5FU

I am very sorry how your children are behaving. I would never say that to my mom and neither would my husband. My mom drops in all the time, sometimes it makes me crazy but I never tell her that lol I would give anything for my mom and my dad (he passed in dec of 2016) to both drop in all the time like they used to. 

I hope your next treatments fly by and I bet you look amazing with your short hair!

My children would call to see how things were going but I'm thinking that maybe your kids aren't sure how to deal with it either.  My kids hated what was happening to me, but in all reality, they were scared of losing their mother and it showed.  Maybe your daughter is wanting to distance herself because she is afraid you might not be there for long.  It's just a thought.  As far as treatment, if you are having problems have them reduce it or stop the oxy.  My doctor wouldn't do it and I'm now suffering with permanent neuropathy.  It's worth a good talk with your doctor before it's too late.  Wishing you the best.

Kim

I am terribly sorry for the way your children and son-in-law are treating you. Your son-in-laws behaviour is troublesome, and may possibly be the reason you are not seeing your daughter. 

I also had terrible neurpoathy when I was doing 5FU and radiation. My. Oncologist was a little bewildered, as he said it is usually the Oxaliplatin that causes the neuropathy; but I was weeks out from that. I also know just when it started; when my pump broke, and I missed eight hours of infusion. He upped my infusions to every 10 seconds instead of every 30, and I personally think I got too much too quick.

My hair also fell out and I looked like Gollum. I shaved it off and felt much better.  It grew back curly, then it went straight. I've never had straight hair, but who cares; I'm an old woman and nobody looks at me in any case. I'm alive hair or no hair.

It is hard to distance yourslef from children, but if they are not treating you with the care and respect you deserve, then you don't need them at this point in your life. You don't need to be stressing over anything other than getting better.

Wishing you the best.

Tru 

I can't imagine why they would do that.  Let's just believe that they're still in denial, or that they don't know how to deal with it that shunning you away (or cancer for that matter) is their defense mechanism.  I hope your other relatives would reach out to you.  No matter, you should just stand up for yourself even if others won't.  This is your fight after all.  We're here for you.  

It's amazing how emotional hurt from people can be worse than what we go through physically.  I have 3 children at home and this is very difficult for them. Another 2 of our children live on their own. But they are near enough to check in. My prayer is that your daughter realizes you need each others' love and support, and in the meantime, that you are able to find some peace in all of this. 

Stay strong for you and your husband. It's so so hard but possible. 

It hurt me to hear what your SIL, the doctor, said to you; he ought to know more than others what you are going through. I've met many doctors over the years with very poor bedside manner, especially when dealing with family members of their patients. You did not mention what your daughter had to say about his treatment of you; if she supports that behavior shame on her.

Consider all of us your family, we care for your well being. Please pop on anytime with your updates and feelings, as that is why we are all here anyway.