Life expectancy of Chronic Lymphocytic Leukemia

Big Time Dave said:

Survival time for CLL

If I listened to survival times, I would be dead. I was diagnosed with CLL in August 2009. I had Rituxan, then 8 IVIG treatments. In June 2015, my Leukemia transformed into Lymphoma. I had tumers the size of cantelopes in my stomach. I started Rituxan, Bendamustine, and Neulasta treatments in August 2015. I was not expected to survive. I had problems with Bendamustine that most people don't. I was hospitalized 7 times for I nfections. 20 Ococologist I was refered to said I was too sick for treatment, and would not survive. Dr. Jeffrey C. Ward of Swedish Cancer IUnstitute in Edmonds, Washington was not afraid of the long odds. I survived 6 months of chemo. I went into complete remission. I am still standing. Don't lose hope. The scientist are making breakthroughs every day. I, have options if I go out of remissions. There was a time I had no options.

Very uplifting story Dave, You are one heck of a trooper. the best to you sir !!

tedro said:

question

hi, i just found this forum. i read most of this thread.

for the cll people here: is it correct to assume that you all did have bone marrow biopsies, at some point?

if so, at what point, early, right away...?

 

thank you

I have had CLL since 2003 and was told from day one I did not need a bone marrow biopsy.

I still have not had one, If and when I need treatment , I know it would come into play

Bravemama said:

I was diagnosed with CLL in

I was diagnosed with CLL in June this year, I am only 36.  I struggle with this diagnosis for a few reasons.  Less than one year ago my mom passed from pancreatic cancer and she had four other sisters with the same cancer, so I am at a higher risk of developing pancreatic cancer or other cancers.  That fact alone keeps me a bit nervous.  I have been told I will live many years, especially with new treatments coming out.  I pray I live many more years, as my kids are still home and I would love to see them graduate high school, get married and even become a grandma someday.  My oncologist thinks that is totally possilble.  

i am just starting this journey and they told me i was young.. your much younger and i know your shock. I am scared about secondary cancers too.. my dad died of lung cancer and cancer is in my family .. want to figure out the best diet and lifestyle to fight this.

Monkeyfish said:

Thank you.

I am 68, still practicing law and enjoy it, ran the NY Marathon 5 years ago, love to fish and have a great family.  Just diagnosed with CLL because I mentioned that I have a "bump" in my neck during an annual physical.  I was diagnosed with low grade CLL and "wait and see" treatment.  Just had my CT on Friday and will see the doctor tomorrow.  I am afraid and I am still in shock.  I an so uninformed about the details and I am looking for a life raft and a source of encouragement.  You are that for me today.  Please let me know how you are doing now.  God Bless you, I really hope you respond with some good news about you.  

 

 

HI MONKEY FISH  IM PAUL  IF YOUD LIKE TO TALK IM AT (content removed by CSN moderator)  WE ARE VERY SIMILARILY SITUATED

I'm 42. History CAD w/2 MI in my mid 30s. I have several other chronic health problems, so I wasn't surprised to hear it's cancer too! Anyway, my family is a mess, healthy-wise themselves, despite that most of us were at one time in our adult lives, athletes. Me, notasmuch...high school athlete and casual runner as an adult. My weight ballooned from about 160 to 200 in my 30s and I haven't seriously addressed that problem, though I am a very healthy eater. I just overindulge on carbs like whole wheat and rice. Anyway, I started this account so I could meet people I could talk with about my health, CLL, and just life. As long as I remain asymptomatic, I'm going to try to hide my CLL diagnosis from everyone I know. I don't want to be treated differently. And I really don't even want to think about the cancer. I really don't even know what kind of CLL I have. I have to wait  two more weeks to get that information. It'll be nice to have people to share with online. Because my family has been through so much devastation in recent years, I'm not going to throw this on them. At least, I'm hoping that the disease remains "dormant" for many years. Time to go jog a while.