worst news ever please help

Ruth, so sorry to hear this. You and your husband have been through so much. Please don't give up hope. It's so important to treat this as yet another big ugly obstacle. There must be some options. Praying someone can help with these new developments. Never stop believing! -Beth

I just realized that your husband was on Folfox for chemo and they had to cut the oxy towards the end. Is that the only chemo he's been on? Because it's the worst one in my opinion. The toughest to get through. I can't go on it anymore because of what it did to me. Maybe he'd be willing to try one that's less harsh? I've been on three others and none were like that, just some fatigue. If Folfox were my only option I'm not sure I'd agree to chemo, either. 

Jan

Right now it would be very wise of you to get a second opinion like you are talking about.  Let another set of doctors evaluate his situation and see what they say.  I'm praying that all goes well and you can get him in soon.

Kim

I agree with Kim. Get a second opinion.

One foot in front of the other.

K

Everything that you want to achieve, might be and has been done.  A mixed sequence of treatments, say immune neoadjuvant, cut, chemo+CAM, cut, immunochemo etc is called multimodal therapy.  That's one magic phrase for what you are hunting for, to attempt to convert a normally inoperable patient to NED, or long term stable.  It mostly occurs in the hospitals of regional and national standing with more recognized drs including department heads.

Not all the important steps are in regular US medicine either.  We borrowed heavily from orthomolecular and naturopathic medicine and went some steps further.  We borrowed from Japanese medical literature to overcome US style obstacles and obstructed thinking.  We largely ditched conventionality and went with wider angle answers for immune chemo and cheap targeting. We mixed and matched answers from conventional drs and unconventional medical sources. Carefully aggressive integrative medicine has consistently paid off for us. 

We happened to deal with metastasis including the omentum first.   My wife loaded up with as much immune, molecular and off label anticancer drug as we dared, carefully, and it worked with some good localized immune responses in most or all the resected areas. 

As for surgery and chemo, it is a major problem that conventional surgeons do not have a meaningful anti-metastatic routine up to the day of surgery;  we had to arrange most of this ourselves.  Some papers do describe perioperative chemo, and it sounds like some HIPEC doctors have been willing too.  We tapered some things across my wife's final week e.g. aspirin, day by day, last IV vitamin C and oral 5FU chemo dose 24 hrs before her 2nd surgery (for para-aortic lymph nodes, not liver surgery).  So far we have dissolved, petrified or shrunk liver lesions with mild chemo and heavy duty off label adjuncts (high potency supplements and mild generic drugs).   

We use extra lab tests and mild but high potency integrative treatments to co-opt or push past regular medical answers and decisions. Much higher quality of life, actually fewer pains than the years before.

This approach is, or can be, a very hands on situation, rather than a passive subject. You have to be prepared to overcome or end run obstacles in the medical system.

To hear that your family is going through such a stressful uncertain time. Hoping that the second opinion gives you more and better options  

Please take good care of yourself and best wishes for your husbands recovery 

pam