Your thoughts about Total HIFU treatment as a viable option
I am finally at the place in my journey from being diagnosed in 2011 with prostate cancer to where I will be making a decision about treatment. I would like to know where to go to find out the best treatment centers (Stanford?) and where I might find the best research on long term survival. I understand that it is relatively new. I have met with a local HIFU specialist and since my prostate volume has declined dramatically from 109cc to 52cc after taking Bicalutamide 50mg and Finasteride 5mg for the past five months he believes that once the prostate decreases to 45cc I wouild be able to have the HIFU procedure.
Your comments, wisdom and insights would be appreciated.
Jim
Comments
-
HIFU Only in a Clinical Trial
My subject line is based on the recommendation of an expert panel from the American Urological Association:
0 -
Thank you Old Salt. It wouldOld Salt said:HIFU Only in a Clinical Trial
My subject line is based on the recommendation of an expert panel from the American Urological Association:
Thank you Old Salt. It would appear that no one on this board has experience with HIFU.
0 -
search enginemcin777 said:Thank you Old Salt. It would
Thank you Old Salt. It would appear that no one on this board has experience with HIFU.
There is quite a bit of information on HIFU in the forum archives. You jusj have to plug "HIFU" into the SEARCH BY KEYWORDS box above the posts and it will bring up posts from the last 12 years discussing HIFU treatments for prostate cancer.
I have read much of the archives, and if I remember correctly there were successes with HIFU but there were also abject failures with horrendous side effects BUT the failures were typical of inexperienced administration of the treatment, and in the past HIFU would have to be sought out of the country and not covered by insurance.
Whether or not HIFU administrators are becoming more experienced, and the treatment is becoming more available is what must be determined. But I do suggest you research the archived information in this forum using the search engine, keeping in mind treatment may or may not be more accessible, and may or may not be administered with more expertise since those were posted.
0 -
Thank you Grinder. This is aGrinder said:search engine
There is quite a bit of information on HIFU in the forum archives. You jusj have to plug "HIFU" into the SEARCH BY KEYWORDS box above the posts and it will bring up posts from the last 12 years discussing HIFU treatments for prostate cancer.
I have read much of the archives, and if I remember correctly there were successes with HIFU but there were also abject failures with horrendous side effects BUT the failures were typical of inexperienced administration of the treatment, and in the past HIFU would have to be sought out of the country and not covered by insurance.
Whether or not HIFU administrators are becoming more experienced, and the treatment is becoming more available is what must be determined. But I do suggest you research the archived information in this forum using the search engine, keeping in mind treatment may or may not be more accessible, and may or may not be administered with more expertise since those were posted.
Thank you Grinder. This is a very difficult decision to make. I am 75 so I am believing I am good for another 19+ years...if I choose the right treatment and provider and if God wills.
0 -
Why HIFU?
Since you mentioned Stanford, I would ask for a consult at their Medical Center. UCSF is another site that comes highly recommended.
You have given very little info about your case so I can't recommend anything other than stating that you should look into (more conventional) radiation treatments. At your age, I doubt that surgery is an option.
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.7K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 308 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 395 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.3K Kidney Cancer
- 670 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 236 Multiple Myeloma
- 7.1K Ovarian Cancer
- 58 Pancreatic Cancer
- 486 Peritoneal Cancer
- 5.4K Prostate Cancer
- 1.2K Rare and Other Cancers
- 537 Sarcoma
- 726 Skin Cancer
- 650 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards