New Diagnosed Stage 4 - 28 yo

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Comments

  • Worriedchild
    Worriedchild Member Posts: 56
    edited April 2018 #22
    Ugur said:

    First Update

    Hi again,

    First of all, kindly thanks for every and each person who replied to my post!

    Today I have talked to my oncologist, and she was quite positive and smiling all the time.
    Btw, I am really glad that no doctor yet was any trouble-looking about my case. 

    So, I will have my first chemo on this friday, the day after tomorrow. I heard she was ordering folfox.
    She told me that I will have it every 14 days and for 3 months. Then, we will check how my cancer will react to chemo.
    On 17th of April, I will get a vein port, so I will be able to get my chemo at home. Till then, I will have to stay at hospital during my chemo.

    She also told me some kind of biotherapy will involve into my treatment but I didn't get any details.

    The doctors also suggested me to stay at home during chemo, at least this first 3 months, that my body and immunity system would get used to it. For now I don't think it will be necessary but we will see.

    That is all from my side for now. I know the doctors will use the strongest drugs on me as I understood, but I still can't believe that I will feel week as they described.

    I will keep you updated once I know more.

    Keep strong,
    Uğur

    Best of Luck

    wish

    you

    good luck for this journey

    God bless you

    i would like to know what symptoms compell you to

    doctor and hence diagnosed

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #23
    Folfox

    Thank you for the update.  Folfox is hard on the system especially with the oxi that they have you taking.  I'm surprised that your country lets you do your treatments at home as here in the states we need to go to a treatment center/office for infusion.  Most of us receive ports which are located in the upper chest area, not the vein.  It is true that you should stay away from germs as your immune system is going to be compromised, but for me that was hard.  Make sure you do try to stay active in some way just so that you don't become to much of a couch potato - that's not good either.  Thanks for the update.  As always, we are here to help you get through this.

    Kim

  • Ugur
    Ugur Member Posts: 62
    #24
    Worriedchild said:

    Best of Luck

    wish

    you

    good luck for this journey

    God bless you

    i would like to know what symptoms compell you to

    doctor and hence diagnosed

    Thank you kindly

    Thank you kindly

    My diagnosis period took really long since no doctor was expecting colon cancer from a healthy looking man at the age of 28.
    First of all, I always had some problems with my degestive system. The doctors were focused around my diet and inflamation posibilities for more than a month.

    Since the doctors could not figure out what is the real problem, they appointed me for colonoscopy, and during the colonoscopy I was diagnosed.
    It was unexpected, even the doctor who operated colonoscopy could not believe what she found out.

    If you are asking about the specific symptoms, I could count like;
    Blood and mucus in stool, severe pain in abdomens, feeling tired, diarrhoea

  • Ugur
    Ugur Member Posts: 62
    #25
    Annabelle41415 said:

    Folfox

    Thank you for the update.  Folfox is hard on the system especially with the oxi that they have you taking.  I'm surprised that your country lets you do your treatments at home as here in the states we need to go to a treatment center/office for infusion.  Most of us receive ports which are located in the upper chest area, not the vein.  It is true that you should stay away from germs as your immune system is going to be compromised, but for me that was hard.  Make sure you do try to stay active in some way just so that you don't become to much of a couch potato - that's not good either.  Thanks for the update.  As always, we are here to help you get through this.

    Kim

    Thanks again Kim

    I will get the port, and it will be on my chess connected to one of the main arters. Then I will have to go to hospital for first round of chemo, and after 4-5 hours I will continue the chemo at home, as doctors informed.

    I took your suggestion and will stay at home this week, maybe also next week. 

    Thank you for your message again Kim

     

    Ugur

  • Ugur
    Ugur Member Posts: 62
    #26
    After First Chemo

    Hello again,

    Yesterday afternoon I finished my first chemo session which took little more than 48 hours.
    I had it from my arm since I don't have my port yet.

    Except yesterday, I felt fine during the whole procedure, only I felt a bit heavy-headed.
    Yesterday I felt nausea and tireness for whole day. I slept around 6-7 pm, I guess.
    I felt like I was in a bad hangover.

    Right now, I feel fine, still just a bit heavy-headed. I will have a small walk with my dog and enjoy the rest of the day.

    I will keep you updated.

    Thank you,
    Uğur

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #27
    1st one down

    Its always a relief to get the first treatment out of the way; and then you know what to expect (as far as the procedure) for the following. 

    We always like to suggest - and you may already be doing this - to keep a notebook handy, and write down all of your side effects, in fact, write down everything, including questions and concerns for your next visit. I always went through my list with the Onc before every treatment. 

