Sometimes cold sensitivity is due to cold

Mikenh
Mikenh Member Posts: 777 Member
in Colorectal Cancer #1

I had cold sensitivity this morning and asked my wife if her fingers were numb and she said yes.

I guess it was cold and I cleaned the snow off the car.

It's two weeks out from the infusion.

I'm working very hard to avoid the Womens Only Thread.

Comments

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    #2
    True. I can't say how long it

    True. I can't say how long it took for my cold sensitivity to go away because the Oxy put me in the hospital. I still have neuropathy in my feet but don't really notice it most of the time. It's like having a sock on that only goes from my toes to my instep. The worst part about the cold sensitivity is when you touch something and it gives you the shock. Actually, no, the worst was trying to drink something that wasn't warm at least if not hot.

    Jan

  • abita
    abita Member Posts: 1,152 Member
    #3
    Mine goes away in degrees. In

    Mine goes away in degrees. In the 3 weeks that I weaned off the chemo for my surgery, all my cold sensitivity was gone. But that was only 4 sessions in.

    My 5th session happened 2 weeks ago on a Monday. I was able to drink cold stuff by the weekend. I was wearing sandals outside in the 40 degree weather. Able to get stuff out of fridge. BUT grabbing clothes out of the washer hurt at the 10 day mark.

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #4
    Mike

    very smart move avoiding the thread :) I can guarantee with 100% certainty you have no insight to offer lol

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    edited March 2018 #5
    My sensitivity to cold has

    My sensitivity to cold has been gone. I don't have to wear socks anymore. I don't like wearing socks but had to when going through my treatments. My neuropathy still lingers.

    Mike, stay strong and stay away from that women's only thread. LOL

  • plsletitrain
    plsletitrain Member Posts: 252 Member
    #6
    I'm quite lucky that I didn't have neuropathy

    I had 7 sessions of oxy, 3 with 5FU and 4 with xeloda...now I'm on my 7th xeloda (without the oxy).  But I had diarrhea, and now I feel nauseaous. :(

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #7
    Yeah, right!

    I bet you had a peek at the Women's only thread. I bet you did. HA! image

    I don't blame you a bit, as I had a peek at the men's only one. Curiosity killed the cat, you know. But don't worry, I have nine lives. 

    Tru

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    #8
    I was chatting to my daughter

    I was chatting to my daughter's boss today. I'd stopped by her work. He had stomach cancer 23 years ago. One of his chemos had oxy in it. He beat the cancer but to this day still has neuropathy so bad in his feet that he can't feel the ground. Crazy. His cancer had a 50% survival rate, very cool that he's fine now!

    Jan

  • SophDan2
    SophDan2 Member Posts: 150 Member
    #9
    Hang in there Mike

    Hi Mike,

    My cold sensitivity went away with 1 week of my last treatment. The neuropathy still lingers and has not lessened at all. The neuropathy is definitely at a tolerable level, but I hope that with time it will lessen or even go away. You're brave for just getting out in the snow and cold when you are taking Oxy!

     

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited March 2018 #10
    Neuropathy

    My neuropathy tends to get definitely worse in cold weather even in the 50's.  Cold is cold but even fall weather can bother me terribly.  Hope your feet and hands cooperate and doesn't get worse.

    Kim

  • ThomasH
    ThomasH Member Posts: 106 Member
    #11
    Neuropathy

    I still don't have the feeling in my finger tips, and it has been about a year and a half since my last treatment. My onc said that if the feeling didn't come back after a year, it probably wouldn't come back at all. I started taking lion's mane mushroom capsules a couple months ago, and I think I'm getting some feeling back in my fingers again. Could be helping, could be just healing after a year and a half? I'm leaning towards helping.

    I don't really have the same problems with cold anymore, although I do find I get chilled easier. General cold yes, but digit sensitivity no.

    Thomas

  • Mikenh
    Mikenh Member Posts: 777 Member
    #12
    ThomasH said:

    Neuropathy

    I still don't have the feeling in my finger tips, and it has been about a year and a half since my last treatment. My onc said that if the feeling didn't come back after a year, it probably wouldn't come back at all. I started taking lion's mane mushroom capsules a couple months ago, and I think I'm getting some feeling back in my fingers again. Could be helping, could be just healing after a year and a half? I'm leaning towards helping.

    I don't really have the same problems with cold anymore, although I do find I get chilled easier. General cold yes, but digit sensitivity no.

    Thomas

    I'm on my fourth cycle in the

    I'm on my fourth cycle in the off week and the neuropathy isn't going away as it did with the first three cycles. So it's definitely cause for concern. It is slightly less than the max but the max might have been the combination of cold sensitivity and the neuropathy. I've noticed that the neuropathy is stronger in my dominant (right) hand as well. I am generally able to type and function mostly normally but sometimes my hand will clench in a kind of a claw and I have to use the other one to unfreeze it.

    I did think about trying to play the piano tio see if that would help.

