenght.  Hugs Nancy

What a wonderful story to share. Thanks, Nancy. Wishing you and your son many healthy years!

It's been a while, so it's good to hear from you and good to hear that your treatments are having some positive effect, at least on your CA-125 levels and scan results. The CA-125 is very encouraging, but I'm a bit surprised it's down in spite of the sinus inflammation because something like that can cause the levels to climb without it being due to the cancer.

Immodium helps with diarrhea if you haven't tried it yet and a bulking agent like Benefiber or Metamucil might help too. Such an annoying side effect, eh? Hopefully it will subside after a while.

I'll be praying that you'll keep having enough energy and emotional stamina to keep at this till you reach NED again. It sure looks like you are heading in that direction, so feel the positive energy and wishes we are sending your way! 

rdifatta said:

A Positive PET Scan

After two cycles of Taxol/Avastin weekly (Avastin Bi/Weekly) a PET scan was done and, by gosh, it showed that the treatment was working!  Tumors have receded and the news generally good.

CA125 at time of recurrence was 340, but as of now has gone down to 11.5.  There are side effects, however.  I am having sinus inflammation and some diarrhea.  My oncologist is thinking

about going to monthly Avastin infusions at some point in the future.  I believe I read somewhere on this blog that Avastin will stop working over time.  Not sure about this, perhaps someone

out there is familiar with this.  For now I'm just busy keeping my energy up and getting rides from a lot of friends and helpers.  God Bless you all!  Rose

Thanks for sharing your positive news. It's good to hear from you and that those tumors are receding along with your CA125 counts.

So glad to hear that things are looking up for you.

rdifatta said:

A Positive PET Scan

After two cycles of Taxol/Avastin weekly (Avastin Bi/Weekly) a PET scan was done and, by gosh, it showed that the treatment was working!  Tumors have receded and the news generally good.

CA125 at time of recurrence was 340, but as of now has gone down to 11.5.  There are side effects, however.  I am having sinus inflammation and some diarrhea.  My oncologist is thinking

about going to monthly Avastin infusions at some point in the future.  I believe I read somewhere on this blog that Avastin will stop working over time.  Not sure about this, perhaps someone

out there is familiar with this.  For now I'm just busy keeping my energy up and getting rides from a lot of friends and helpers.  God Bless you all!  Rose

Good News.  Congratulations that the PET scan shows it is shrinking.  Continued good thoughts and prayers for you. trish