Terrible Hip Pain Associated with Endometrial Cancer

Hello, Bustacrymz, welcome to our club!  So sorry to see your Dx, and I sympathize with your pain.  I've had episodes of sudden onset of excruciating pain that were caused by a para-aortic cancerous lymph node pressing on my iliopsoas muscle/nerve complex.  That was resolved thru radiation.  I know all the women here empathize with the fear that goes with waiting for the time between the initial diagnosis and the post-surgical reports that will tell you the stage and grade and histological type of uterine cancer you have.  At this point, all I would say is I hope your surgery is being done by a Gynecologic Oncologist.  Take it from one who made the mistake early on in my cancer career (original dx and 2 recurrences), a "regular" ob/gyn, even one who, like mine, had a good reputation as a surgeon, is not equal to a gyn oncologist who can be trusted to tailor your surgery to removing all the cancer that's accessible AND doing the sentinel node resection that is the standard of care.  You should get the gold standard of care, and having Medicaid as insurance should make no difference.  My hysterectomy was done with an open incision along the "bikini line" and altho' my doctor called in the staff gyn oncologist to consult on the node part of it, that surgeon's operative note stated that the incision selected made it impossible for him to do a complete sentinel node exploration and removal.  I had an early stage lower grade endometrial adenocarcinoma and I always wonder if the "cure" that was declared after surgery and radiation might have actually turned out to be true if I'd had a "gold standard" surgical event that might have revealed a cancerous node up the chain that was not sampled.

Even if you had to delay surgery a short while to get in with the specialist most capable of doing the surgery should not deter you from insisting that a gyn oncologist treat you at this critical juncture.

Come back often to chat as you pursue your course of treatment.  There is a wealth of info here and some very knowledgeable ladies who have met and conquered all sorts of challenges.  Best wishes, Oldbeauty

Hey there Busta!  I'm wondering how you are doing as you perhaps have had surgery by now.  I also had a dx of adeno carcinoma in the uterus several months ago.  The worst symptom I had was pn and off again pain inside my right hip.  It seemed like where an ovary would be.  I did not have it radiate to the leg though, just that one spot.  I'm about 6 weeks post radical Davinci robotic hysterectomy and because I have had an abdominal abscess intection I can't really tell if it's gone since I've still got a good bit of discomfort in the whole area.  I'm interested to see if it is gone once I heal.  My best wishes and prayers to you and especially that you have lots of comfort and support through this.

She wrote once, and only once. Often that happens. She may have found another board or group, or perhaps got really busy dealing with her cancer. It's so kind of you to worry about her, but I think she's absolutely left this board (as her very first post was also her last). Nice to meet you, though! Have a great night...

Deb 2