  • SophDan2
    SophDan2 Member Posts: 150 Member
    edited March 2018 #13
    Mikenh said:

    I'm on my fourth cycle in the

    I'm on my fourth cycle in the off week and the neuropathy isn't going away as it did with the first three cycles. So it's definitely cause for concern. It is slightly less than the max but the max might have been the combination of cold sensitivity and the neuropathy. I've noticed that the neuropathy is stronger in my dominant (right) hand as well. I am generally able to type and function mostly normally but sometimes my hand will clench in a kind of a claw and I have to use the other one to unfreeze it.

    I did think about trying to play the piano tio see if that would help.

    Hi Mike

    Hi Mike,

    I would consider cutting back a bit on the Oxy, to see if it lessens the neuropathy a bit. Although I didn't cut back until my 10th out of 12 treatments, it did help.

  • abita
    abita Member Posts: 1,152 Member
    edited March 2018 #14
    Mikenh said:

    I'm on my fourth cycle in the

    I'm on my fourth cycle in the off week and the neuropathy isn't going away as it did with the first three cycles. So it's definitely cause for concern. It is slightly less than the max but the max might have been the combination of cold sensitivity and the neuropathy. I've noticed that the neuropathy is stronger in my dominant (right) hand as well. I am generally able to type and function mostly normally but sometimes my hand will clench in a kind of a claw and I have to use the other one to unfreeze it.

    I did think about trying to play the piano tio see if that would help.

    I just got cut from oxiplatin

    I just got cut from oxiplatin. I was so excited that I just touched everything in my freezer!!!!!!!

    I had a reaction last Monday, and went to ER because blood pressure dropped and they called in the Rapid Response team.

    Today was the do over to see if oxiplatin was the culprit, and sure enough, horrible allergic reaction. I will be switching to irinotec

    which does not cause neuropathy or cold sensitivity

     

    Pri

  • Mikenh
    Mikenh Member Posts: 777 Member
    #15
    SophDan2 said:

    Hi Mike

    Hi Mike,

    I would consider cutting back a bit on the Oxy, to see if it lessens the neuropathy a bit. Although I didn't cut back until my 10th out of 12 treatments, it did help.

    I have been cutting back and

    I have been cutting back and it's at 70% right now.

  • plsletitrain
    plsletitrain Member Posts: 252 Member
    edited March 2018 #16
    Neuropathy

    I don't know if I was being too complacent but I remember claiming not to have neuropathy on my treatments.  I guess I was counting chickens before they hatch.  I thought it was the oxy who is the culprit, but I've stopped the oxy on my 7th treatment which was last year.  I had 3 cycles of xeloda, and it was during the last one, where neuropathy entered.  I don't know if it was the avastin that triggered it, but damn, its hard to walk.

  • Helen321
    Helen321 Member Posts: 1,460 Member
    #17
    I had chemo when it was still

    I had chemo when it was still warm out and had to wear gloves in the freezer section of the supermarket.  That was pretty comical.  Everyone is dressed cool and I'm covered in pants, a sweatshirt and gloves.  But snow is still snow so your hands might just be cold from that, it happens.  lol  Believe me, you should avoid that woman's only post, it's no fun being a woman and it's no better reading about it.  I am 5 years out now and I still have neuropathy in my feet, radiation did a number on my back as did my APR surgery.  My hands are fine though.  And so is my jaw which stopped clicking right after I finished my chemo.

  • SophDan2
    SophDan2 Member Posts: 150 Member
    edited March 2018 #18
    Mikenh said:

    I have been cutting back and

    I have been cutting back and it's at 70% right now.

    Has that helped a bit?

    Has that helped a bit?

  • Mikenh
    Mikenh Member Posts: 777 Member
    #19
    SophDan2 said:

    Has that helped a bit?

    Has that helped a bit?

    The cutback makes it

    The cutback makes it tolerable but the side-effects are taking longer to go away and one of them doesn't go away.

  • SophDan2
    SophDan2 Member Posts: 150 Member
    #20
    Mikenh said:

    The cutback makes it

    The cutback makes it tolerable but the side-effects are taking longer to go away and one of them doesn't go away.

    I can relate

    My hope for you, would be that the side affects are worth it. In my case it was, as I was left with some neuropathy in the end, but at this time I'm cancer free. Good luck with your treatment and choices.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited March 2018 #21
    Helen321 said:

    I had chemo when it was still

    I had chemo when it was still warm out and had to wear gloves in the freezer section of the supermarket.  That was pretty comical.  Everyone is dressed cool and I'm covered in pants, a sweatshirt and gloves.  But snow is still snow so your hands might just be cold from that, it happens.  lol  Believe me, you should avoid that woman's only post, it's no fun being a woman and it's no better reading about it.  I am 5 years out now and I still have neuropathy in my feet, radiation did a number on my back as did my APR surgery.  My hands are fine though.  And so is my jaw which stopped clicking right after I finished my chemo.

    So glad to see you

    So glad to see your post.  Neuropathy in the summer is just slightly less than in the winter - it still hurts.  Summer you have air conditioning and that bothered me terribly.  Still glad that you are checking in and hope that you come back on to let us know how you are doing.

    Kim

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