New dx 4/23/18

It sounds like you and your doctor have agreed on a plan. That is a great! I am about one year ahead of you having had surgery in May 2017. As the other ladies advised me, this is no picnic, but it is doable. 

You said it ... scared and optimistic.  It's a new feeling for me and not one I'm liking.  I am 9 days post surgery (robotic total hysterectomy plus lymph nodes) and am waiting for results.  My variety is Adenocarcinoma and I don't know what MMMT stands for.  I wonder if there is a list of Initialisms because there sure are a lot of them in these posts.  May I ask how old you are Leisa?  

I'm very sorry to hear of your diagnosis. I can relate to the shock as I was also diagnosed with uterine carcinosarcoma (MMMT) cancer in 2016 and staged as IIIB after my surgery in December, 2016.

While you're fortunate that your cancer was diagnosed, early, I agree with the plan to add chemotherapy and possibly radiation to address this aggressive cancer. My chemotherapy plan was a bit different than the 6 cycles of Paclitaxel and Carboplatin commonly used for MMMT cancer.

I had 4 cycles of Paclitaxel/Carboplatin, followed by four cycles of lfex/Mesna/Adriamycin. The use of different drugs for "phase 2" was planned from the beginning and not the result of any allergic reactions to the first two drugs.

If you click on my user name (cmb) in the blue panel to the left of this message you can read about my treatment and results to date. So far I am NED, but will have another CT scan in a couple of weeks.

I was diagnosed with stage 1a grade 3 upsc.  I had 3 rounds of chemo for treatment after a hysterectomy.   So far  2 checkups (every 3 mos) with my 3rd coming up soon.  When I was first diagnosed, I was so scared and anxious.  Then I found this support group.  You have come to a great place for support with wonderful, brave and courageous women that will help you through.    This is what helped me , especially when I was going to have my first chemo treatment.

I wish you all the best.

Sandra

skshello said:

You are an inspiration to me right now, NO TIME FOR CANCER

I started bleeding, and at 69 knew it was not normal.  Got a ultrasound, then a biopsy and they raced me to a complete  hysterectomy on 5/30/18.  WOW ..I had never even been sick ...so of course I started clicking the keys, and their prognosis is appalling.   THEN I saw this site, and especially your name and comments.  So, the meeting with the oncology doctor was a bit easier to take after you showed that there is life after the first shock.  He said that I was stage one until the FOCI(?) comment on the final report, and that kicked it into stage 3.  So..I am waiting for chemo appt, not sure when that will happen, but soon.  As I look at it, there is NO expiration date on the bottom of my foot.  I am a person pf faith, and know that what happens will be accompanied by the Lord's careful planning in my life.  I am so grateful to see that others have experienced what I am beginning to endure, and they have come through it.  Please know that I appreciate all comments here....   Sandy

I also have stage 3 (3a, in left ovary). There some scary statistics out there, but there are also some pretty good ones. They vary so much depending on the study particulars. I finally decided I didn't want any more detail than: (1) it can definitely come back, and I should definitely have my affairs in order where needed, I need to follow up carefully and live as healthy as possible, and I need to make the most out of every day; and (2) I can definitely survive and never have a recurrence, so I can choose to believe that until things change, if ever - and even if it never comes back, doing all the things in (1) will still make my life better.