Newly Diagnosed

GrooGrux Queen
GrooGrux Queen Member Posts: 3
in Breast Cancer #1

I've recently been diagnosed with invasive ductal carcinoma breast cancer.  Luckily it's still in stage 1 but they said it's on the boarder line of stage 2.  My husband had colon cancer about 5 years ago so I know a little bit about cancer but I know breast cancer is a whole differnt deal.

 

I go in on March 7th to have the tumor, which is a little bigger than an inch, remove and some of my lymph nodes.  I will have to have radiation and depending on what they find in the lymph nodes will depend on if I'll need chemo or not.  If the lymph nodes are cancerous I'll need to spend the night in the hospital with some sort of drainage tube wich I don't fully understand what that is.

 

I also have epilepsy so I don't know what effect this will have on he number and type of seizures I'll be having and the meds I take.  Right not I have on average 5 seizures a month and I take 4 different meds for my epilepsy.  I don't know if I'll start having more seizures and if my meds will need to be changed.  I'm keeping a positive attitude about things because stress can cause me to have more seizures.

 

It's nice to meed you all!

Comments

  • 1surfermom
    1surfermom Member Posts: 396 Member
    edited February 2018 #2
    Nice to meet you also

    Hi GrooGruxQueen

    I'm so sorry that you have to join the club no one wants to join. You will find that this board is filled with a wealth of information and support. I so hope that you do not have to have chemo. I'll be hoping and praying for clean nodes on the 7th. Love Surf

  • Beepositive
    Beepositive Member Posts: 259 Member
    #3
    Hello Queen

    Sorry you are her ...but as with the rest of us "we are STILL HERE"   MAIN THING is to ask lots and lots of questions of your Doctors..take a trusted friend or sister with you so they can write stuff down for you..its a lot of information as you probally know from your husbands experience.  asK about options and what IF.. Its your body and you have the final say so on what treatments you want to have the doctors have to lay all the options out there.

    prayers and blessings to you and your family

    BEEPOSITIVE  

  • Apaugh
    Apaugh Member Posts: 850 Member
    #4
    Doc work together...

    You will have the chance to talk to them about all your concerns.  Like Bee said, write down a list of questions and take a friend or family member to go with you to be another set of ears.  Dont leave until you got them all answered.  And you do have the right to that second opinion.  It's not that you doubt it that you can confirm and feel in control.  We are here, we care so much.

    Prayers of love, peace, and good outcomes,

    Annie

  • GrooGrux Queen
    GrooGrux Queen Member Posts: 3
    #5
    Thank You

    Thank you very much everyone!

    I always write down a list of things to ask the dr.  I always bring someone with me but I'm usually the one who writes down the notes because I'm better than they are.  On my last visit my husband insisted on taking the notes and he  only wrote down one sentence!  I didn't see that until we got home so we had to try to remember what the dr said so I could write it down.  I keep a tablet for each dr I go to so things don't get mixed up.  

     

    I'm staying very positive about this, better than my family I think.

     

    Thanks again everyone!

     

  • Raysbabe
    Raysbabe Member Posts: 17
    #6
    The Tube Thingy

    I'm wondering if the tube they were referring to is the one they install for draining fluid after surgery? After my mastectomy they placed in the surgical area for excess liquid draining. If that is the case you will keep in it for a few days to a few weeks...It honestly sounds worse than it is. The only thing that bothered me about the post surgical tube/drain, was trying to find somewhere to safety pin the crazy thing. Not sure if this actually answered your question, but sending prayers.

    Tam

  • mmills24
    mmills24 Member Posts: 1
    #7
    Undergoing Chemo Therapy Now

    Hello to everyone! It is so nice to find someone to talk to that is going through the same things that I am. I was diagnosed with Paget's Cancer of the Nipple in December and had a Lumpectomy in January. There was nothing on the mammogram and nothing on the MRI except the Paget's so the Dr's didnt ever expect to find anything else. I was listed as stagea 0. My doctor ordered a Nuclear Breast Screening where they inject nuclear liquid into 4 areas of the breast so that it till light up and show anything that is going on in the breast and lymph nodes. Thank God that he ordered that test. The biopsy in the operating room came back negative. The frozen section came back negative... but the nuclear test showed 5 microscopic cells in the centinel lymph node. So that changed me to 11A as my staging. I am now undergoing 6 chemotherapy treatments. One every third Thursday... Last is scheduled for May 31. I pray that it will be the last I have to go through. I am on Herceptin along with Carboplatin and Docetaxel. So far so good. I have treatment number 2 tomorrow morning. The first few days of treatment one were ok and then it is like you get hit by a truck and the truck stays on you for a few days... But the first chemo went okay even if it had some rough patches. They dont promise us that it will be fun... but it has to be done. After Chemo then comes radiation... but I want to do whatever has to be done to get rid of this horrible cancer. 

    I lost both parents to cancer. But i am adopted so it is not a herditary thing. There were some cancer patients in my biological family but dont believe there were any breast cancer ones. But I was so devestated by my parents cancer and how they suffered. I would not wish this on anyone... good or bad. They have come so far with the treatments now compared to when my mom and dad went through it. So far my doctor has addressed every aspect of the treatments. The chemo staff are great too.. I am really blessed to have the best people helping me. 

    I had the most wonderful experience when I visited our local Cancer Society. They treated me like a Queen. I can't believe how great they were to me. I have told everyone I can about how the experience with them made my day. And it let me know that someone really cared about me and what I was going to have to deal with. I cant say enough about them and how much they care about everyone who has cancer. They are really there for everyone. So if  you havent gone yet, make a visit to your local Cancer Society and let them make you feel like royalty for a day.. They really dont get the recognition that they should for what they do for cancer patients.

    I am joining this forum to share my experience and also to find out what others with cancer are having to go through. i am hoping to meet some people here that are going through some of the same things that I am and that in some ways we can help each other through this... maybe make it a little easier for some who are really suffering from their treatments.. If anyone would like a new Chemo Friend... let me know.. I am here to support anyone who needs it...

  • Apaugh
    Apaugh Member Posts: 850 Member
    #8
    MMills 24

    Welcome to this site.  We are here we care.  Talk about anything someone on here has been there done that or close to it. 

    Prayers going up for easier times and successful outcomes. 

    Hugs,

    Annie

  • RonnieCee
    RonnieCee Member Posts: 3
    edited August 2018 #9
    No Diagnosis

    I had a biopsy in June for a lump in my breast, after waiting two weeks for the results, I was told the biopsy had to be sent for a second opinion. When the second opinion came back, it was still indecisive, could be metaplastic breast cancer, breast osteosarcoma, or phyllodes tumor. Well I had the mastectomy three weeks later and here it is almost eight weeks since the initial biopsy and I still don't know what kind of cancer I have, they had to send it back to Harvard again.  One of the reports also said it was TNBC.  I really don't know if I will even believe this final report. Has anyone gone thru this kind or thing.  I appreciate any info you may have, thank you.

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