    What is your chemo cocktail? I was on FOLFOX with the 48 hour 5FU. 

    Tru

     

  • Ugur
    Ugur Member Posts: 62
    #28
    Trubrit said:

    1st one down

    Its always a relief to get the first treatment out of the way; and then you know what to expect (as far as the procedure) for the following. 

    We always like to suggest - and you may already be doing this - to keep a notebook handy, and write down all of your side effects, in fact, write down everything, including questions and concerns for your next visit. I always went through my list with the Onc before every treatment. 

    What is your chemo cocktail? I was on FOLFOX with the 48 hour 5FU. 

    Tru

     

    Waiting for 2nd :)

    Hi Tru,

    Thanks for your message and sorry for late reply.

    I guess I'm having the same regimen as you did, the doctors here don't tell much details. Now I'm waiting for my second chemo to be ready. This time it will be with Avastin, so I hope the side effects won't worsen.  

    We'll see how this one will go. 

    Ugur

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #29
    Ugur said:

    Waiting for 2nd :)

    Hi Tru,

    Thanks for your message and sorry for late reply.

    I guess I'm having the same regimen as you did, the doctors here don't tell much details. Now I'm waiting for my second chemo to be ready. This time it will be with Avastin, so I hope the side effects won't worsen.  

    We'll see how this one will go. 

    Ugur

    Lists

    Go in to your Oncologist with specific questions and make sure you get specific answers.  I hate that some Doctors think they can keep their patients in the dark. 

    Do you research and go armed with knowledge.  Don't let them play around with your body without knowing what they are doing. 

    I wish you the best as you try Avastin. 

    Tru

  • FSUTom
    FSUTom Member Posts: 4
    #30
    Help for my neice

    Hello, 

     

    I was hoping perhaps someone might be able to share some insight with the diag my Neice just recieved.  She is just 27 years old.

     

    We are told it's poorly differenciated carcinoma with neuroendocrine features, originating in the ascending colon and metastized into the liver.  Liver has lesions over 80%.

    She is anemic, they have started her on a two drug platinum based chemo.  She just finished the first rouund but we have not had any other scans yet to see how it's ressponding. 

    Does anyone know how to translate that definition a bit better to understand her options for treatment and does anyone know the best facilities for this?  We are willing to go anywhere.

     

    Thanks very much. 

  • BWD
    BWD Member Posts: 5
    edited May 2018 #31
    stage4

    Hi Ugur, I am sorry you are going through this at such a young age! I was diagnosed with stage 4 colon cancer when i was 48 (2 years ago) they told me if i didnt do chemo i had 6 to 8 months and if i did chemo 2 years. However 2 surgeries and many many Chemo treatments, and just about 2 years later I am still here. All cancer is gone except 3 tiny mats in my lungs, I am still on Chemo to get rid of them! It sounds like you are doing the same treatment as I am but they had to discontinue the Oxi after about 5 treatments because i had a bad reaction to it, But honestly the tumors reduced quicker without it! I to have the port and take the chemo home for 48 hours the do my own disconect which i thought i would never be able to do, and it was a bit scary at first but now easy peasy, just close my eyes and pull! LOL  You have a good attitude and that is the key! keep Smiling and god bless! :)

     

  • Ugur
    Ugur Member Posts: 62
    #32
    BWD said:

    stage4

    Hi Ugur, I am sorry you are going through this at such a young age! I was diagnosed with stage 4 colon cancer when i was 48 (2 years ago) they told me if i didnt do chemo i had 6 to 8 months and if i did chemo 2 years. However 2 surgeries and many many Chemo treatments, and just about 2 years later I am still here. All cancer is gone except 3 tiny mats in my lungs, I am still on Chemo to get rid of them! It sounds like you are doing the same treatment as I am but they had to discontinue the Oxi after about 5 treatments because i had a bad reaction to it, But honestly the tumors reduced quicker without it! I to have the port and take the chemo home for 48 hours the do my own disconect which i thought i would never be able to do, and it was a bit scary at first but now easy peasy, just close my eyes and pull! LOL  You have a good attitude and that is the key! keep Smiling and god bless! :)

     

    Glad to hear you are close to NED

    Hi BWD,

    I'm so happy to hear your story, although I'm sad that you had to go through all these.

    When I see such people like yourself, I have even more encouragement. I am now just after my first and unexpected surgery, I left intensive care unit yesterday in the morning and I feel generally fine now.

    I will try to talk my doctors in to continue the chemo next week already, because I don't want to give more chance to mets in my liver to expand more.

    I wish to see you NED, and I hope I'll join you soon after. 

    Thank you for your kind message, 
    Uğur 

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