How long has it been since your kidney surgery? What stage were you? Any recurrences of cancer?

1.  How long has it been since your kidney surgery?

     Radical right nephrectomy December 9, 2012.

2.  What was your staging?  

     At that time, Stage 3 Grade 3 (Stage 1 prior to surger, after pathology came back, it was Stage 3).

     Tumor size: 6.8cm

3.  After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?

      I did a 1 year drug trial for Everolimus, but it turned out I was on the placebo, which I found out after being unblinded when I had a recurrence.

4.  Have you had any recurrances of cancer?  If so, what happened and how long after your kidney surgery?

     Two years later, recurrence to right adrenal gland (the same one that had been attached to my kidney). Had adrenalectomy in February 2015. Refused a second drug trial for Votrient vs Placebo. Staging changed to Stage 4 as a result of the recurrence. So far cancer free 3 years. Followup CT scans every 3 months for chest/abdomen/pelvis and blood work.

1 Sept 2017 partial nephrectomy by Da Vinci.. four weeks after diagnosis right kidney

2 Stage 1b no grade Chromophobe RCC 4.4 cm greatest dimension ( I follow Stub in every thing I do)

3 No

4 No based on low risk screening done March 2018

6 six months on still struggling with fatigue and other wierd symptoms 

1.  How long has it been since your kidney surgery?

Radical right nephrectomy on March 8th - 6 weeks ago today.

 2.  What was your staging?  

Papillary Renal Cell Carcinoma, Type 2, Grade 3

Tumor Size: 10 cm

3.  After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?

Yes, on April 5 this year I started Oral Chemo - Cabometyx, 60 mgs. per day. Just starting my 3rd week on it today. (Apr. 19th) Side effects are beginning to increase, but we are managing them thus far. Bloodwork says liver is fine to continue with this strength treatment. Mostly doing this as they were not sure if they got everything out of the liver, and the CT Scan with no contrast does not show organs clearly. Going to ask the Nephrologist about this tomorrow, if I can have a scan with dye or contrast just to see.

4.  Have you had any recurrances of cancer?  If so, what happened and how long after your kidney surgery?

None so far. Just had a CT Scan a month after surgery. Still have a lot of swollen lymph nodes in the chest, but no new tumors visible. Everything is what they call "Stable."

I guess there will be another scan in 3 months, as this is quite an aggressive cancer. Happy to be NED!! But we have to watch the lymphs carefully.

1. Radical left robotic nephrectomy Dec 5, 2017

2. Stage T2B (13.3 cm tumor) Grade 3

3. No other treatment waiting on ablation for new primary tumor 1.5 cm on remaining kidney

4. No metastases but new primary in right kidney. After ablation I will be NED

Cin

1) January 22, 2018

2.) no chemo or anything 

3.) nothing so far! I had a bone scan which was clear. First set of scans in June. Day before my birthday, so they better be NED! It would be the best birthday gift ever! Haha! 

 I forgot- size was 3.3 cm, stage 1 grade 2 clear cell RCC

Stephanie 

Devastated Wife said:

Thanks, everyone.

I'm really feeling down about it all.  I can't stop thinking about it.

My husband is such a good person.  I keep all my worrying to myself because I just want my husband to remain happy and positive.  I don't want to bring him down.

I think I've gone on too many sites and the information I read has just been so bad and it has really affected me.

The good comments above have helped.

To boost your spirits, consider posting another survey/questionaire, something like, asking members what have they accomplished, done or enjoyed since their cancer diagnosis.

1.  How long has it been since your kidney surgery?

     Robotic partial nephrectomy January 5 2018

2.  What was your staging?  

     Stage 1 Grade 3

     Tumor size: 4cm

3.  After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?

      No

4.  Have you had any recurrances of cancer?  If so, what happened and how long after your kidney surgery?

       No   Follow up in May        

May 2016

T3A

Nope

Nope.

1.  July 27, 2016     Open partial nephrectomy right side (born with only right kidney)

2.  Staging:  pT1b   Renal cell carcinoma, clear cell type, ISUP grade 3; 4.7 cm

3.  No chemo or other treatments

4.  No recurrences.  Dec 2016 CT scan showed a weird cyst or something on the left side - In CT a month later nothing appeared.  It seems to fill and empty where the left kidney should have been.  A little primordial kidney?  I'm curious to see what they find (or not) this June.  One year scan NED.  Recent lab tests good; major scans coming up in June.

1. Robotic partial sept 2016

2. Stage 1A, Grade 2

3. No

4. No