Looking for ALL survivors who had 2nd transplant

Tantemay
Tantemay Member Posts: 2
in Leukemia #1

Hello, I decided to finally reach out for some support from other survivors. It’s been hard to find other ALL survivors, but I hope to hear something. I got ALL in July 2012, age 57. Thought I had fibromyalgia, but not so. After a stem cell transplant from related donor in Jan.2013, the ALL returned in July 2017. So, after 2 rounds of Blincyto, in remission, scheduled for another transplant in December from unrelated donor. 

So, I’m trying to stay positive, w/lots of family & friends support, but I am scared. Anyone out there who has had a 2nd transplant? Is anything different, after a 2nd on?

I m also now ALL Ph +, which I was negative in the first round. 

Looking forward to hearing from fellow survivor. Thank you,

 

Comments

  • Megsrn7880
    Megsrn7880 Member Posts: 5
    edited March 2018 #2
    My Husband is hoping to get where you are

     My Husband is 40 and has ALL and just underwent a BMT and within 3 month already relapsed. They immediately started him on Blinatumanab in hopes to start him in the adult trials for the CART-T cell therapy and maybe another transplant. This disease is just so aggressive as he was MRD negative no cancer detected going into the transplant. I wish you the absolut best for your second transplant! 

  • Darshin
    Darshin Member Posts: 4
    edited October 2018 #3
    I thought that BMT is

    I thought that BMT is permanent resolution. We recently got diagnosed with ALL PH Positive. Doctor is recommending to go for BMT in 1st remission as high probability of relapse exists. I didn't realise that it can come back even after BMT remission.

    Looking for inputs to understand it better.

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